As a mother, I always love my son...but I don't always like his behaviors. It is especially hard to feel the love when I go out of my way to do something nice for him and he's being painstakingly ungrateful.
For the past week or so, he's been doing a really good job of getting up and getting ready for school on time. He has also been making a strong effort to get along with his brother. I want to reward that so that hopefully we will see more of this positive behavior.
I take him to Best Buy to purchase a DVD that he has been wanting. While we are there of course, he sees something else that he wants. Not going to happen! Instead of being grateful for what he is getting, he's complaining about what he's not getting. He can't even see how inappropriate that is. He can not see that his lack of gratitude makes me more hesitant to reward him in the future. Not only that -it makes me not want to do anything that I don't have to do for him.
It's Spring Break. Why would I want to take him across the street, much less on a trip or somewhere where I have to spend extra money? The flip side of that coin is that I can't take Blue on a trip because of his brother's behavior. That really sucks.
Dad is out of town this week. Blue, Mom and me are sitting in the living room watching "The Bachelor" (pathetic I know...but I'm not the only one) when we see Dad's number show up on the caller ID. We have a cable phone so the caller ID shows up on the television screen. Red is talking on the phone with a friend. He sees no reason to click over even though his dad has called twice. He honestly believes that his trivial conversation with his friend is more important. When I tell him to hang up with his friend and click over he says, "But I'm talking!"
Have you lost your freakin mind? I think, but do not say. I do say, "Do you pay for this telephone? The man who is out of town working to pay for this phone and everything else in this house, is on the phone calling his family to say good night before he goes to sleep. Do you honestly believe that your conversation with your friend is more important than that?"
His answer, "Why are you being mean to my friend? He doesn't understand that and he's going to be mad."
Do I care if his friend is mad? I give less than a damn. His friend does not pay any bills in this house.
"I'm sorry if he doesn't understand. I'll be glad to explain it to him if you like."
At this point, he is tired. It's almost 10 p.m. He starts getting belligerent about me being mean to his friend. I tell him to take his tired ass to bed. He finally does. He's out like a light within 10 minutes.
I swear sometimes I want to throw this kid out the window. That would be a little hard since he weighs twice as much as I do. A girl can dream...
___________________________________

For the past week or so, he's been doing a really good job of getting up and getting ready for school on time. He has also been making a strong effort to get along with his brother. I want to reward that so that hopefully we will see more of this positive behavior.
I take him to Best Buy to purchase a DVD that he has been wanting. While we are there of course, he sees something else that he wants. Not going to happen! Instead of being grateful for what he is getting, he's complaining about what he's not getting. He can't even see how inappropriate that is. He can not see that his lack of gratitude makes me more hesitant to reward him in the future. Not only that -it makes me not want to do anything that I don't have to do for him.
It's Spring Break. Why would I want to take him across the street, much less on a trip or somewhere where I have to spend extra money? The flip side of that coin is that I can't take Blue on a trip because of his brother's behavior. That really sucks.
Dad is out of town this week. Blue, Mom and me are sitting in the living room watching "The Bachelor" (pathetic I know...but I'm not the only one) when we see Dad's number show up on the caller ID. We have a cable phone so the caller ID shows up on the television screen. Red is talking on the phone with a friend. He sees no reason to click over even though his dad has called twice. He honestly believes that his trivial conversation with his friend is more important. When I tell him to hang up with his friend and click over he says, "But I'm talking!"
Have you lost your freakin mind? I think, but do not say. I do say, "Do you pay for this telephone? The man who is out of town working to pay for this phone and everything else in this house, is on the phone calling his family to say good night before he goes to sleep. Do you honestly believe that your conversation with your friend is more important than that?"
His answer, "Why are you being mean to my friend? He doesn't understand that and he's going to be mad."
Do I care if his friend is mad? I give less than a damn. His friend does not pay any bills in this house.
"I'm sorry if he doesn't understand. I'll be glad to explain it to him if you like."
At this point, he is tired. It's almost 10 p.m. He starts getting belligerent about me being mean to his friend. I tell him to take his tired ass to bed. He finally does. He's out like a light within 10 minutes.
I swear sometimes I want to throw this kid out the window. That would be a little hard since he weighs twice as much as I do. A girl can dream...
___________________________________

Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago