A year ago, if you told me that I would voluntarily take Red to a movie, just the two of us, I would have laughed in your face. I imagine it would be hard for most mothers to admit publicly that they do not enjoy the company of their own child. However, a year ago, I did not..at.all. In fact, I tried to avoid him whenever possible, which wasn’t often enough. At times it felt like he was purposefully trying to drive me crazy. He was borderline abusive to me (mentally). That was because he was going crazy and he wanted company.
Cut to this Sunday afternoon, I texted him and asked him would he like to go see “Finding Dory” with me. I was tentatively expecting a rejection. I knew he wanted to see me as he usually does on Sunday, but I thought the idea of an animated film which was my suggestion, would be met with his usual opposition. Surprisingly, he said, “Sure.”
I picked him up from his house. We went to the mall to get a new phone case for his iPhone. We also looked at a few things for me, as he very loudly shared his philosophy about why he needs to get married young, while he "still looks this good because it’s important to look good in that suit when you get married.” And I guess when you take the suit off on the wedding night. Because that ladies and gentleman, is what love and finding the right wife is all about …how you look! There was a lady in the women’s department who laughed out loud every time we got near her. I do believe she was laughing at us, not with us, because he was so dead serious.
When we finished at the mall, off to the theatre we went. Now, in the car he was his usual annoying self, talking about bodybuilding, diet and working out, non-stop. He repeated the same sentences and questions that I had already heard a hundred times this week over the phone. Once we reached the dine-in theatre I told him, all conversation is over. There would be no talking during the movie. He agreed.
We watched the movie quietly together. We laughed out loud. I tried not to cry. He followed the storyline without asking any questions or narrating like he used to at home when we would watch a movie together. He wasn’t rigid about what he ordered to eat because of his healthy diet. He had a burger, with no fries, but opted for their delicious homestyle popcorn. He was totally socially appropriate. There was no complaining. It was refreshing. It felt so good to enjoy his company.
When I got home, I reflected on our time together as I climbed into bed. I think one of the reasons that there was no conflict, is because it was just the two of us. He didn’t have to compete for my attention with his brothers or his father. Blue wasn’t there to give him a hard time about his repetitive dialog. His father wasn’t there to be all “fatherly.” We just had a good time. He enjoyed the fact that it was all about him.
Now, in the past, the fact that it was just the two of us has not stopped him from going off the deep end. There is probably a combination of factors that came into play. The biggest one I think, is that he is finally growing up.
By the way, I think my new nickname should be Dory. She has short-term memory loss, as do I (thanks to my kids and menopause) but in her own goofy way, she manages to get through the challenges in her life. There is no rhyme or reason to her methodology, she just keeps swimming and somehow, it just works.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago