Having dinner together as a family is a simple, ordinary thing for most people. Very little in my life is simple or ordinary. The simplest things become complex when we put together the special personalities and idiosyncrasies of our immediate family.
Most nights, we eat in shifts. Honestly, we try not to have the entire family sitting down all at once in order to keep the peace.
We have Red, who usually NEVER likes what we are eating or where we are going if we are dining out. He makes the face like he's tasting crap when he takes a bite of a dish he's unfamiliar with or a vegetable. He wants to completely dominate the conversation. He chews loudly. He practically inhales his food so fast, that I wonder how his body actually digests it.
We have Blue who loves to eat any and everything. He doesn't want to talk about or hear about anything his brother has to say, especially if he starts talking about religion. Oy!
You have my mom, who interrupts me every time I open my mouth when I'm speaking to my children. She completes my sentences before I get the chance. Give her a good glass of wine or three, food served extra hot and she's happy.
Then you have my husband, who is a complete extravert when it comes to friends, colleagues or complete strangers. He is Mr. Personality! However, when it comes to having dinner with just us, you can tell he's trying his best just to get through eating the meal, so that he doesn't have to listen to Red talk anymore. I call him the table manager. He is constantly arranging, straightening and rearranging the table, all while trying to control the table manners of his teenage sons.
Once we went out to breakfast with both boys. I think we were traveling. He actually instructed Red through the whole meal. Cut your pancakes with your knife and fork. Now take a bite. Drink some milk. Eat some eggs. Now wipe your mouth. Take a few more bites of your pancakes now. I thought.I.was.going.do.die. Red actually went along with it for some strange reason.
And then you have me. I'm perfect. Haha! Actually, I usually don't have much of an appetite, especially if I had to prepare the meal. I usually eat just enough so that I can have wine. When dining out, I try to orchestrate a friendly, neutral conversation in which all hell will not break loose at least until after we finish eating the meal.
Tonights dining out Italian family style was ...um...not fun. Red really did try his level best to talk the entire time about his video editing in a rather negative light. He talks about all of the things that are wrong with his videos because he doesn't have "professional" equipment. Then he tries to start with the laundry list of things that he needs to buy for video editing. I cut his conversation short and told everyone we would only talk about neutral, non-controversial subjects. We could talk about movies, mutual friends, what we have planned for the week. Things of that nature.
No matter how we tried, Red continually attempted to bring the conversation back around to himself. If I was engaged in dialog with Blue, or my mom, he would interrupt. "Mom. Mom. Mom."
My husband sat there and said almost, absolutely nothing except for what he wanted to order. He did reach in a couple of times to tell us to pass the bread, plates or whatever so that the table would stay arranged and spots would be open for the food as it was served. He also would tell the boys when they had had enough bread, to use their napkins properly or whatever.
This was painful for me. I didn't have enough wine to make it all better.
On the way home, husband still said very little. The boys started a conversation about family. Which cousin is the funniest, or something along those lines. We actually shared a few laughs over this. My husband's reaction? At one point he plugged his finger into his ear, because Red was laughing and talking while turning around to see us in the back seat. In the process, I guess he got a little too close to dad's sensitive ears. (Aspie much?)
When I got home hubby bolted out to the store like he couldn't stand to be around us all another minute. He needed a sensory break. We've all been there right?
All I could think about was ...in just a few weeks, we have a family reunion. We are all supposed to travel to St. Louis together, stay in a hotel and spend lots of quality family time. Together.
I think I just might call in sick.
Most nights, we eat in shifts. Honestly, we try not to have the entire family sitting down all at once in order to keep the peace.
We have Red, who usually NEVER likes what we are eating or where we are going if we are dining out. He makes the face like he's tasting crap when he takes a bite of a dish he's unfamiliar with or a vegetable. He wants to completely dominate the conversation. He chews loudly. He practically inhales his food so fast, that I wonder how his body actually digests it.
We have Blue who loves to eat any and everything. He doesn't want to talk about or hear about anything his brother has to say, especially if he starts talking about religion. Oy!
You have my mom, who interrupts me every time I open my mouth when I'm speaking to my children. She completes my sentences before I get the chance. Give her a good glass of wine or three, food served extra hot and she's happy.
Then you have my husband, who is a complete extravert when it comes to friends, colleagues or complete strangers. He is Mr. Personality! However, when it comes to having dinner with just us, you can tell he's trying his best just to get through eating the meal, so that he doesn't have to listen to Red talk anymore. I call him the table manager. He is constantly arranging, straightening and rearranging the table, all while trying to control the table manners of his teenage sons.
Once we went out to breakfast with both boys. I think we were traveling. He actually instructed Red through the whole meal. Cut your pancakes with your knife and fork. Now take a bite. Drink some milk. Eat some eggs. Now wipe your mouth. Take a few more bites of your pancakes now. I thought.I.was.going.do.die. Red actually went along with it for some strange reason.
And then you have me. I'm perfect. Haha! Actually, I usually don't have much of an appetite, especially if I had to prepare the meal. I usually eat just enough so that I can have wine. When dining out, I try to orchestrate a friendly, neutral conversation in which all hell will not break loose at least until after we finish eating the meal.
Tonights dining out Italian family style was ...um...not fun. Red really did try his level best to talk the entire time about his video editing in a rather negative light. He talks about all of the things that are wrong with his videos because he doesn't have "professional" equipment. Then he tries to start with the laundry list of things that he needs to buy for video editing. I cut his conversation short and told everyone we would only talk about neutral, non-controversial subjects. We could talk about movies, mutual friends, what we have planned for the week. Things of that nature.
No matter how we tried, Red continually attempted to bring the conversation back around to himself. If I was engaged in dialog with Blue, or my mom, he would interrupt. "Mom. Mom. Mom."
My husband sat there and said almost, absolutely nothing except for what he wanted to order. He did reach in a couple of times to tell us to pass the bread, plates or whatever so that the table would stay arranged and spots would be open for the food as it was served. He also would tell the boys when they had had enough bread, to use their napkins properly or whatever.
This was painful for me. I didn't have enough wine to make it all better.
On the way home, husband still said very little. The boys started a conversation about family. Which cousin is the funniest, or something along those lines. We actually shared a few laughs over this. My husband's reaction? At one point he plugged his finger into his ear, because Red was laughing and talking while turning around to see us in the back seat. In the process, I guess he got a little too close to dad's sensitive ears. (Aspie much?)
When I got home hubby bolted out to the store like he couldn't stand to be around us all another minute. He needed a sensory break. We've all been there right?
All I could think about was ...in just a few weeks, we have a family reunion. We are all supposed to travel to St. Louis together, stay in a hotel and spend lots of quality family time. Together.
I think I just might call in sick.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
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Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago