Friday morning was like every other school morning. There was yelling and screaming involved and by the time we finally made it to the high-school campus, I was physically and emotionally spent. I walk inside and ask to speak with the school Psychologist (Ms. W- lets call her). I wanted to share with her what I had observed the day before in the cafeteria when I skulked around like a private detective, watching my son from across the room.
"I watched him pacing back and forth looking totally lost. He spoke to some peers and apparently they blew him off. He just looked -disconnected, lonely and out of place. It broke my heart to watch."
As I sat in her office, I suddenly found myself in tears. The tears were a combination of stress and exhaustion from the week with that I had been through him. I try to stay pretty calm and centered, but it weighs on me heavily. At the same time, I was literally feeling the anguish that he is going through as if it were my own.
Ms. W- empathized with the pain that he must be feeling and that I feel as his mother. She assures me that he does have alternatives to going down to the cafeteria, but for whatever reason, he chooses not to go with those alternatives the majority of the time. Apparently, there are a few students who regularly ask him to hang out at lunch and he blows them off in order to go to hang out with the "normal" kids. He is fixated on a friend whom he has known for most of his life, even though she doesn't really want to be bothered. He also has a mentor group that he can sit with at lunch. He usually doesn't.
Mrs. W also reminds me of how far he has come in a years time. "He is going to all regular classes every day and once education starts -he is fully engaged," she says. When he is in a regular ed. classroom, there is no frowning, no acting out. He is doing his work and even participates in group activities. She suggests that I peek in on him in one of his classes to observe that he is not as miserable as he says.
"The hallways, and lunchtime are difficult for him, but he is actively participating in his education in the classroom and doing well," she said.
I manage to dry my tears. I remind myself that I can only do so much for him and the same goes for the professionals that work with him. We can open doors and encourage him to walk through to the other side, but he has to do the leg work. We can't pick him up and carry him through. They can teach him social skills...but he has to decide weather or not to use them.
What's that saying -you can lead a horse to water... No -I've got a better one -you can take a girl to a bar but she can still order a Coke and be a total party pooper!
He complains about his life, while refusing to do the work involved to change it. A part of it is fear. We can attribute some of it to delays in his thought process, his tendency to get stuck. So as the adults and professionals in his life we have just keep trying -keep repeating and hope that eventually he will learn some of what we are trying to teach. After he learns it, we have to pray that he will actually use the skills.
I finally found a social skills high-school group (outside of school) that he will start attending in a couple of weeks. I am hopeful that it will help him. I will continue to monitor what is being done at school (social skill-wise) and try to reinforce it at home. I asked Ms. W -to continue to try to redirect him during his lunch period, to help him to find other things to do instead of putting himself through the agony of the cafeteria.
I did peek in on him in class before I left. He was working. There was no frown, no sadness -just a normal boy trying his best to be just that.
READERS...I love your feedback, comments, advice, sympathy, condolences -whatever! I also love your votes! Please Take a second to click below. Thank YOU!!!

Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago