Given Up -Linkin Park
(One of Red's favorite songs by his favorite band)
Stuck in my head again
Feels like I'll never leave this place
There's no escape
I'm my own worst enemy
I've given up
I'm sick of feeling
Is there nothing you can say
Take this all away
I'm suffocating
Tell me what the f- is wrong with me!
I don't know what to take
Thought I was focused but I'm scared
I'm not prepared
I hyperventilate
Looking for help somehow somewhere
And no one cares
I'm my own worst enemy
On Thursday morning we had a therapy appointment with the Pediatric Psychiatrist. We see her about once a month to evaluate medications, to see how they are working, or not working, to determine if we need to make tweaks or adjustments.
He doesn't particularly care for this doctor because she tells him the naked truth. The truth can be painful. She thinks that his behavior especially with me, borders on harassment and abuse. She once told him if he didn't make some changes that she may have to take him out of this house for a while. He definitely did not want to hear that.
He's sitting there in her office, his head in his hands, looking down at the ground, frowning -like he's being tortured. I tell her about the issues we've been having lately. The fighting every morning to get him out of bed and to school. He tells her how miserable he is at school because he doesn't have any friends. He says that he's so tired, that he's nearly falling asleep in classes. He goes on to say that his fatigue is the reason he can't get up in the morning.
We call him on the fact that he got up easily during the break. At the same time, she realizes that during school he is much more stressed. The bottom line is that she increased his Focalin by 10 mg to help with his cognition during the school day. I would say that the session was somewhat productive not fun, arduous -but worthwhile.
I gave him a little break after the appointment. I drop him off at Best Buy -while I run into Nordstrom Rack to look at shoes for a few minutes. Afterward, we grab a couple of burgers for lunch. Finally, I take him to get a haircut. The day before, he came in home from school angry -starring in the mirror.
"I'm ugly! Look at my eyes! Look at my hair! I need a haircut. That's why girls don't like me -that and the fact that all the girls at my school are white and I'm black. They don't like me because I'm black!"
"Son -no one in our family is ugly. You are very attractive. Try smiling and see how your eyes light up and you look so much better," I say as he's staring in the mirror.
"I can't smile."
He does look ten times better with his haircut and his face shaved. He grows these soft little baby hairs on his face. When they are shaved it really does help light up his face. When he stands up straight and tall and holds his head up. He really is quite handsome.
I tell him, "Honey, you have to love yourself before you can expect anyone else to love you. You have to believe that you're handsome for other people to feel that." Again, I remind him that all of the men in our family are black, handsome and smart. He is no different. What's more -they are loved by women and his time will come. "When you mature and start loving yourself...you will find the right girl."
I may as well be speaking French. He doesn't get it. He doesn't believe it. The problem couldn't be something that he could fix. It has to be everyone else's problem.
When we arrive at school it is his lunch time. I encourage him to go up to his social skills classroom since he has already eaten lunch. He opts to go to the cafeteria to "hang out" instead. He did stand with his head erect and took the frown off of his face -no smile, but no frown.
I am worried about him wandering aimlessly through the cafeteria with no special education staff or student mentors on alert. Instinctively, I decide to skulk around behind him to observe his behavior. I want to see for myself if he is actually having a good time at school, while making me think that he is miserable. I also wondered if he was acting "weird" and freaking people out.
From across the room I watch. He paces back and forth -never sitting down. He exchanges a few words with someone sitting at a table. I couldn't see who. He paces around some more -looking completely lost and out of place. It broke my heart.
I am instantly taken back to a high school experience of my own. After leaving middle school, where I had a wonderful circle of friends and knew just about everyone, I went into a high school where I hardly knew anyone. I walked around feeling lost, lonely and out of place. The few people I knew, I could never find them. I just stood around, trying not to look conspicuous -praying that others didn't know how lost and pathetic I was feeling. I came home everyday and cried and begged my mother to transfer me to another school. A week later -I enrolled at another high school that my best friend attended. I didn't know many people, but I at least I had one person in my corner.
The pain that Red has been feeling suddenly hit me like a ton of bricks. He is just as lost as I was for that one week -only it keeps on going, and going, like the Energizer bunny. Not only that -but he has no clue what to do about it. He is trying desperately to cling to a friendship with a girl that he has known since kindergarten. The problem is -she has a boyfriend and they don't want to be bothered with a third wheel, especially a third wheel who is socially clueless.
There are other boys in his social skills class who reach out to him, but for whatever reason he rejects that friendship. The only person he really hangs with -is another boy, who also has special needs and is even more socially clueless than he is. However -he knew this boy last year in middle school, so there is a sense of familiarity -a comfort zone. He hangs out with him, although deep inside he's feeling like this isn't good enough. Why can't I walk the hallways with a group of friends laughing? Why can't I have a special girl who likes me just the way I am?
Here enlies the anger that he comes home with everyday. This is why he HATES going to school. In the hallways he sees kids walking in clumps, talking and laughing -being silly while he walks alone. In corners he sees couples hugging and sitting on each others laps, kissing and smiling at each other. He wants it too. He wants it desperately -but he has NO IDEA how to go about getting it.
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Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago