Red is on a quest to loose weight and be healthy. In fact, it's his new fixation. This is a good thing...a wonderful thing, except for the fact that he talks about more than actually doing it.
Here's the repetitive dialog:
"I really need to work out everyday. Do you think I should join the wrestling team or should I play football?" (There is really no intention to do either.)
"I can't eat any more cheeseburgers or fast food."
"You really need to take me to the Y. Walking isn't going to do any good. I need to run, but I can't do it at that track around the corner. I don't like to exercise in this neighborhood. I don't like to exercise outside. I'd rather exercise indoors...like at a gym."
"I need to eat more fruits and vegetables, but I just hate the way they taste. What is that disgusting juice that comes out of the vegetables anyway?"
"Do you think I can get a six pack. Well...I actually have a six pack...it's just hidden under here," he says holding on to his belly.
This is repeated over and over again about nine million times per day...and this is just a sample.
A few days pass where I don't have the time or the energy to take him to the gym. He finally breaks down and starts playing the Wii fit. He gets on and the game takes you through a fitness assessment. They measure your balance, weight and BMI. First the game tells you that you're overweight. Nice! Then a little avatar of your body comes up on the screen. It shows an overweight guy with a rather large torso area.
"I don't look like that! I'm not fat!" he says.
"Yes you are," says Blue. "It's a fact. The Wii doesn't lie," he continues very matter-of-factly.
Screaming insults are exchanged. Threats of bodily harm ensue. I have to scream just to be heard to get their attention. I then physically remove Blue from the room to tell him a few things about himself.
"You are being rude and mean to your brother."
"No I'm not. I'm trying to help him. What I am saying is a fact. He is fat."
"Not too long ago...you told me someone at school said that you were chubby. If I remember correctly, that really hurt your feelings didn't it?" He thinks about it but doesn't respond.
"Everyone in this house could stand to loose a few pounds. Your dad is overweight, but we don't walk around talking about it and pointing it out to him. Don't you think that would hurt his feelings if we did?" He gives me a sigh. Like...o.k. I get it.
I know for a fact that he understands this concept. I have heard him talking with his friends about a girl that rides their bus. She is non-verbal and I guess in some way, not attractive...different. He says to them, "She can't help the way she looks. She has a disability. We should be nice to her. We don't want to make her feel bad." Now the friends he is talking to also have autism. It is not their intention to be mean. They just don't have that automatic "self-edit" button that most people do. They say exactly what is on their minds when they see something that makes them feel uncomfortable. When most of us feel uncomfortable in some way, but we may think certain things that we wouldn't say ...out lout anyway. This is a skill that has to be taught to these guys. And they may have to be taught over and over again.
I can only hope that someday it will actually click!
Here's the repetitive dialog:
"I really need to work out everyday. Do you think I should join the wrestling team or should I play football?" (There is really no intention to do either.)
"I can't eat any more cheeseburgers or fast food."
"You really need to take me to the Y. Walking isn't going to do any good. I need to run, but I can't do it at that track around the corner. I don't like to exercise in this neighborhood. I don't like to exercise outside. I'd rather exercise indoors...like at a gym."
"I need to eat more fruits and vegetables, but I just hate the way they taste. What is that disgusting juice that comes out of the vegetables anyway?"
"Do you think I can get a six pack. Well...I actually have a six pack...it's just hidden under here," he says holding on to his belly.
This is repeated over and over again about nine million times per day...and this is just a sample.
A few days pass where I don't have the time or the energy to take him to the gym. He finally breaks down and starts playing the Wii fit. He gets on and the game takes you through a fitness assessment. They measure your balance, weight and BMI. First the game tells you that you're overweight. Nice! Then a little avatar of your body comes up on the screen. It shows an overweight guy with a rather large torso area.
"I don't look like that! I'm not fat!" he says.
"Yes you are," says Blue. "It's a fact. The Wii doesn't lie," he continues very matter-of-factly.
Screaming insults are exchanged. Threats of bodily harm ensue. I have to scream just to be heard to get their attention. I then physically remove Blue from the room to tell him a few things about himself.
"You are being rude and mean to your brother."
"No I'm not. I'm trying to help him. What I am saying is a fact. He is fat."
"Not too long ago...you told me someone at school said that you were chubby. If I remember correctly, that really hurt your feelings didn't it?" He thinks about it but doesn't respond.
"Everyone in this house could stand to loose a few pounds. Your dad is overweight, but we don't walk around talking about it and pointing it out to him. Don't you think that would hurt his feelings if we did?" He gives me a sigh. Like...o.k. I get it.
I know for a fact that he understands this concept. I have heard him talking with his friends about a girl that rides their bus. She is non-verbal and I guess in some way, not attractive...different. He says to them, "She can't help the way she looks. She has a disability. We should be nice to her. We don't want to make her feel bad." Now the friends he is talking to also have autism. It is not their intention to be mean. They just don't have that automatic "self-edit" button that most people do. They say exactly what is on their minds when they see something that makes them feel uncomfortable. When most of us feel uncomfortable in some way, but we may think certain things that we wouldn't say ...out lout anyway. This is a skill that has to be taught to these guys. And they may have to be taught over and over again.
I can only hope that someday it will actually click!
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago