You think I’m changing?
You’re right.
I am changing every.single.day.
Shouldn’t I be?
Should you be?
I feel sorry for people who exclaim things like, “I will never change! I am who I am.”
If you’re not changing you’re not growing.
Personally, I hope to never stop growing.
I will never stop seeking knowledge and doing the work on myself; looking at myself critically; forgiving myself for not being perfect; trying to have balance in my life.
I’ve been working on myself for a few years. You know...after forgetting to work on me while raising our very high maintenance children. Raising three children (two who are autistic) is pretty much all-encompassing. Self-love and care are now a top priority for me.
Maintaining a 25-year marriage isn't a walk in the park either. I still find it amazing that we made it with no one being harmed physically in the process.
I saw to it that our children received all kinds of therapy during those years. Therapy for them was like another career for me. Ascertaining therapies, researching medications, putting together educational accommodations and plans to make sure their needs were met.
When they were teenagers, taking care of their mental health and basically, trying to keep them alive was a huge part of my invisible job.
Now, the work I am doing on myself is starting to pay off.
Remember when I was depressed and anxious all of the time?
I was walking around here, tired, angry and resentful, feeling very much unappreciated.
I was overwhelmed and hopeless.
Talk about being trapped? Trapped is an accurate description for feeling like there is no way out. It felt like there was no way out of all of the responsibility for my children. They became teenagers and then young adults who still have needs. Added to that was the responsibility of caring for my mother whose needs seemed to grow with time.
My psychiatrist and therapist called what I have "Caregiver Burnout." It’s really a thing. It’s a thing that happens when you ignore your own needs in order to take care of other people. When you’re trying your best to make other unhappy people, happy. It feels like an impossible job because it is. What made me think I could make them happy?
When it’s your children who are suffering from depression and anxiety, a mother will give anything for them to have an ounce of happiness.
I admit that I got totally caught up in this work.
I had no balance.
I was all in...over my head.
Drowning.
That's okay. Thankfully, I lived to forgive myself.
You know how it is when you’ve been working on a job for too many years. You’re not getting any raises or bonuses for a job well done. You don’t receive any recognition. You find your self working all of the time. You can’t catch a break.
Imagine that you actually live and work at home with your employers. Every time they see your face they ask you to do something for them. You have your “to-do” list all set in your head and someone else is literally adding things to your list continually.
These people you work for constantly attempt to make you feel responsible for everything that goes wrong, including how they are feeling. They behave as if you are their savior only without the glory. While you’re trying to save them, they are actually sabotaging themselves. You are losing yourself. Rinse and repeat for years and years.
After a while, you might want to run --to bolt the hell out of there without looking back; no forwarding address.
I have not been able to quit this job. There is no total escape. What I have done though is to create boundaries between myself and my little non-paying, energy-sucking, employers.
I’m doing my best to maintain these boundaries, which actually takes a great deal of energy within itself.
I have created this little world for myself with pockets of peace. I put some space in-between me and my mother. We are both better for it.
Sometimes, this new world means spending time alone, in quiet solitude, writing, doing yoga, eating sushi and drinking wine. It may even mean occasionally traveling by myself, creating the ultimate boundary.
One of the other things that my therapist says that I have is P.T.S.D. from all of the years of stress and explosions that went off in our house. The loud fights, the constant noise, the aggressiveness, the threats of self-harm, the calls from school, the calls to 911, the mental health hospitalizations. Not to mention playing referee between all of the males in this house, in hopes to keep more explosions at bay.
Who in their right mind would want to keep living and working in an environment like this?
I survived it all. I still constantly push away feelings of sadness and fear for these children of mine, who are now grown, men. They are still behind in their development. I ache for the dreams I still have for them. I just want them to have the fundamental things --love, basic happiness, comfort, friends, purpose, independence. I can not provide any of these things for them. At this point, it's difficult to guide them. I can only try to connect them to the resources and tools that they need. They have to drive their lives forward.
I’m not depressed anymore.
Am I cured?
Am I where I want to be in this growth cycle?
Nope!
I will, however, keep working to maintain peace and boundaries in my life. Eventually, I will create a world in which I can be happy more than I am sad. I will not allow others to dictate my moods and control my energy. I will protect myself from things I don’t want, and procure more of the things I do.
I had almost completely given myself away.
I’m back.
Not only am I back. I am new.
I am determined.
I am the guardian of my peace and happiness.
I will work like a mother f*#%er to protect it.
Namaste
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago