It's hard to tell sometimes what is typical teenage behavior, what is depression, and what is Aspergers and anxiety. The behaviors are lumped together within my 16 year-old son. He is hormonal, he is a boy, he has autism, and depression, he is defiant, he is a teen. And to put it mildly...he is a handful of mixed nuts! He's kind of like the trail mix my husband buys. I'd like to pick out the M&M's, the sweet part, take a little of the peanuts, and raisins and throw out the rest of the crap!
My husband is so excited about seeing his dad. His dad drives all the way from Savannah, Georgia with his wife, to San Antonio, TX to spend the week in a time-share. We live 90 minutes from San Antonio. So the plan is to come down and spend a long weekend with them. Of course, his dad would like to see his son AND his grandsons. I mean he drove all this way...right??
Red is on the fence about going. His social anxiety has been a little high lately. He knows if he comes with us, he will have to be on his best behavior because quite frankly,"Big Grandad" doesn't take any crap. Big Grandad stands at around 6 foot 3 or 4. (which is much taller than the other grandads in our family). He is a lovely man...really. He is funny, and sweet, but he is also no-nonsense. His wife, is no shorty like me. I'm sure she stands around 5'ft 10 or 11. She also is no-nonsense.
Not to mention, if he comes he will have to be around us 24/7. He will be on our schedule....not his. There will be no sitting in front of a computer, hiding out in his room for hours on end. There will be restaurants, people, activities that may actually require getting of your butt! Who needs all that right? Also, you will have to refrain from constantly harassing your little brother because Granddad just might knock you in to next week. (Grandpa will not actually do this...but Red thinks he might...which is a good thing.)
Aspergers Dad says, "We are leaving at 11:30 a.m. If you are going...be ready! We are not waiting for you!" He is very clear and repeats this several times...stressing how important this is to him. Aspergers Dad is really anxious to see his father. He is also very thankful that his dad drove all this way to see us. He is not going to be late!
Red packs his clothes but then farts around, talking on the phone to a friend. Then he crawls back in bed and says, "I'm tired. I'm not going."
My mother is staying at home. If he doesn't go...he'll be "stuck with Nana" (as he says within her earshot by the way).
I warn him several times, "If you change your mind at the last minute, we will not wait for you. We are leaving on time."
We are of course running a little behind. It's 11:50 a.m. I say to him, "O.K. you've obviously made your decision. We will see you when we get back. I suggest you call some of our friends so that you have something to do while we're gone."
At 11:55 when we start loading up the car..."WAIT!!! I want to come!" Aspergers Dad completely ignores him and continues loading the car. "Please!!! Don't leave me!!!" he screams, but he is making no motions towards actually getting ready. He has not finished packing. Has not brushed his teeth or washed his face.
I say, "We'll give you 3 minutes."
"How about 5?"
He still is not moving. He's arguing.
"Dad needs to be more patient!" (Just like the school bus driver. The world needs to learn how to Wait for Me!)
Five minutes pass, he is still arguing. We get into the car. He runs outside, "Wait!!!! You can't leave me. This isn't fair!"
I am crushed on the inside. Aspegers Dad doesn't care. "He's 16 years old! He needs to learn. He'll be fine."
We drive away. Blue and I are upset with dad, but I kind of see his point. Of course, I am the old softy mom, which is why Red is so freakin' spoiled in the first place.
Red does not call us all day. I'm expecting him to call and say, "Mom...why did you leave me? Come back. I really want to come." He doesn't. Which says to me, he really didn't want to come. This was all just a bunch of drama. Instead, according to my mom, he plopped his butt on the couch and played the Playstation for 3 hours.
We are here in San Antonio. I am surrounded by 3 generations of my husband's genes. Blue is enjoying his Granddad. They both have a love of cars. Blue enjoys showing off his knowledge. Hubby is in heaven being with his dad.
This morning I sleep in. I get up and write...while the guys are upstairs in Grandad's suite.
So far...it's been a peaceful weekend.
p.s. Big Grandad is coming up to our house next weekend...so he will have a chance to see Red and Slim before he heads back to Georgia.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago