Red often goes off on these mini-rants about how much his life sucks. I wrote about that a bit in this post "Simple Things" yesterday. During such rants, he says a lot of things that don't make sense. He just spouts off, without any justification or rationalization to his argument.
The latest rant is about how he wants to drive and it's not fair that all of his friends drive. He blames it on us because we won't teach him. He blames it on his Aspergers. Most things that are wrong in his life in his opinion, are completely the fault of other people, his disability ... anything or anyone, other than himself. He couldn't possibly be the problem --the elusive piece of the puzzle that keeps him from putting his life together in to the perfect picture.
"Because of my Aspergers ...I am so behind!"
Scratch the record dude! Uh uh. Aspergers does not stop you from doing anything that you really want to to. It does not incapacitate you. There are many people with Aspergers who live very full lives.
"There are Aspergers teens who drive, but no one is going to hand over the keys to a vehicle that you can actually kill yourself or someone else with. The issue here is that you only want to do what YOU want to do. If it's hard and requires a lot of work ...you are not willing to do it. For example, your friend with Aspergers who drives --also takes advanced classes and is willing to do homework. You don't want to do homework because it interferes with your time to sit around on your computer doing... whatever. You don't willingly read like you're supposed to over the summer. You won't consistently get up on time for work training on your own. You are not showing us responsibility. Why should we help you learn how to drive when you don't show responsibility?"
His response? "What does responsibility have to do with it?"
Wow! Just ...Wow!
The friend that he is referring to has Aspergers. He is 16 and also already has a job. He had the initiative to go out and fill out applications and apply for work. Red complains about having to be in vocational training, yet he has not been willing to go out to get work applications and fill them out. I will help him if he initiates the task. We actually set this as a goal in his last Person Centered Planning meeting, and he has yet to move forward with it. Yet, it's all our fault that he doesn't have a job or is able to drive.
Furthermore, I ask him does he even know what it takes to get a drivers license?
"You guys just teach me. Or get me a drivers training teacher."
"Do you know the steps towards getting a license?"
"Who do you get a license from?"
After a few wrong answers he comes up with, "Um...the government."
"What government agency?"
"Um...the FBI?"
Oh sure! You're ready to drive.
I go on to tell him exactly what agency it is, and that he needs to do the research on what it takes to get a license in the state of Texas.
I ask him, "Have you asked any of your friends who drive what the steps are? What did they do to get their permit or license?"
"No."
Ah hah ...but it's all our fault that he doesn't drive yet.
I go on to talk about responsibility. Driving takes gas and insurance, even if we were to allow him to drive one of our cars. "You have to have some kind of job to help pay for that. You have yet to go and pick up a job application. Get a job. How are you going to drive if you have no money to pay for gas or any of the expenses that come along with driving?"
Our now 24 year-old son had to have a job and save money towards the purchase of a car before we helped him buy one. We may be a little more lenient with Red, but he will have to show a hell of a lot more responsibility and initiative than he does now. It was a just a few weeks ago when he was having a semi-meltdown and tried to take my keys so he could go "handle a situation" with a friend, I wrote about that here, "Rolling Down The Street". Yeah that was a real doozy!
To bring finality to this rant about how he is so far behind because of his Aspergers, I say the following:
"You shouldn't look at your Aspergers as a disability. It is just a DIFFERENT ABILITY. It doesn't stop you from doing anything! You just have to be willing to do the work. You may need a little extra time for processing. You may need a little help here or there, but if you develop a road map, set goals and follow the map --you can do anything you really want to do! I am willing to help you. I am not willing to do things for you. And I will not except the blame, for not getting things done. This is your life!"
Furthermore, I tell him to go to the internet to the Department of Public Safety and look up what it takes to get a drivers license in the State of Texas. As soon as he's ready to pick up that first job application, "because he doesn't need any stinkin' vocational training," just let me know. I will not initiate it. I will not do it for him.
"I will help you design your road map, but you are the one who has to follow it."
The latest rant is about how he wants to drive and it's not fair that all of his friends drive. He blames it on us because we won't teach him. He blames it on his Aspergers. Most things that are wrong in his life in his opinion, are completely the fault of other people, his disability ... anything or anyone, other than himself. He couldn't possibly be the problem --the elusive piece of the puzzle that keeps him from putting his life together in to the perfect picture.
"Because of my Aspergers ...I am so behind!"
Scratch the record dude! Uh uh. Aspergers does not stop you from doing anything that you really want to to. It does not incapacitate you. There are many people with Aspergers who live very full lives.
"There are Aspergers teens who drive, but no one is going to hand over the keys to a vehicle that you can actually kill yourself or someone else with. The issue here is that you only want to do what YOU want to do. If it's hard and requires a lot of work ...you are not willing to do it. For example, your friend with Aspergers who drives --also takes advanced classes and is willing to do homework. You don't want to do homework because it interferes with your time to sit around on your computer doing... whatever. You don't willingly read like you're supposed to over the summer. You won't consistently get up on time for work training on your own. You are not showing us responsibility. Why should we help you learn how to drive when you don't show responsibility?"
His response? "What does responsibility have to do with it?"
Wow! Just ...Wow!
The friend that he is referring to has Aspergers. He is 16 and also already has a job. He had the initiative to go out and fill out applications and apply for work. Red complains about having to be in vocational training, yet he has not been willing to go out to get work applications and fill them out. I will help him if he initiates the task. We actually set this as a goal in his last Person Centered Planning meeting, and he has yet to move forward with it. Yet, it's all our fault that he doesn't have a job or is able to drive.
Furthermore, I ask him does he even know what it takes to get a drivers license?
"You guys just teach me. Or get me a drivers training teacher."
"Do you know the steps towards getting a license?"
"Who do you get a license from?"
After a few wrong answers he comes up with, "Um...the government."
"What government agency?"
"Um...the FBI?"
Oh sure! You're ready to drive.
I go on to tell him exactly what agency it is, and that he needs to do the research on what it takes to get a license in the state of Texas.
I ask him, "Have you asked any of your friends who drive what the steps are? What did they do to get their permit or license?"
"No."
Ah hah ...but it's all our fault that he doesn't drive yet.
I go on to talk about responsibility. Driving takes gas and insurance, even if we were to allow him to drive one of our cars. "You have to have some kind of job to help pay for that. You have yet to go and pick up a job application. Get a job. How are you going to drive if you have no money to pay for gas or any of the expenses that come along with driving?"
Our now 24 year-old son had to have a job and save money towards the purchase of a car before we helped him buy one. We may be a little more lenient with Red, but he will have to show a hell of a lot more responsibility and initiative than he does now. It was a just a few weeks ago when he was having a semi-meltdown and tried to take my keys so he could go "handle a situation" with a friend, I wrote about that here, "Rolling Down The Street". Yeah that was a real doozy!
To bring finality to this rant about how he is so far behind because of his Aspergers, I say the following:
"You shouldn't look at your Aspergers as a disability. It is just a DIFFERENT ABILITY. It doesn't stop you from doing anything! You just have to be willing to do the work. You may need a little extra time for processing. You may need a little help here or there, but if you develop a road map, set goals and follow the map --you can do anything you really want to do! I am willing to help you. I am not willing to do things for you. And I will not except the blame, for not getting things done. This is your life!"
Furthermore, I tell him to go to the internet to the Department of Public Safety and look up what it takes to get a drivers license in the State of Texas. As soon as he's ready to pick up that first job application, "because he doesn't need any stinkin' vocational training," just let me know. I will not initiate it. I will not do it for him.
"I will help you design your road map, but you are the one who has to follow it."
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago