I go to the high school today to pick my son up for an appointment. He happened to be in the middle of an "awesome" social skills session with the school psychologist. She came and spoke to me to tell me how great he is doing at school. His teachers think he's doing great. He's passing all of his classes. They aren't seeing any of the negative behaviors that we saw last year in middle school. Wow!
So I'm happy that he's doing so well there. I just wonder why I'm seeing such a stark contrast here at home. I mean as soon as he sees me...he totally changes his demeanor and starts huffing and puffing, positioning himself to be angry and sad all for my benefit. His facial expression literally changed right before my eyes as we walked out of the school doors towards the car for his doctor's appointment.
"Why do you change like that as soon as you see me?" I ask.
"That's because you're mean to me!"
What do you mean I'm mean to you? I just saw you and said hello and you totally changed into H.R. Puffinstuff. (Am I dating myself here?)
"You're right Mom. I'm sorry. It's just that you guys won't give me the things that I want...especially Dad."
We make it to the doctor and I give her the rundown on the past few weeks -the atrocious behavior at home verses how "awesome" he is doing at school. What does she do? She tells him that he is being mentally abusive and disrespectful to us and that he needs to get a job to get all of the things that he wants! She also told him if he doesn't get his sh*# together (I'm embellishing here) she has the option to recommend that he be taken out of our home because he is basically being mentally abusive to us. Basically...she scared the sh*# out of him. Do I agree with this tactic? No...not really. Does he need a reality check? Yes...definitely. Did she really mean what she said? I don't know. She told him that she is giving him a chance to treat his parents better. Does he have the capacity to do this? I don't know.
This doctor is African. Other cultures do not put up with a lot of the crap that we "Americans" do. She is a mental health professional, a Psychiatrist. Does she really understand how to approach Aspergers specifically? Well...today, she didn't sound like any book I've ever read or any therapist I've ever been to.
At the same time, I am dealing with a teenager. The typical teenager gives his parents hell on a stick! My atypical teenager was "Mr. Personality" at school and for the rest of the world, and was pretty crappy to us most of the time. He would disagree if he reads this...but it's true. I lived it. I suppose a part of this behavior is a right of passage. It's just intensified times to the tenth power with a teen with Aspergers.
She also recommended yet another medication...Intuniv, which is primarily used for ADHD for impulsive behaviors. I believe it is a non-stimulant. Ugh!! Another freaking medication. I just don't know if I'm up for it. After giving it some thought on the way home, I remembered that I forgot to tell her that he's been sleeping a lot. Will this medication make him more sleepy?
Suddenly I had an 'ah hah' moment...he's doing great at school, one because "we" (his parents) aren't there. Since when do parents deserve any respect? Also, his day is structured with plenty of things to do. He is working really hard to appear typical to his peers. He doesn't have to do that here. He can relax and be his grouchy self. There is no one to impress here!
Lately, he has lost interest in the roller coaster design game (Roller Coaster Tycoon 3) that he used to play for hours. HE's Bored! Boredom drives him to looking on the internet for expensive things to that he thinks will give him something to do. It also leads him to annoy his brother and the dog, and anyone else in earshot.
What he really needs...is more inexpensive things to do. We need to keep him busy...or at least busier. Will that help some of the acting out? I think it will. The trick will be finding things that he is willing to do without a fight. (Good luck there!) These things also have to not involve me --at least not all the time.
The other day I thought about donating him to a church. Can't I just drop him off and they could keep him all day on Sunday? They can return him just in time for bed.
So sitting here writing this...I am talking myself out of trying this new medication. Instead I should try some more creative ways of keeping this boy out of my hair...which is turning more gray by the day.
Why isn't there a magic answer?
Not the expert mom with all the answers...the mom who can't stop looking for them.
Wednesday, October 27, 2010
The Magic Answer
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago