Editorial Note: This is a previously published post from September of this year. It continues to be appropriate. We are not where I want to be, but I continue to be grateful for small blessings.
Dear God,
I wrote you not to long ago asking the question, "Seriously? You think I can handle this?" Well...obviously you were listening. I was so stressed out then. Red was extremely depressed and already having issues at school. Being around all of that negative energy was weighing on me heavily, zapping my energy and bringing me down...way down.
So Lord, I want you to know that I appreciate all of the blessings you have given me in the past few weeks. We tweaked Red's meds again...a process I find extremely excruciating. I just loathe the fact that he has to take these medications. However...things are so much better! Thank you for giving me the strength to hang in there and not give up on the process. Thank you for helping him to feel better. Thank you for turning him back into the boy that I always knew was in there somewhere.
Thank you for his new school and all of the staff that work tirelessly to help him, even when he acts like he doesn't want any help. Thank you especially for his social skills class and teacher who he relates to and actually listens to.
He still has his rough moments, but he reigns it back in quickly, seeing the error of his ways. He is taking responsibility for himself...getting up with his alarm clock (mostly),taking his showers daily (without argument) getting ready for school on time every day (most days), doing homework on his own, attempting to change his diet. Last night for dinner he ate chicken breast, wild rice, and corn. He asked for seconds! He's eating spinach salad. I don't take these things for granted. I am thankful.
He had a successful birthday party, where he socialized and really enjoyed himself...WITH FRIENDS. A year ago I asked you to send him just one good friend. You did that. He is still working on the friendships at school, and even that is in the works. I ask you to continue to work with him on that. He is trying to join the wrestling team...I pray that works out for him. I pray that will give him some connection at school...something to be happy about. I pray that it will help him to look better, feel better and get healthier, physically and mentally.
I am thankful that both boys can now sit down to the table together and have breakfast and dinner without constantly picking at each other (most days). A year ago, even a few months ago...this simple thing was not possible. I am thankful that both boys, now pray, with regularity and without prompting. Red is going to church with a friend, un-prompted by us.
I am thankful for how well Blue is continues to develop friendships, that he is conquering the overwhelming homework and making excellent grades. Middle school is no longer a place that causes him grief...but he loves to be there (most days). He loves learning and the routine of it all. He is already thinking about college and what it will take to get there. That is a HUGE blessing! I am thankful that his pallet continues to grow and that he is so adventurous with food, vegetables and fruit!
We still have lots of areas to work on and continued blessings to ask for. Today, there are just so many baby blessings in our lives, I will reserve requests for more blessings for later...knowing that in your time...you will give them to us.
You may not come exactly when I call...but you always show up on time. Thank you...
p.s. I take that back...I will ask that you bless all of my autism moms, dads and their children. Give them hope. Things will never be perfect, but they will get better. I am thankful for everyone of them who reads this blog and participates in my "Confessions" Facebook community. They bless me daily...
Dear God,
I wrote you not to long ago asking the question, "Seriously? You think I can handle this?" Well...obviously you were listening. I was so stressed out then. Red was extremely depressed and already having issues at school. Being around all of that negative energy was weighing on me heavily, zapping my energy and bringing me down...way down.
So Lord, I want you to know that I appreciate all of the blessings you have given me in the past few weeks. We tweaked Red's meds again...a process I find extremely excruciating. I just loathe the fact that he has to take these medications. However...things are so much better! Thank you for giving me the strength to hang in there and not give up on the process. Thank you for helping him to feel better. Thank you for turning him back into the boy that I always knew was in there somewhere.
Thank you for his new school and all of the staff that work tirelessly to help him, even when he acts like he doesn't want any help. Thank you especially for his social skills class and teacher who he relates to and actually listens to.
He still has his rough moments, but he reigns it back in quickly, seeing the error of his ways. He is taking responsibility for himself...getting up with his alarm clock (mostly),taking his showers daily (without argument) getting ready for school on time every day (most days), doing homework on his own, attempting to change his diet. Last night for dinner he ate chicken breast, wild rice, and corn. He asked for seconds! He's eating spinach salad. I don't take these things for granted. I am thankful.
He had a successful birthday party, where he socialized and really enjoyed himself...WITH FRIENDS. A year ago I asked you to send him just one good friend. You did that. He is still working on the friendships at school, and even that is in the works. I ask you to continue to work with him on that. He is trying to join the wrestling team...I pray that works out for him. I pray that will give him some connection at school...something to be happy about. I pray that it will help him to look better, feel better and get healthier, physically and mentally.
I am thankful that both boys can now sit down to the table together and have breakfast and dinner without constantly picking at each other (most days). A year ago, even a few months ago...this simple thing was not possible. I am thankful that both boys, now pray, with regularity and without prompting. Red is going to church with a friend, un-prompted by us.
I am thankful for how well Blue is continues to develop friendships, that he is conquering the overwhelming homework and making excellent grades. Middle school is no longer a place that causes him grief...but he loves to be there (most days). He loves learning and the routine of it all. He is already thinking about college and what it will take to get there. That is a HUGE blessing! I am thankful that his pallet continues to grow and that he is so adventurous with food, vegetables and fruit!
We still have lots of areas to work on and continued blessings to ask for. Today, there are just so many baby blessings in our lives, I will reserve requests for more blessings for later...knowing that in your time...you will give them to us.
You may not come exactly when I call...but you always show up on time. Thank you...
p.s. I take that back...I will ask that you bless all of my autism moms, dads and their children. Give them hope. Things will never be perfect, but they will get better. I am thankful for everyone of them who reads this blog and participates in my "Confessions" Facebook community. They bless me daily...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago