There's nothing better than being awakened from a pleasant slumber by a full on meltdown at midnight.
Blue bursts through the door, "Mom! Can you please tell Red to stop singing?!"
Really? Is this really happening?
I am sleeping. I beg him to please to talk to his father, who is awake!
A few minutes later, he's back, "Dad won't help."
Really? Really? I am pissed! I have been awakened 3 times now in the past hour!
When they first got home from the basketball game --the one that Red did not want to go to, by the way, he came into my room wanting to tell me all about the good time he had.
Hello! I am sleeping! Tell me tomorrow.
Does he leave? No! My television is still on which encourages him to sit down.
I turn it off and ask him again to please leave my room ...three times before it finally clicks.
Does he leave? No! My television is still on which encourages him to sit down.
I turn it off and ask him again to please leave my room ...three times before it finally clicks.
A few minutes later Blue is in my room to say ...I don't know --hello or something. I don't really know or care. I am trying to sleep. He gets the hint much quicker and leaves the room.
Now this --Can you tell Red to stop singing?
I lost it! I get up I'm yelling at everyone. I yell at Red to stop singing. I yell at hubs because he didn't get his ass up off the couch to handle the situation. I yell at Blue to go to bed and get over it. I am cursing them all under my breath. I go back to my room and slam my door!
Next thing I know Blue's door is back open...he's yelling, "There is a mosquito in my room!"
Jesus help me!
Next thing I know Blue's door is back open...he's yelling, "There is a mosquito in my room!"
Jesus help me!
Dad finally gets up off the couch to handle things ...which means yelling at Blue, "Get in the bed now!" Not listening to what he is trying to say about the mosquito. Before I know anything Blue is in full melt-down. Yelling, screaming and yes...even cursing.
So much for going back to sleep. I catapult back across the family room, passed dad damn near knocking him over --and he's a big guy. Thanks so much for handling it by making it worse.
Blue is trying to call the 911 to get him out of this house. I grab him, hugging him, telling him to take some deep breaths and just calm down. I don't allow any talking just breathing --cooling off.
When he is finally calm enough to get undressed, I hugged him and told him not to think, just breathe and try to get to sleep.
So much for going back to sleep. I catapult back across the family room, passed dad damn near knocking him over --and he's a big guy. Thanks so much for handling it by making it worse.
Blue is trying to call the 911 to get him out of this house. I grab him, hugging him, telling him to take some deep breaths and just calm down. I don't allow any talking just breathing --cooling off.
When he is finally calm enough to get undressed, I hugged him and told him not to think, just breathe and try to get to sleep.
Everyone goes back to their quarters...dad feeling crushed and defeated returns to the couch downstairs, Red to his room and me to mine. The deep slumber is over. I am wide awake. Adrenaline is pumping through me. I lay awake thinking about what just happened.
In the heat of the moment ...I wasn't thinking about was the fact that Blue had been gone for more than 24 hours. He spent the night with his friends. Got up early, hung out with them and played all day. Then Dad picked him and his friends up to go to this basketball game.
The initial trigger to this meltdown was his brother singing as he was trying to relax and get ready for bed. The underlying trigger was pure exhaustion. It you dig down underneath the exhaustion, there was also little bit of a let down coming back home after all of that fun. It's like when he was younger and we went on vacation to spend time with family, coming back home to reality made him sad. Heck ...it made me sad too. In these adolescent years, sadness has turned into anger and rage.
At home there are the annoying parents always telling him what to do and what not to do. There's the annoying brother who loves to sing and script dialog from movies and television shows. Then there is this intense need to have complete control over his environment and the inflexibility to adjust in order to acclimate to an environment that is less than perfect.
I lost it and yelled at everyone. I lay in bed feeling bad about that. I had yelled at my husband in front of everyone and then he ended up taking the brunt of Blue's meltdown. I know how sensitive he is. He usually takes the things they say and do during meltdowns personally. I know he is thinking, I just took these assholes to a basketball game and now they are at home fighting, and end up yelling, screaming and cursing. They are so ungrateful! He isn't thinking about Blue is just being overwhelmed and exhausted.
I've been told in the middle of a meltdown, "I HATE you!" I know that they love me...they are just angry, seeing red and not thinking clearly. The boys have never get physically aggressive with me during a meltdown. Of course, I don't back them into a corner in the middle of it. Sometimes I walk away. Other times, I may just give them a hug or try talking to them gently. Talking never works. When they are getting to out of hand, and refuse to leave an area, their dad will come to my rescue, so to speak. He doesn't like what he feels is disrespect coming from these boys towards me. He is my knight. There is something about them all being these alpha males who can't back down when emotions are high that can make things get out of hand and get really ugly.
I spent hours awake feeling bad for the part I played in this episode. I felt bad for all parties but was able to piece together where the breakdowns happened in hopes to avoid them all the next time. Hubby and I talked in the wee hours of the night when he finally came to bed about exactly what happened and what we can try to do the next time. I try to reassure him that he is an awesome dad, and he has to know that a good part of what is going on is simply autism and adolescence. It's not personal.
No wonder my beauty is fading. I can't get enough sleep.
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I love it when you comment and even more when you share my post. Thanks...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago