A week ago I was so angry with my husband.
I felt like I was just done.
I can’t do this anymore.
I’m tired of this life.
I’m tired of living with the choices that I made 25 years ago when was young and too dumb to know anything about who I am, or who I wanted to be.
Turns out marriage isn't anything like what you see in the movies. In fact the other day, I was watching one where the heroin passed up a chance to travel around the world with a very rich, handsome, lover. She wanted to wait for real love --the one who she would marry, and live happily-ever-after. I wanted to scream at the television, "Girl! you better get on that jet! It ain't all it's cracked up to be!"
We got married when I was 28 years-old.
What the hell did I know about life, motherhood and being a wife?
I was a self-employed, entrepreneur who saw no limits in this world.
I thought that I was tired of the party life.
I was tired of the dating game.
Apparently, I was tired of being independent with the freedom to travel wherever the hell, I wanted to, whenever I wanted to. *rolls eyes at my younger self
Big.Dummy!
Cut to today, and I am a completely.different.person.
Next month I will be fifty-two years old.
On June 4th of this year, we will celebrate 23 years of marriage.
Together we have raised three sons. The eldest is 28, (my step-son). We also have a very high maintenance 21-year-old with autism and a cocktail of other diagnoses. And finally, we have my 18- year-old know-it-all who also has high-functioning autism that comes along with a shit ton of anxiety which makes him really fun to live with.
I have pretty much made these children the focal point of my life for the last …forever.
And frankly, and I am just plain tired of them …all of them.
I know you’re not supposed to say that out loud. You’re probably not supposed to think it either, but I do.
I’m surrounded by all of these men and they are so …for lack of a better word, male. Sometimes I look and them and wonder, who they are and how the hell did I end up here?
So the nest is almost empty. I thought I was getting close to being done. Who am I kidding? In my head, I am done. This shit is over! O.V.E.R. The whole marriage, and motherhood thing ...I am ready to check out! Sayanara! Arrivederci! I'm out!
Not only am I burnt out, I am burnt to a crisp!
But then I wake up and I realize, this job is NEVER really over.
Raising two boys with autism has been like raising six children.
I have the right to be tired.
I thought raising teenagers was hard. Well, it is!
The transition to adulthood is just a whole new mixed bag of nuts. The teenage, silly high-school problems are over.
Now the real life decisions have to be made.
Who are they going to be in this world?
Will he be able to finish college?
Will he at least get some kind of a post-secondary education so that he can be independent?
When will they conquer the skills of daily living?
When will they ever be able to manage their everyday lives without help?
They are both so different, with different strengths and weaknesses.
When will the dust settle?
The ups are higher. The downs are lower and have heavier consequences.
They are boys. It takes the average boy a little extra to grow up. Add anxiety, mood disorder and autism to the mix and you can multiply that extra by ten.
And then, scratch the record!
Now, I’m in the throes of taking care of my mother who at 77 years-of-age, is beginning to lose her shit a little more each day. I have yet another puzzle to piece together.
I am scared.
I am overwhelmed and frankly, a little pissed off that most of this is on me.
She lives in my house and my brother is thousands of miles away. It doesn’t even matter if she didn’t live here.
I am her person.
I am everybody’s freakin' person!
I am the anchor that keeps them all from floating wildly across the ocean
Only I’m drowning in the process.
So for a week I only spoke to my husband when it was necessary. I was angry even though he hadn’t done anything particularly egregious. I mean he’s a man. He says stupid things when he’s stressed. We think differently —so very, very, differently. He is practical to my artistic, go-with-the-flow. He is the no, to my every yes.
I don’t know how we haven’t killed each other already.
He takes my sarcasm and humor very personally, which subliminally makes me even more sarcastic. Our relationship is a real piece of work -or is it a work of art?
I’m not sure.
He gets on my very last nerve with his incessant talking and I get on his nerves with my jokes. But basically, he is good. He loves me and wants nothing for the best for me. He wants me to be happy. He is loving and faithful. We have never had any major marital issues.
I’m sure he’s frustrated when I am not happy. He wants to be my hero. Only, in this case, he’s in over his head. He can’t do it. He can not be my hero because he is not responsible for my happiness.
My happiness belongs to me.
I have to be my own hero.
So yesterday, the sun came out. It had been cloudy and cold for a number of days and apparently, so was my heart. As the sun burned away the funky fog and clouds that had been hovering over me. Suddenly, I could see.
We had a conversation, where I thought I would tell him all of the things he had been doing wrong. But in the course of the conversation (or should I say, in the course of him talking and me listening) I realized that he hasn't been doing anything any differently than he has always done.
It is me that I have been unhappy with.
I am unhappy with what I’ve allowed to happen to my life. I have allowed a big part of myself to completely disappear behind the cloud of my obligations and duties to this family.
It is was through the darkness —depression and that week long funk, that I was able to find the necessity to look for the light —to figure out that I actually need to be my own light. No one can do it for me, and no one can take it away from me.
I can not tell you today exactly what I’m going to do to find the parts of me that have been erased, but at least I know now that a part of me is missing.
I have to do some exploring —some soul searching. It’s up to me, and no one but me, to get out the road map to find the peace and the freedom that I need to make myself whole again despite my situation and my obligation to my family.
The biggest obligation I have is to myself.
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I think I'll keep him. |
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago