Here in my reality, I am not always able to find the bright side of the story. Lately, there hasn't been much light to be found in the shadows and darkness. Yesterday, was different. The sun was shining and I definitely saw a bit of light.
I had a rational conversation with Red, in which he finally took some responsibility for his recent behaviors.
"I just can't do it. I don't know what it is ...but I can't get along with this family."
"Do you think there is anything that can change that?"
"No. Honestly, I don't."
Wow! I wish I had recorded it. He seemed to be reaching a point of acceptance that he is going to have to move out. He still thinks he's not ready and that he can't afford it. He doesn't think he can handle everything on his own and neither do I. I assured him that I would make sure that he has the support that he needs. We talked about a post-production film program in California for young adults on the spectrum. We talked about supported living environments both here and in California.
I illustrated how well he is doing in all environments except for home. He saw the picture. I told him that I think he will grow into the young man that he needs to be if he gets away from me. He's a mama's boy and he knows it.
I have been his anchor, his voice and his advocate for so long. Maybe I have over-mothered in attempts to protect him from himself and from the horror that was middle and high school. He was so sad, depressed and felt so isolated. I knew that he was in deep pain in those situations and I tried to compensate for that however I could. I fought for the best possible scenario available in a sea of bad options for a kid like him.
However, I feel like at this point, I'm stunting his growth. I can't be his lifeline anymore. I just can't do it. The more I give, the more he takes, leaving nothing left over for me. He needs to stand on his own. He will continue to need support, but he will get it from other adults who have high expectations of him and he will rise to the occasion, just as we've already seen since he left high school. Being away from me will force him to grow up. I think he'll be happier. I told him that during our rational conversation. It may not be all roses. There will be some thorns. There will be some setbacks but ultimately, he will thrive.
It's not like he's someone with absolutely no drive and no initiative. He was that way in high school. But since then, he is on point with his job. He hasn't missed a single day and hasn't had one, single issue there. He has the drive and initiative to work on his own business, even though he still has a lot to learn. He is motivated to make money! I think that getting some distance from me will be the spark that puts him into overdrive.
I was feeling discouraged and messaged my good friend Paul yesterday. I met Paul through this blog and my Confessions Facebook community (See...Social media is good for something!)
Paul wrote a little about his Aspergers story on my blog last year. (It's a really great piece of writing. You really should check it out.) Paul had had a difficult childhood not knowing that he had Aspergers. He is now a successful business owner, excellent father and a husband. He has friended Red on FB and always has encouraging things to say to him.
I love him for who he is as a man and the way he treats my son with such dignity.
Paul wrote the following...
"I have this gut feeling that I've never been able to shake...but I have always thought there was something very special about your boys. I mean that with all my heart, and I've probably even told you that before, but I absolutely cannot shake the feeling that, despite the frustrations and challenges, God is cooking up something extraordinary in Red's life. I swear to you, it's just feel it as real as the air I breathe.
You've always inspired me so much just in the way you live your life and carry yourself through these struggles. It doesn't seem like much of a consolation, but it takes an extraordinary person to raise kids like that, and it's pretty clear why God picked you. Gee...thanks, God! Right?
Maybe I just relate to him because I was like that too, and I was blessed enough to have a dad with the same heart you have ...and he never gave up. It wasn't like he said "I'm done with you" but instead he was saying "I love you too much to let you keep living like this". And because he was a parent with the same heart as you, he saved my life over and over and we have a great relationship now. He's my hero and always has been. I would bet my life Red sees that in you too when he looks back 5 or 10 years from now.
You are all amazing people and I count myself blessed to call you friend. Please hang in there...you are doing an amazing job!!"
This brought a tear to my eyes and joy to my heart. Everything he said made absolute sense. It's almost like Red is pushing me to push him out and that may be a God thing too.
Again, thank you Paul for being there for him and for me. I appreciate your support more than you'll ever know.
It is a daunting to think of my child moving away from me, out there into the big, bad ugly world. I know it's scary for him. It's scary for me. Ultimately, it will be for the best for both of us.
I had a rational conversation with Red, in which he finally took some responsibility for his recent behaviors.
"I just can't do it. I don't know what it is ...but I can't get along with this family."
"Do you think there is anything that can change that?"
"No. Honestly, I don't."
Wow! I wish I had recorded it. He seemed to be reaching a point of acceptance that he is going to have to move out. He still thinks he's not ready and that he can't afford it. He doesn't think he can handle everything on his own and neither do I. I assured him that I would make sure that he has the support that he needs. We talked about a post-production film program in California for young adults on the spectrum. We talked about supported living environments both here and in California.
I illustrated how well he is doing in all environments except for home. He saw the picture. I told him that I think he will grow into the young man that he needs to be if he gets away from me. He's a mama's boy and he knows it.
I have been his anchor, his voice and his advocate for so long. Maybe I have over-mothered in attempts to protect him from himself and from the horror that was middle and high school. He was so sad, depressed and felt so isolated. I knew that he was in deep pain in those situations and I tried to compensate for that however I could. I fought for the best possible scenario available in a sea of bad options for a kid like him.
However, I feel like at this point, I'm stunting his growth. I can't be his lifeline anymore. I just can't do it. The more I give, the more he takes, leaving nothing left over for me. He needs to stand on his own. He will continue to need support, but he will get it from other adults who have high expectations of him and he will rise to the occasion, just as we've already seen since he left high school. Being away from me will force him to grow up. I think he'll be happier. I told him that during our rational conversation. It may not be all roses. There will be some thorns. There will be some setbacks but ultimately, he will thrive.
It's not like he's someone with absolutely no drive and no initiative. He was that way in high school. But since then, he is on point with his job. He hasn't missed a single day and hasn't had one, single issue there. He has the drive and initiative to work on his own business, even though he still has a lot to learn. He is motivated to make money! I think that getting some distance from me will be the spark that puts him into overdrive.
I was feeling discouraged and messaged my good friend Paul yesterday. I met Paul through this blog and my Confessions Facebook community (See...Social media is good for something!)
Paul wrote a little about his Aspergers story on my blog last year. (It's a really great piece of writing. You really should check it out.) Paul had had a difficult childhood not knowing that he had Aspergers. He is now a successful business owner, excellent father and a husband. He has friended Red on FB and always has encouraging things to say to him.
I love him for who he is as a man and the way he treats my son with such dignity.
Paul wrote the following...
"I have this gut feeling that I've never been able to shake...but I have always thought there was something very special about your boys. I mean that with all my heart, and I've probably even told you that before, but I absolutely cannot shake the feeling that, despite the frustrations and challenges, God is cooking up something extraordinary in Red's life. I swear to you, it's just feel it as real as the air I breathe.
You've always inspired me so much just in the way you live your life and carry yourself through these struggles. It doesn't seem like much of a consolation, but it takes an extraordinary person to raise kids like that, and it's pretty clear why God picked you. Gee...thanks, God! Right?
Maybe I just relate to him because I was like that too, and I was blessed enough to have a dad with the same heart you have ...and he never gave up. It wasn't like he said "I'm done with you" but instead he was saying "I love you too much to let you keep living like this". And because he was a parent with the same heart as you, he saved my life over and over and we have a great relationship now. He's my hero and always has been. I would bet my life Red sees that in you too when he looks back 5 or 10 years from now.
You are all amazing people and I count myself blessed to call you friend. Please hang in there...you are doing an amazing job!!"
This brought a tear to my eyes and joy to my heart. Everything he said made absolute sense. It's almost like Red is pushing me to push him out and that may be a God thing too.
Again, thank you Paul for being there for him and for me. I appreciate your support more than you'll ever know.
It is a daunting to think of my child moving away from me, out there into the big, bad ugly world. I know it's scary for him. It's scary for me. Ultimately, it will be for the best for both of us.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago