Do you ever have those moments when you think ...I just can't do this anymore? I can't take another step forward. I don't know what else to do. I got nothing left! Yeah. Me too.
Last night I went to bed feeling defeated …like giving up. I just can’t not do this job anymore. I quit. There is nothing left in my bag of tricks. I’m usually pretty resourceful and intuitive when it comes to figuring out what my kids need, but I’m fresh out of ideas. In fact, I have too many ideas and can’t seem to make any concrete decisions. I'm dazed and confused. I just don’t feel like I have it within me to make another decision about another person’s life.
Red is afraid of failure.
I’m afraid of him failing.
I know that he needs support.
I’m afraid to let go of control.
I’m afraid that he will blame me when the shit all hits the fan.
“You forced me into this, now look whats happened,” he’ll say.
Well, what’s new? He blames me for everything that’s ever gone wrong in his life and gives me no credit for anything good that has ever happened.
The truth is the child is no longer a child. He can only be guided. We can push …but he can push back. He has legal rights now whatever the f*#& that means. Yes. I know we could go for guardianship. Of course, we would have to prove incapacity. There are definite pros and many cons. For now, we have Power of Attorney so that we can help guide him.
I can get together all the resources in the world, but he actually has to want them and accept them, and he is as stubborn as hell! He may not be smart enough to know exactly what to do, or how to get everything done, but he is damn sure smart enough to figure out how to get out of doing whatever he doesn’t want to do. He’s an expert at finding a backdoor -another way out.
The straw that led to my feeling of hopelessness last night was the fact that hubby left to go to Dallas for business. That gave Red the idea that he had free rein to wreak havoc in the house. He was the prickly needle who poked and prodded at Blue until he blew. It doesn’t take much, because Blue has zero tolerance or patience when it comes to his brother’s annoyances. The fighting between them is indeed a two-way street. The difference is, Blue doesn’t fight with his brother for pure entertainment of it. He’s usually trying to make a point or teach his big brother something. They are always trying to prove the other one wrong. The argument usually turns into someone knocking someone upside the head.
I had to pull out the crazy black woman on their asses after hubby left. I was simply in no mood. Every once in a while, I have to make them think I have completely lost my mind, so they will stop the non-sense in their tracks. Yes...this little five foot, nothing woman threatened to pull out a can of whoop-ass and start swinging their father’s belt in any which direction where there was a teenager in close proximity. If you don’t move…you lose. You best believe they took their butts directly to their prospective rooms.
Afterwards, I was the one who felt just whipped. I'm just so tired of the fights. All of them. I'm a lover not a fighter.
Unfortunately, I live in a houseful of mens, and mens love to fight. *In my Sophia from "The Color Purple" voice.
Before I could crack my eyes open this morning, Red is knocking at my door. I couldn't believe it. He usually does not get up that early. I tried to ignore it, but it got louder. When I didn’t get up to let him in, he starts rattling the door and pushing it. He was getting so loud, in comes little brother who hates to see him hassling me. So again, World War Three is about to break out at 7 o'clock in the freakin morning! Did I say my eyes were barely open?
On the way to school Blue says to me, “How much longer do we have to live like this? I want you to know, I’m not fighting with him on purpose just to upset you. I just can’t take the way he treats all of us anymore. He changes me. I’m different when I’m around him. I don’t feel like this around any other person.” I have to say, I feel the same way. I love Red and I have more patience for him than anyone else on this earth, but that doesn’t seem to matter anymore. I can't give him enough. He appreciates nothing. Nothing I do, makes his behavior any better.
When I get home, I'm sitting in my car as I do most mornings, in a stupor. I text my husband, “I’m done. I can’t do this anymore. You’re going to have to handle him.”
Moments later, Red pulls away with Transportation services. I realize he will be home again in just a couple of hours. He only has class today and nothing else. I literally cannot take it. I cannot have him here all day. And why should I have to leave my own house to avoid him?
It hits me. Call the high school and talk to Mr. M. to see if Red can come volunteer in his class this afternoon. Mr. M. runs the class for kids with special abilities at Red's old high school. Red used to volunteer in there before he graduated. Thank God Mr. M. agrees to have him come. I arrange to have Red dropped off there by transportation, so he can’t come home and refuse to go.
Hours pass. I don't hear from him and I am so thankful. I had enough time to get my head together to think about my next moves for him and do some research. Then, I actually took a break from thinking about his crap, showered, washed my hair and had a Stevie Wonder, Pandora station dance party. I can sing just like him you know ...in my shower anyway.
The phone rings. It’s Red.
“You know you were right Mom. This was a really good idea to structure my time doing something positive. I feel much better now that I’m here helping the kids and thinking about someone other than myself.”
Um ...who the hell is this and what have you done with my kid?
Well, holy crap! This boy is definitely a great smooth talker. He certainly knows the right thing to say. He gets that from his dad. Now, if he could only actually DO some of the right things on a regular basis, he may just get to live to see the age of 20.
During this conversation he was so lucid, it was a little strange. He also agreed that it’s a good idea to look at group homes until we find the right fit. He said, “I have to keep structuring my time so that I stay busy until we find the right place because I don’t want you to kick me out and I end up in a shelter. The food would probably be horrible there.”
I’ll believe it when I see it actually happen. In the meantime, I think I’ll have him put that all in writing. And I definitely know my next move.
The moral of this story ...just when you're about to give up. Don't. Or maybe you should give up as in, stop doing everything for them. The answers are coming. They may just be his to figure out. Sooner or later they have to own their own shit.
It's our job to lay the ground work. The foundation we laid will pay off.
Remain hopeful...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago