Last night I received your demanding e-mail.
"Unblock my number or never talk to me again."
First of all, you can not threaten me into talking to you.
Secondly, we have an agreement. We talk once a week.
It’s been going great until…
-You blew past boundaries with your dad by calling repetitively during his work hours.
-You knocked over boundaries with your brother, Blue, killing the "Do Not Disturb" on his phone while he was trying to sleep.
On Sunday after our pleasant conversation, one of the hundreds of pep talks that I’ve given you about autism and the superpowers it brings. The ability to hyper-focus on what you really want to focus on. The ability to self-teach, as you have done with roller coaster design software, professional video editing, changing your diet, meal prepping, and exercising in order to lose over 100 pounds. The ability to learn in unique ways, and see the world differently than most people.
After we talked you began messaging me, asking questions about one subject, and then another, and then another...problem. I was on my way to have dinner. I refused to continue the exchange after several messages.
After a warning, “the block" went back on my phone until the next time we are scheduled to talk again.
I can't stay angry with you. That's not how I'm made.
I know that autism, mental illness, and self-loathing are the culprits underneath these behaviors.
I can and must, however, maintain my boundaries for the sake of my own mental health.
It is tenuous these days.
There have been too many years of this.
I have allowed you to run all over my boundaries to the point where I became depressed and full of anxiety.
I reached a point of almost not functioning.
I can not do that anymore.
I can not continue this trajectory.
I can not be the answer to all problems.
The plethora of resources that you have in our extended family must be used unless, and until you get to a point where you can actually be the independent, self-reliant man that I know you can be.
Saying, “No. Not anymore,” is one of the most difficult things I have ever had to do. And when it comes to you, I have done some very difficult things.
It takes energy and strength to say no when your own heart is bleeding.
Deep down I know that someday I will not be here.
I can not be the solver of all problems.
I will not always be your soft place to fall.
You will have to seek help from other sources or you will fall...hard.
The first source you need is yourself.
You are the key to your future.
You will come out of this stronger.
You will have the strength to fix things yourself.
I love you.
And yes. I am sure you can do this.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago