I’ve changed. The experience of motherhood, marriage and moving away from Los Angeles, where I grew up has made me a completely.different.person. There are subtle traces of the girl I once was, but they aren’t clearly visible.
I was the most social person you could ever meet. My phone was always ringing with an invitation for lunch, dinner or some other social gathering.
I had friends from the neighborhood I grew up in, friends from school, friends through mutual friends and various places that I worked. I’m talking good, quality, friends who stuck with me through the different stages of life. I am blessed to say, most of them are still with me even if it’s from a distance. When we see each other, it’s like no time has passed. I treasure my friends, each of them adds a unique experience to my life.
I still enjoy being social, jut not that often. I am selective with my time and who I choose to spend it with. Let’s face it, I don’t have a hell of a lot of social time available. My local friends are sparse, few and far between with the closest of them all —miles away in Houston.
More than anyone’s company these days, I enjoy my own. I love the quiet, my own thoughts, doing exactly what I want to do, not compromising with anyone. That’s because my every day is one big compromise after another.
I spend my days having conversations that I don’t necessarily want to have. I try to minimize the number of conversations with Kendal. Our goal is one phone call a day, but sometimes he comes over …and it’s on. Talk, talk, talk rinse and repeat. And I mean repeat the same mindless words over and over again. He worries out loud and likes my undivided attention while doing so.
Blue, my 18-year-old son, likes to process all social situations with me. It doesn't matter what else I'm doing. He wants my opinion. That is until my opinion doesn’t really agree with his or until things blow up in his life. Then I can be properly blamed for everything that goes wrong. He says to me everything he doesn’t get to say to his friends because then they wouldn’t like him anymore. The problem with that, is sometimes I end up not liking him. I love him always, but like…not so much when he's exploding on me.
No matter how matter-of-factly I think, this is not about me. He’s upset and can’t manage his anger. This is a part of autism. Humanly, it’s directed towards me and it feels like it’s about me. I end up absorbing a lot of negative energy and it’s draining.
I love my husband and sometimes, I enjoy talking to him, especially when we are alone. He is the best part of my life. I love him unconditionally. But in the day to day, I don’t always want to talk. I’m spent. And he can be like the kids with over-communication.
Maybe being a writer, makes me prone to want to communicate that way. In order to write, you have to spend a lot of quiet time with your thoughts. I love when I can work through my feelings and say what I want to say without interruption and quite frankly, without feedback and opinions.
Maybe being a writer, makes me prone to want to communicate that way. In order to write, you have to spend a lot of quiet time with your thoughts. I love when I can work through my feelings and say what I want to say without interruption and quite frankly, without feedback and opinions.
And then there is my mother —her feelings are hurt when I don’t feel like talking to her. I love her and enjoy her company (mostly) but you know how mothers can be with all of that lovely unsolicited advice. Now that her mind seems to be doing well, she’s always adding to my “to-do list.” *Insert eye-roll here. Honestly, most of the time it's not about her that I don’t feel like talking. It’s about my head being full of thoughts, worries and unsolved problems. Sometimes, I need silence just to process everything that’s going on in my life.
The adults in my house say that I’m not very nice. I’m grumpy -always in a mood.
You're damn right I'm grumpy! I have every right to be. Try being all things to four other people, two of whom have exceptionally high needs, all the time, and see how grumpy YOU are!
Last night was a family dinner to celebrate Kendal’s 22nd birthday. I honestly did not want to go. It was my husband's idea and at first, I thought they were going to have a guy's night out. Then he invited my mom so I felt obligated to do the right thing as a mother and go. *another eye-roll here. To be honest, I didn't particularly want to celebrate his birthday since he barely acknowledges mine or my mother's birthday. He knows better than that. I always asked for a hand-written note or a handmade card when he was growing up. It's not about the gift, but the acknowledgment. I'm a grown-up so off we went to a family birthday dinner.
Sadly, our quirky autism family does better with one on one situations than we do as a whole unit. It's like, each ingredient of the casserole is great by itself or perhaps combined with one other ingredient, but when you put them all together in a dish, it's a disaster.
I didn’t want to listen to them all talk —at once. It’s not fun —everyone competing for the mic, the debating, the constant correction, the talking to Kendal with condescension (my mom and my husband). I try really hard not to talk to him that way. When I talk to him, I try my best to treat him with dignity. The key word is —try. I’m not always successful because he can wear through my last nerve. My few little patience are shot. However, I think I am the best listener in his life, so he talks to me the most.
It may not be right, but I carried him in my uterus and I spend more time and energy with him than anyone else on earth. I've earned the right to lose my patience with him. I just hate when other people do it. It may not be politically correct for me to feel this way about his father and my own mother. It may not be fair, but it is what it is. I like what I like, and I don't like what I don't like.
Sadly, our quirky autism family does better with one on one situations than we do as a whole unit. It's like, each ingredient of the casserole is great by itself or perhaps combined with one other ingredient, but when you put them all together in a dish, it's a disaster.
I didn’t want to listen to them all talk —at once. It’s not fun —everyone competing for the mic, the debating, the constant correction, the talking to Kendal with condescension (my mom and my husband). I try really hard not to talk to him that way. When I talk to him, I try my best to treat him with dignity. The key word is —try. I’m not always successful because he can wear through my last nerve. My few little patience are shot. However, I think I am the best listener in his life, so he talks to me the most.
It may not be right, but I carried him in my uterus and I spend more time and energy with him than anyone else on earth. I've earned the right to lose my patience with him. I just hate when other people do it. It may not be politically correct for me to feel this way about his father and my own mother. It may not be fair, but it is what it is. I like what I like, and I don't like what I don't like.
Anyways, I say all of that to say, that the girl who was once the most social person you could meet —who was the one out of my family of five siblings, who was the glue that held them all together, who made sure that we got together frequently for family dinners and parties now, can hardly stomach having dinner with my own immediate family. How is this my reality?
Yes. I've changed. I'm not as social as I once was.
It's a difficult thing to admit. A simple dinner with my immediate family makes me want to pull my own hair out. But hey, these are my confessions...
I did survive dinner although I was thoroughly irritated by my husband by the end of the night. I won't get into the details of that. Insert eye-roll here.
I celebrate that my son has made it through 22 years of life without being physically harmed by his mother.
I still love my husband and I still have my sense of humor.
I celebrate that my son has made it through 22 years of life without being physically harmed by his mother.
I still love my husband and I still have my sense of humor.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago