At 4 a.m. I hear a loud determined knock at my bedroom door. It's Blue. "I need a breathing treatment," he says. The weather has changed suddenly. It's the coldest night we've had so far this season. His asthma has obviously flared up. "I'm freezing," he adds.
I get up, throw on my pajama pants to go and find his inhaler. I give him a couple of puffs.
"I'm sorry for disturbing you," he says sincerely.
"Don't worry about it," I respond -so pleased that he is thinking of me and how I may feel being awakened in the middle of the night.
At 6 a.m. there is another loud knock at my door. Before I can answer, Red burst through the door and pokes me.
"Did I really fall asleep at 7 o'clock?" he asks.
Why does that matter while I am getting my last 45 minutes of sleep? He wants to know something. He wants to know it now. Could that question wait until I actually get up? Sure -but there is no thought of anyone other than himself.
"I don't know what time you fell asleep. It really doesn't matter right now. Why are you waking me up?"
"I just want to know what time I went to sleep."
Cut to breakfast. It's a cold morning, I want to make a hot breakfast for both boys. Blue comes down to eat first. He eats his waffles and I make him an egg over easy.
"Thank you for breakfast mom," he says.
"You are so welcome son," I respond.
Red fell asleep last night without eating a real dinner. I prepared hot waffles and scrambled eggs for him as well. I wanted him to have a solid breakfast before he took his medicine and went out into the cold morning.
His response: "I don't want those waffles. I want cereal."
I made this boy hot waffles and eggs, which he likes. Does he show any appreciation? NO! There is no thank you. It just doesn't occur to him, unless he is prompted. He says exactly what's on his mind despite how it comes across or how it makes someone feel.
He ate the waffles and eggs and of course was too full for any yucky old cereal. He enjoyed it, but didn't say so.
This goes to show us all just how autism (more specifically Aspergers) can show up differently in each individual. Just look at the contrast between these two brothers.
Some people with Aspergers can come across as real jerks. It's not intentional. It's just how they think. Can they be taught to think differently, to say please and thank you? Sure...will they actually mean it? Maybe...maybe not. I wish my son good luck getting and maintaining a relationship with a wife someday if he doesn't learn how to be appreciative. Of course, I'm just his mother, the one who gave birth to him and spends every waking moment thinking about his well being. Why do I deserve any gratitude?
Thankfully, I love these two brothers unconditionally -even if one of them makes me want to slap him into next week!
Not the expert mom with all the answers...the mom who can't stop looking for them.
Thursday, November 4, 2010
Tale of Two Brothers
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago