After weeks of resistance and avoidance, instinct prompted me to not only drive Red to therapy but to be a part of the session. As a result, I ended up with the most valuable insight into the motivation of his behaviors that I've received in a very long time. If you read this blog regularly, you know that many times throughout an average day I ask myself, what the actual f% is he thinking? He can be impossible to understand. Well, therapy gave me a few answers.
For the longest time, I have wondered the point of "talk therapy" for Red. He loves to go! I've even used it as a consequence. If you don't behave, I will not drive you. I think because he enjoys hearing himself talk. Other people, including the therapist? Not so much. I believe that for the most part, he only wants to hear his point of view reflected back to him. In the sessions I've attended with him, that's what I've seen. When I ask him about therapy sessions that I don't attend, he isn't able to give me any earth-shattering insight that he gathered.
The ride to and from therapy within itself stresses me the hell out. I'm a captive audience, keyword, captive. I'm a hostage, trapped in a small space listening to his ranting, arguing and debating. There have been times when I just pull over until he shuts up!
A month ago, I canceled two of his four monthly sessions because of the long, stressful drive home. That appointment had us driving home through five o'clock traffic. It could take almost 2 hours. Oh.My.God! I wanted to drive off a cliff!
For his last session two weeks ago, I asked his Community Supports provider Kevin, to take him for me. I felt like the goose that laid the golden egg, and no one else knew how valuable it was. Score one for me! I saved myself some aggravation.
One of the boundary issues we have with Red is when he hugs me, he totally engulfs me in his arms. I am much shorter and so much slimmer (not) than he is. He puts a lot of his 200 plus pounds of weight on me and won't let go usually until I pinch him or something. He also continually picks up Harry our little 7 pound Maltese. He hugs him to death or at least until he yelps. Let's just suffice it to say he is overly affectionate with the dog. Harry runs when he hears him coming.
Red also seems to panic when I'm leaving the house. Where are you going? When will you be back? Then I get a zillion phone calls while I'm gone. I come back home; he meets me in the driveway before I can even get out of the car.
Yesterday, I learned that fear, anxiety and a deep need for love and affection are the primary drivers behind many Red's behaviors. He has a girlfriend, but he doesn't get to see her that much because of her issues and actions with her parents. He only has one close friend, and that friend spends most of his life grounded. It's sad. He does have his church family, and I'm sure that attention, love and caring are primary motivators behind his being so close involvement in his church.
Red's therapist believes that he is panicking because of his fear of losing everything. That's why he is holding on so tight. He is genuinely afraid of change. His transition into adulthood involves so many variables; there are many unknowns. It frightens him. Red believes that once he walks out these doors, he loses everything. That's why he always references moving out, as being "kicked out." I imagine he sees my foot on his ass as he heads out the door, never to be able to come back again.
I realize now that we perpetuate that fear. In recent months, his behavior has been so all over the map. Boundaries have been next to non-existent, and we have been close to moving him into a group home. In fact, when he misbehaves, our first line of defense is to say, "That's why you need to move!" Turns out that's not so healthy. It's making matters worse. I never claimed to be perfect, especially when being driven to the edges of sanity.
Of course, if we did have to follow that course of action, it's not as if he would not have any support. But, he can't see through all of that. He's afraid of losing all of his comforts. Gasp! He may have to struggle a bit, like every young person in America.
Oh yes, and buying all of the things. That's another way that he is holding on, tightly. Buying video equipment is something that he can control when he can't control anything else. He is buying things in a panic because when and if, he gets "kicked out," he won't be able to buy anything again, ever! It all makes perfect sense! Why didn't I see all of this before? Duh!
His therapist also pointed out, that Red sees that his older brother who has been out of the house for almost nine years, hardly ever comes back home. I don't think he knows that we continue to support his older brother when he needs it.
Red may act like he doesn't like us, but he loves us. We are all he has ever known, especially me. I have been his rock, and his crutch. What will he do without that? Of course, he thinks he's going to fall if he no longer has what has been holding him up for his entire life. Standing on his own, becoming an independent person scares the crap out of him. He is the bird in the nest; that thinks that there is no way he can fly. This is a very normal feeling that many young adults go through. It's is only exacerbated by autism and anxiety.
What we need to do (all of us including his dad and his brother) is reassure him that he is loved, right now -today and that he will always be loved.
He will always be a part of this family.
He needs that love and affection to be shown by ALL of us.
We can't continually be angry because he's angry and scared.
We can't let the only attention that he gets be negative. He acts so unlikeable because that's the only way he knows how to get attention.
What he needs is encouragement to know that we are positive that he can do well on his own.
He can fly.
We need to reassure him that we realize that even if he is out of our house, he will continue to need support.
We will be there to give that to him or make sure that he receives it from outside sources until he doesn't need it anymore, just as I have ALWAYS done.
We need to continue to encourage and remind him how well he does in other environments, which is a sign that he really can be happy and independent.
When he travels to see family for weeks at a time, he thrives.
When he has gone away to camp, he loved it and did well.
When he is at work and volunteering at the high school with special needs students, he is happy and self-assured.
We must continually encourage his strengths and consistently reassure him, that we know he can do this!
He can be an independent person.
Someday he can be a husband, and perhaps even a father.
To get there, he has to be willing to walk through the fear and walk out of our front door.
He also needs to see a visual plan for his life. He needs a roadmap to follow so that he can feel himself heading in the right direction.
He needs to see that it's just one step at a time, instead of becoming overwhelmed by the big, fuzzy picture. I have arranged that his Occupational Therapist will be helping him map things out, creating a blueprint in the coming weeks.
So it turns out that therapy can be a good thing after all. Thanks, doc!
Think this post could help someone else? Click one of the share buttons below. Thank you!
For the longest time, I have wondered the point of "talk therapy" for Red. He loves to go! I've even used it as a consequence. If you don't behave, I will not drive you. I think because he enjoys hearing himself talk. Other people, including the therapist? Not so much. I believe that for the most part, he only wants to hear his point of view reflected back to him. In the sessions I've attended with him, that's what I've seen. When I ask him about therapy sessions that I don't attend, he isn't able to give me any earth-shattering insight that he gathered.
The ride to and from therapy within itself stresses me the hell out. I'm a captive audience, keyword, captive. I'm a hostage, trapped in a small space listening to his ranting, arguing and debating. There have been times when I just pull over until he shuts up!
A month ago, I canceled two of his four monthly sessions because of the long, stressful drive home. That appointment had us driving home through five o'clock traffic. It could take almost 2 hours. Oh.My.God! I wanted to drive off a cliff!
For his last session two weeks ago, I asked his Community Supports provider Kevin, to take him for me. I felt like the goose that laid the golden egg, and no one else knew how valuable it was. Score one for me! I saved myself some aggravation.
One of the boundary issues we have with Red is when he hugs me, he totally engulfs me in his arms. I am much shorter and so much slimmer (not) than he is. He puts a lot of his 200 plus pounds of weight on me and won't let go usually until I pinch him or something. He also continually picks up Harry our little 7 pound Maltese. He hugs him to death or at least until he yelps. Let's just suffice it to say he is overly affectionate with the dog. Harry runs when he hears him coming.
Red also seems to panic when I'm leaving the house. Where are you going? When will you be back? Then I get a zillion phone calls while I'm gone. I come back home; he meets me in the driveway before I can even get out of the car.
![]() |
Banging on my car window Anger |
Red's therapist believes that he is panicking because of his fear of losing everything. That's why he is holding on so tight. He is genuinely afraid of change. His transition into adulthood involves so many variables; there are many unknowns. It frightens him. Red believes that once he walks out these doors, he loses everything. That's why he always references moving out, as being "kicked out." I imagine he sees my foot on his ass as he heads out the door, never to be able to come back again.
I realize now that we perpetuate that fear. In recent months, his behavior has been so all over the map. Boundaries have been next to non-existent, and we have been close to moving him into a group home. In fact, when he misbehaves, our first line of defense is to say, "That's why you need to move!" Turns out that's not so healthy. It's making matters worse. I never claimed to be perfect, especially when being driven to the edges of sanity.
Of course, if we did have to follow that course of action, it's not as if he would not have any support. But, he can't see through all of that. He's afraid of losing all of his comforts. Gasp! He may have to struggle a bit, like every young person in America.
Oh yes, and buying all of the things. That's another way that he is holding on, tightly. Buying video equipment is something that he can control when he can't control anything else. He is buying things in a panic because when and if, he gets "kicked out," he won't be able to buy anything again, ever! It all makes perfect sense! Why didn't I see all of this before? Duh!
His therapist also pointed out, that Red sees that his older brother who has been out of the house for almost nine years, hardly ever comes back home. I don't think he knows that we continue to support his older brother when he needs it.
Red may act like he doesn't like us, but he loves us. We are all he has ever known, especially me. I have been his rock, and his crutch. What will he do without that? Of course, he thinks he's going to fall if he no longer has what has been holding him up for his entire life. Standing on his own, becoming an independent person scares the crap out of him. He is the bird in the nest; that thinks that there is no way he can fly. This is a very normal feeling that many young adults go through. It's is only exacerbated by autism and anxiety.
![]() |
Moments later running from a bug. Fear |
What we need to do (all of us including his dad and his brother) is reassure him that he is loved, right now -today and that he will always be loved.
He will always be a part of this family.
He needs that love and affection to be shown by ALL of us.
We can't continually be angry because he's angry and scared.
We can't let the only attention that he gets be negative. He acts so unlikeable because that's the only way he knows how to get attention.
What he needs is encouragement to know that we are positive that he can do well on his own.
He can fly.
We need to reassure him that we realize that even if he is out of our house, he will continue to need support.
We will be there to give that to him or make sure that he receives it from outside sources until he doesn't need it anymore, just as I have ALWAYS done.
We need to continue to encourage and remind him how well he does in other environments, which is a sign that he really can be happy and independent.
When he travels to see family for weeks at a time, he thrives.
When he has gone away to camp, he loved it and did well.
When he is at work and volunteering at the high school with special needs students, he is happy and self-assured.
We must continually encourage his strengths and consistently reassure him, that we know he can do this!
He can be an independent person.
Someday he can be a husband, and perhaps even a father.
To get there, he has to be willing to walk through the fear and walk out of our front door.
He also needs to see a visual plan for his life. He needs a roadmap to follow so that he can feel himself heading in the right direction.
He needs to see that it's just one step at a time, instead of becoming overwhelmed by the big, fuzzy picture. I have arranged that his Occupational Therapist will be helping him map things out, creating a blueprint in the coming weeks.
So it turns out that therapy can be a good thing after all. Thanks, doc!
*
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago