In these days of bullying, school shootings and negative images of Aspergers in the media ...schools are looking at security and their liability, before they look at what is best for the child with the disability. In fact, even before this era...often times they do what is best for them or what is easiest, instead of what is best for the child on the autism spectrum. School administration is worried about budgets and staffing issues, test scores, school funding and not always at what is really the best thing for the child who is different, who causes them more work. If you are not paying attention, you can best believe that your disabled child will fall through the cracks.
Unfortunately, Red does not have the full capacity to advocate for himself. He is 17...but doesn't have the mentality of a 17 year old. He doesn't know what's best for him. He spends so much of his time fixating on non-essential matters that he doesn't have a whole lot of mental energy left over for anything else. He can and will speak up ...however I have to be his advocate. I have to be the voice of reason that he doesn't have the ability to be right now.
Red is a 17 year-old, black male with Aspergers. He stands about 5ft. 10 or 11 and weighs at least 200 pounds. He attends a school where he is definitely a minority. He has a behavior pattern --when some one treats him nicely, he sees them as a good friend...he gets fixated on them or their group of friends because he wants to be a part of the in-crowd. He wants to be loved and accepted. His intensity makes them feel uncomfortable and then they reject him. Then the fixation grows deeper.
He may start to behave in ways that make peers feel even more uncomfortable. He may be looking at them from across the room ...glaring. He may approach a crowd and then not say much...which to them looks weird. There may even be days when he slams his hands on a table, against a locker or a slam a door because he is feeling angry and rejected. Then he posts these feelings of anger and rejection on Facebook. F-life! Everyone hates me! I'm so F -ing angry. Nobody understands me etc.
Has he ever been directly aggressive? No. Has he ever put his hands on another peer inappropriately? No. Are these behaviors a direct result of his disability? Yes. Absolutely. Does this behavior need to be addressed and modified? Most Definitely.
We have tried many things to curb this behavior --social stories, social skills classes and groups, individual therapy, prayer, talking with his pastor, talking with his real friends, and male family members. Is he connecting the dots? So far ...the answer would be a resounding no.
The school is becoming exasperated with the behavior an the fixation because it involves other students. One of which is a young princess who cries every he looks in her direction or she sees him in the lunch room or the hallway. He has said and done some things to make her uncomfortable in the past. When he was told to stay away from her completely ...he did. A few months later she comes up to him and says, "You don't have to totally not speak to me. I mean we can still be nice to each other." They become friends again ...then he does something to weird her out. And it's on again...she is back in the AP's office crying about the big, bad, black, angry looking wolf!
What should the school be doing? Trying to create a more inclusive environment...educating students about tolerance and inclusion. When they see a student who is depressed, lonely and different create ways to make them feel better about themselves instead of vilifying them ...creating some one who is increasingly angry and misunderstood.
I am sick of them calling me about this. I am sick of him giving him consequences because of this particular peer freaking out. Does his focus need to change? Absolutely! Is the way to do that by isolating him and continually giving him consequences that he sees as negative? No! Is any of that changing the fixation? Absolutely not.
When we meet yesterday ...it is their idea to put him in a more isolated area so that he doesn't cross paths with this group of peers at all? Nah! Sorry y'all! That's not going to work for me. He has a right to be in the hallways and lunch room as much as anyone else. I'm sorry if his mere presence from across a room makes you uncomfortable.
What we are going to do is create a situation to get him involved in a positive activity so that he can break this pattern of fixation. For the next two weeks...he is going to be placed into a role of leadership socializing in the mornings before school with the kids with more severe disabilities who he already helps during a class period. They know him ...they love him...they look up to him. He can other wise to hang out in his first period class where there are also some good friends that he interacts with well.
I sell this to Red as this is a way to start off your day feeling good about yourself, instead of walking around aimlessly, focusing on peers who don't really give a crap about you. This will change your focus and make you feel good about yourself. I asked him to trust me. "I am on your side. This is just like the social skills group you didn't want to go to because you were scared. It was different. You didn't think you would like it. But you thrived and made some real connections with people that you maintain to this day."
He will continue to go to lunch and have time to socialize with peers during that time. I asked him to focus on the peers that he knows well and who reach out to him. "You are not to go up to that group of peers who never approaches you...at all!" He agreed and seemed to understand.
I also told the staff if he tries to engage about this particular student, your response should be to redirect him. The script will be "We are not going to talk about that. Who can you hang out with or what can you do to make yourself feel better?" There will be no back and forth dialog about this particular peer and what he thinks she is doing to make his life miserable. The dialog will be about what can YOU do to make your life better.
I put together a plan and a solution without even really giving them a whole lot of input. I wrote it all down in black and white. And this is how we are going to roll for the next two weeks. We will see how it goes.
And guess what? I'm not done yet.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago