"Your portion will be $227.00." WTF??? How did my ordinarily $35.00 co-payment suddenly turn into $227.00?
"There must be something wrong," I say to the Pharmacy Tech. She agrees to call my insurance carrier. Basically, they tell her the amount is correct. Something about if there is a generic available...blah, blah, blah.
I call them myself and get the same answer. There was a change in my plan? How can they suddenly change my plan from one month to the next? It's not time for renewal yet? I am confused. I can't have him at school without the med, so I go ahead and except the generic while I investigate further to see what the heck is going on with my insurance and what I can do about it. I rush off to Red's school and administer the dose. Just call me Nurse Betty...or Nurse Ratchid...whatever!
Meanwhile, back at the ranch that afternoon, Red has his first incident at the new school: Hiccup ...you know --oops I slipped and cursed out my teacher. Are the two related? New generic med given a little later in the morning and that afternoon we loose it with a teacher? It's hard to say for sure.
He comes home lucid, but as the night comes to a close, he goes on a rant about the incident at school. He's angry again.
Saturday night he takes his meds. Several hours later, he asks me if he took them. He doesn't feel tired at all. He goes to bed around 11:30 p.m., excited about the Airshow we are going to the next morning. When I wake him up on Sunday he says, "I couldn't sleep last night. I just laid there with my eyes open until early this morning." He opts out of going to the Airshow in order to sleep. This within itself is a shocker. He has been looking forward to this for weeks.
When he wakes up that afternoon he tells me, "I wasn't really sleeping. I was just laying there most of the day." Well, I know that he did sleep some, because I entered the room and he didn't budge. Usually, if he's awake he starts talking when I come into the room.
I start to get really pissed. I know the problem is this fake, generic Divaprolex that we were given by the pharmacy. I make a phone call to his doctor (hating to disturb her on a Sunday) and she confirms that this indeed could be the problem. The generic is just rushing through his system, not time released like the name brand Depakote.
Sunday night I give him melatonin to make sure he gets to sleep. A few minutes later he starts the crazy talk and I know he's getting really sleepy. He falls asleep as soon as his head hits the pillow.
Two calls to the doctor and the insurance company later...I discover that this was the error of the pharmacy. They coded wrong when they put the prescription through. The code they used did not show that the doctor required the name brand. When I take this crappy generic back to them, they put it through correctly and with my coupon code...I walk out the door without paying a dime. There were no sincere apologies from them. No store credit...gift card...nada!
Needless to say...I will not be returning to that incompetent pharmacy ever again! I will be more organized and get all of my prescriptions via mail-order. Urghh!
Logging you in...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago