Editorial Note: This post was originally published in October of 2010. Red was in his first year of high-school at the time. I republish it today to demonstrate how much times have changed. He is now attending his home campus high-school. And has another bus driver and assistant.
Now when he first started with this driver last year...she seemed to be a bit of a grump. She was very impatient and would hardly speak when he got on the bus. She would take off as soon as he got on, and wouldn't even look in my direction as I waved good-bye. She was actually so bad that some of our neighbor's boys who also have autism, would no longer ride with her. "She's mean!" they would say, because she was so abrupt and rude. These are two boys are some of the sweetest boys I know.
Over the past year or so ...something happened and she has mellowed. She bought Red and his friend these mini-speakers for their IPods for Christmas. Then one day after Red and his friend had a difficult day, I saw her get out of her seat and hug my boy. And then they bowed their heads and prayed. It brought tears to my eyes.
Since then, I have seen her reading a scripture to the boys before they took off from in front of the house. This from the woman who used to take off before he could barely sit down! Another day, when he had not ridden for a few days, because of difficulties at school, she actually got out of her seat, off the bus and met him in the driveway with a great big ol' hug. I think it's safe to say ...something has happened. They have bonded and made quite a connection.
Now yesterday, she actually walked all the way up to the front door! She was almost dancing with happiness to see him. The woman seemed so happy, I thought to myself, I want some of what she's taking! She was almost too happy! Red had missed riding the day before. I opened the door and thanked her for being so nice to him. She said, "We love all of the kids who ride with us...but this boy is so special!"
This was my Facebook Status after our encounter:
O.k. now the bus driver is walking all the way up to the door. She would have come on in if I invited her. She really loves my boy! #ALittleLooneyIThink
One of my fans was actually offended by this. So I replied to her...
"If it makes you feel any better ...I am MORE than a little looney!"
Here is what I wrote two years ago about Red and his Drunk Drivers...
"I don't want to ride with those Drunk Drivers!" That is the phrase of the month for Red, my 15 year-old son. I think he loves the way it rolls off his tongue, the melodic sound of it -drrrunk drrivers. He must love it because he makes a point of saying everyday, several times a day. It's one the many things that he does that drives me nuts. There has to be something inside him that compels him to repeat things so often. I've read that people with autism do something called "scripting". They get some sense of comfort from repeating certain phrases or words. It's often something they've heard on a favorite movie or television show.
We made this deal. If he is ready on time, I take him to school and pick him up. If he is not ready that morning on time, he will not have the privilege of riding in my car (torturing me with your meaningless conversation about all of the things you want me to buy for you) on the way home. Instead -he has to ride the bus home with those "drrunk drrivers!"
This was one of those, "I'm just too tired!" days. He takes a half an hour to get out of bed. To top it off, this time he actually came down the stairs, not dressed and laid on the floor in front of the refrigerator -I believe for the effect of pushing my buttons. I don't say a word. I just step on him on my way across the kitchen.
"Oops! Didn't expect their to be a body on the kitchen floor. Sorry."
"Oops! Didn't expect their to be a body on the kitchen floor. Sorry."
When we pull up to the school he never gets straight out of the car. I can have five cars pull in behind me, kids get out and are going through the front door and he is still sitting there. That's when he decides to strike up a conversation about what he wants to buy, what he wants me to buy, why he needs it so badly, why I don't seem to understand why he needs it so badly. Or he goes into a rant about why I'm so mean -or why I don't care about his feelings.
If I'm so mean, why are you riding in my car instead of on the school bus? Why am I not in bed, or at the gym instead of sitting here listening to you?
Sometimes, I just get out of the car myself. I start walking my dog Harry, so that Red no longer has an audience for his rant.
Since he sat in la la land at the breakfast table after he finished eating, then took 15 minutes to go upstairs and put his shoes on, and would not get out of the car once we got to school -he had the privilege of riding with the drunk drivers home from school today.
Wonder if he'll be on time tomorrow?
P.S. Red is now 17 and in the 11th grade. Most mornings he gets up on his own, makes his lunch and is ready on time for the bus. I would say he does this 95% of the time. That is a big improvement. So for those of you fighting the morning routine with your autism kiddos...I want you to know there is hope!
P.S. Red is now 17 and in the 11th grade. Most mornings he gets up on his own, makes his lunch and is ready on time for the bus. I would say he does this 95% of the time. That is a big improvement. So for those of you fighting the morning routine with your autism kiddos...I want you to know there is hope!
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago