Once upon a time, I could never imagine what happened yesterday. Blue started out like many with autism being a very, anxious, picky eater. So picky in fact, it was difficult for him to be around other people who were eating what he deemed to be "disgusting food," with all of the colors and smells that came along with it. Throughout most of elementary school, he had a little office set up for the cafeteria, which was a three panel cardboard file that he would sit in front of him, blocking his front and peripheral view, so that he could sit at the end of the table, alone, to eat his hand packed lunch, while blocking out the sensory input from what everyone else was eating. He did not care about socializing during lunch. He just wanted to eat and get out of that cafeteria as soon as possible.
Cut to today, age soon to be 16, he has become a real foodie. His palate suddenly opened up when he hit middle school. This may or may not have had anything to do with the fact that he started taking medication for his anxiety. Now, he is willing to try anything! He loves to go to restaurants. In fact, he would eat almost every meal out, if we would let him. Although, he also cooks quite a bit here at home and not just for himself. He will make breakfast for the entire family. He has a good, balanced diet which includes many fruits and vegetables, even salads. Unlike his 19 year-old brother who is still pretty stuck on just a few basic, very plain, very boring foods.
So, there’s a little cafe around the corner from our house. It has Cafe in the name, but I think that’s just a nicer word for diner in this case. Blue went there with his dad for breakfast one day last week. He obviously enjoyed it, because yesterday he woke up and decided that he wanted to go back. This time, he didn’t feel like he needed me, his dad or anyone to go with him.
Yep! So he took a shower, got dressed, headed out around the corner, down two blocks and across a major intersection (with no stoplight) to have breakfast in a restaurant …alone! I don’t think I dined in a restaurant alone, where there were actual waitresses who took your order and you had to leave a tip until I was in my twenties!
He ordered. Ate. Paid his bill, left a 15 percent tip and then walked back home (back across that major intersection). Alone! Like a boss! Major accomplishment! Big. Huge! And yes, I am proud!
There is hope people! Never give up! I’m even still hopeful that someday, Red will actually eat a more balanced diet. Hopefully, that will come when he has a wife to boss him around and tell him what to do.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago