You think you know until you find out you that you don't. I reminded him last night to take a shower at 7 p.m. When he crawled into bed at 9:30...he had not taken it. "I'm just so tired he said." Fine. I'm not about to argue about this. He promised to take it in the morning.
7 a.m. I wake him up.
7:30 -he comes downstairs unshowered. He falls on the floor. "Something's wrong with me. I'm just so tired." Mind you...every other day this week he has gotten up at 6:45 a.m -on his own. He got on his computer. Suddenly today -he's too tired (a load of bull).
7:35 -he goes upstairs to shower.
8:00 -I go upstairs...he's still in the shower. Who knows what he was doing for the past 25 minutes. He says he just got in.
8:05 -I take Blue to middle school
8:15 -I return he is sitting on the floor in the bathroom, clipping his nails.
I'm pissed! I try to keep my cool. I remind him of what he needs to do to get the rewards that he wants.
8:25 -he comes down to eat breakfast. He complains that there are only 3 waffles instead of 4 -loudly!
On his way up the stairs to brush his teeth -he says, "I'm not going to school." I remind him that he is going. It's the law. If I need to -I will call the campus and have the campus officer come and get him. My voice remains calm. He screams, "NOOO!"
8:50 -we finally leave for school. I don't say one word in the car. He says, "Mom -I want the blu-ray player," over and over again. I remain silent.
9:00 a..m. We arrive at school. The tardy bell rang at 8:45 a.m. I promptly get out of the car to go to the attendance office and to remove the audience for the rant that usually takes place at this point. He's a bit shocked that I got out of the car. He has no choice but to follow me. He signs in at the attendance office. I watch. I call upstairs to his tracking teacher to let her know that he is in the building. I inform her of the reason that he is late. He follows me as I walk towards the door. "Don't leave," he says.
"Good-bye son. Have a good day. You will be riding the bus home," I say as I head out the door.
He stands there looking at me, dumbfounded as I get in the car.
I drive home wondering asking myself...what am I doing wrong? Why does he behave this way for me? Is he responding to the therapy session yesterday? We talked so calmly about what he needs to do to get the things that he wants. He needs to cooperate, take care of his business, talk to us respectfully. He said that he would. Then he gets up and does the total opposite. Should I give him the new medication? Am I crazy not to? Something about it doesn't feel right. I'm exhausted and the day has just begun.
The blu-ray player should arrive today. He has just sealed his fate. It will not be installed. He won't see it until we see some changes.
I drive back home. I pull into the driveway and sit. I turn off the car and sit allowing the sun to massage my body through the car window. I have so much to do. I have so many dreams. I have not met my goals this week or completed my to do list.
Will I ever be more than just his mom?
Not the expert mom with all the answers...the mom who can't stop looking for them.
Thursday, October 28, 2010
You Think You Know...
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago