It's simply amazing how quickly everything can turn to shit.
It's a beautiful day. There were no phone calls from school. Red comes in the door in a relatively good mood. There is a girl ...he tells me. "I have a crush on her. She's really cute. She always speaks to me and gives me a hug."
Great! I think to myself. I never get excited about the girls because a little crush can quickly turn into a fixation that I will spend hour upon hours listening to conversation about. Then I have to deal with the fall out when it all goes wrong. I just let him talk, trying not to pass any negative judgement, out loud anyway.
He needs a haircut today. I interrupt his ongoing one-way dialog to ask him to get ready to go, and while were at it --he should change so we can go to the gym. He changes, but then pulls out my laptop to show day this video series called, "Six Pack Shortcuts" that he definitely needs to purchase. He has the entire sales pitch memorized and we have had to listen to it over and over and over again on and off for the past 6 months.
We have had countless conversations telling him that he can save his own money to buy this video set. We pay for a gym membership. What's more ...he can go run around the neighborhood for free if he wants to loose weight. Furthermore, he does not show any consistency to working out, so there is no reason for us to invest any further in this endeavor. We have told him this hundreds of times. He is still trying to sell us on it.
"But you guys don't understand! This is the shortest way to get tight abs." Any exercise at all is shorter than sitting in front of your computer waiting for it to happen, which is what he is the most consistent at doing.
Meanwhile, Blue is telling me that he wants to go with us to get said haircut, but what he really wants is to go somewhere to grab dinner and then do homework at Starbucks. He's being quite insistent about going out and a bit on the rude side, I might add. This leaves a bad taste in my mouth and really makes me feel like making a quick dinner and taking him to the library instead of someplace where I will have to spend money for unhealthy food.
Red is getting lost in his rant about "Six Pack Short Cuts." He can't stop until he gets himself all worked up. When he comes downstairs, Blue gets into the mix of telling him basically to get over it. He is regurgitating everything that his father just said and that I have said in the past. He is the third parent after all. We really need his help, because his older, bigger brother will definitely listen to him and not his parents! ONLY NOT!
This is when all hell breaks loose! Both boys are yelling, slamming hands on the table, getting in each other's faces. I attempt to cut it all short by telling them both, we aren't going anywhere! Why would I take the two of them out of the house when they are behaving this way.
I can't tell you all how fun it is to have two testosterone-enriched, teenaged boys with Aspergers, both going off the deep end at the same time! This is why I keep a vodka supply in the house!
Blue is livid! I send him out to the garage to sit in the big chair we have out there, where he can cool off. The garage door is open and the sun is shining. He loves to take sunbaths. It usually relaxes him. Not today! He tries to run away. He always wants to leave and go to his friend's house. Of course, he calls me on his cell phone to tell me what he's doing. I cut it short. Told him he could go for a walk to cool off, but not to his friend's house to go have fun after his behavior here.
Within the hour ...Blue is with me in my room, processing his feelings. I am billing him $125.00 an hour for my therapy services. The bottom line is he is tired...again. We started this conversation at 6 p.m. By 6:30 he is fast asleep ...for the night.
He left a ton of homework undone. This was a part of his trigger. At the end of a long day of focusing and skipping over landmines at school, some days he just doesn't have it in him to do another 2 hours worth of homework. He wants modifications and then he doesn't. I think his teachers are drilling him with, "They don't make modifications in college." Which in fact, is dead wrong! You can get modifications in college. Not to mention how you can adjust your schedule in college so that you don't feel overwhelmed.
In middle-school they are packing these kids down with homework because they are under pressure to get so much taught before state testing. Do I give a crap about state testing? No I do not! He will fly through the tests. So personally, I don't see why he needs to be stressed out with all of this busy work when the main point is that he is learning and doing exceptionally well with his grades.
There is a fine line between his overprotective mother stepping in on his behalf and allowing this stress to go on and allowing him to advocate for himself. The teachers don't see what I see at home. Nor are they aware of what a stressful environment this house can be to work in at the end of a long day. They don't live with his brother who comes home in the evening and can go off in a rant at a moments notice, which then sends Blue into the depths of hell.
I sent him to school this morning without a lick of homework done. He does have extra-time in his I.E.P. (individual education plan). He will have to deal with his teachers today ...advocating for himself. He will have to let them know what happened last night and I hope that they will work with him. He is always afraid to talk to them. "What if they get mad at me?"
I always tell him the same thing. "They will get over it."
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I love your comments...
It's a beautiful day. There were no phone calls from school. Red comes in the door in a relatively good mood. There is a girl ...he tells me. "I have a crush on her. She's really cute. She always speaks to me and gives me a hug."
Great! I think to myself. I never get excited about the girls because a little crush can quickly turn into a fixation that I will spend hour upon hours listening to conversation about. Then I have to deal with the fall out when it all goes wrong. I just let him talk, trying not to pass any negative judgement, out loud anyway.
He needs a haircut today. I interrupt his ongoing one-way dialog to ask him to get ready to go, and while were at it --he should change so we can go to the gym. He changes, but then pulls out my laptop to show day this video series called, "Six Pack Shortcuts" that he definitely needs to purchase. He has the entire sales pitch memorized and we have had to listen to it over and over and over again on and off for the past 6 months.
We have had countless conversations telling him that he can save his own money to buy this video set. We pay for a gym membership. What's more ...he can go run around the neighborhood for free if he wants to loose weight. Furthermore, he does not show any consistency to working out, so there is no reason for us to invest any further in this endeavor. We have told him this hundreds of times. He is still trying to sell us on it.
"But you guys don't understand! This is the shortest way to get tight abs." Any exercise at all is shorter than sitting in front of your computer waiting for it to happen, which is what he is the most consistent at doing.
Meanwhile, Blue is telling me that he wants to go with us to get said haircut, but what he really wants is to go somewhere to grab dinner and then do homework at Starbucks. He's being quite insistent about going out and a bit on the rude side, I might add. This leaves a bad taste in my mouth and really makes me feel like making a quick dinner and taking him to the library instead of someplace where I will have to spend money for unhealthy food.
Red is getting lost in his rant about "Six Pack Short Cuts." He can't stop until he gets himself all worked up. When he comes downstairs, Blue gets into the mix of telling him basically to get over it. He is regurgitating everything that his father just said and that I have said in the past. He is the third parent after all. We really need his help, because his older, bigger brother will definitely listen to him and not his parents! ONLY NOT!
This is when all hell breaks loose! Both boys are yelling, slamming hands on the table, getting in each other's faces. I attempt to cut it all short by telling them both, we aren't going anywhere! Why would I take the two of them out of the house when they are behaving this way.
I can't tell you all how fun it is to have two testosterone-enriched, teenaged boys with Aspergers, both going off the deep end at the same time! This is why I keep a vodka supply in the house!
Blue is livid! I send him out to the garage to sit in the big chair we have out there, where he can cool off. The garage door is open and the sun is shining. He loves to take sunbaths. It usually relaxes him. Not today! He tries to run away. He always wants to leave and go to his friend's house. Of course, he calls me on his cell phone to tell me what he's doing. I cut it short. Told him he could go for a walk to cool off, but not to his friend's house to go have fun after his behavior here.
Within the hour ...Blue is with me in my room, processing his feelings. I am billing him $125.00 an hour for my therapy services. The bottom line is he is tired...again. We started this conversation at 6 p.m. By 6:30 he is fast asleep ...for the night.
He left a ton of homework undone. This was a part of his trigger. At the end of a long day of focusing and skipping over landmines at school, some days he just doesn't have it in him to do another 2 hours worth of homework. He wants modifications and then he doesn't. I think his teachers are drilling him with, "They don't make modifications in college." Which in fact, is dead wrong! You can get modifications in college. Not to mention how you can adjust your schedule in college so that you don't feel overwhelmed.
In middle-school they are packing these kids down with homework because they are under pressure to get so much taught before state testing. Do I give a crap about state testing? No I do not! He will fly through the tests. So personally, I don't see why he needs to be stressed out with all of this busy work when the main point is that he is learning and doing exceptionally well with his grades.
There is a fine line between his overprotective mother stepping in on his behalf and allowing this stress to go on and allowing him to advocate for himself. The teachers don't see what I see at home. Nor are they aware of what a stressful environment this house can be to work in at the end of a long day. They don't live with his brother who comes home in the evening and can go off in a rant at a moments notice, which then sends Blue into the depths of hell.
I sent him to school this morning without a lick of homework done. He does have extra-time in his I.E.P. (individual education plan). He will have to deal with his teachers today ...advocating for himself. He will have to let them know what happened last night and I hope that they will work with him. He is always afraid to talk to them. "What if they get mad at me?"
I always tell him the same thing. "They will get over it."
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I love your comments...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago