Blue is upset...feeling like the entire world is resting on his shoulders. Why? In a word...School. He is smart as a whip -but it's that deficit in executive planning that gets him every time.
There are so many things to do...so many deadlines to think about. There's that science project -building an atom model to the tune of $45.00 in supplies plus $30.00 in tutoring fees. That's an expensive got-dammed model! I kind of feel like I've been robbed. He could have drawn an example of an atom for free! He has excellent artistic skills. Seriously...I have to admit it was totally worth paying our teenaged neighbor to help him. He would have fought with me tooth and nail all the way through if I tried to assist him. But still...$75.00 later!
Then there is that history test that his Social Studies teacher stresses ..."You all better study! It's not going to be easy!" And it was not. Blue did not do well...and he was not happy! Pre-Ap Algebra 1? ...too much homework for his taste. He is longing for a little more down time when he comes home. And he needs it! Anything extra...even going to church (which he is starting to really enjoy) can mean a meltdown.
Language Arts of which he decided to take Pre-Ap? He's starting to feel like he made a big mistake!
"I can not read that fast! She expects us to read silently...to ourselves! I need to hear it. Not just read it. I do much better when we read along together in class."
He needs to involve at least two senses to everyone else's one. He is a great writer...like his mama. It's the fiction reading that slows him down.
The stress shows up here at home in the form of a disagreeable, grumpy, extra-arugmentative, easily explosive child. Yeah...fun for us!
When I tell Aspergers Dad about his stress and feelings of being overwhelmed, his response. "Tell him it's only going to get harder. He better get used to it." There is a reason why God gave these kids two parents. Of course Dad is right...in a way, but I'm not going to tell him that. The part that he leaves out, is that we have to teach him ways to advocate for himself to take down his stress level. For instance ...in college, you can take less classes to slow things down a bit, or take classes after noon so you don't have to get up so early in the morning. You can build flexibility into your schedule.
I am all for trying to be the best...but not to the point of stressing yourself out and being totally anxious about it.
So Blue talks to his tracking teacher and his Language arts teacher about his trouble keeping up. He doesn't really feel like they are hearing him. He comes home and tells me, "They weren't any help!"
I have to work my Mom Magic in the background. I send an e-mail to the Language Arts teacher, informing her of the testing I had done last year by our Neurologist, which shows that Blue's reading fluency is below grade level, although his vocabulary and word recognition are well ABOVE grade level. So basically, when it comes to reading fiction, he needs a little extra support in the form of audio as well as visual. She graciously agrees to accommodate him. We all know he has a brilliant mind and is capable of plenty, we just have to be flexible and make things work for him.
I put a spark under the tracking teachers ass with a phone and an e-mail stressing that he needs a road-map to help him with executive planning. I also ask her to work with Blue and the Social Studies teacher to see how he can make up the grade for the test he did not do well. We need to do all of this today because I am going out tonight and I can't afford for him to come home and have a meltdown. I do not want to miss the concert I've been planning to go to for weeks. She jumps right on it and handles the situation.
I then put in a phone call to Cole's bestie's mom to ask her if she can help me out by allowing him to come over and hang with the boys for a few hours while we go out. That will help take the sting out of his day of mishaps. It will allow for me to go out without getting any phone calls about a meltdown or fight at home between the two boys.
Yep...a sistah has to work that magic that so that Blue could get the support he needs while his mom and dad got the chance to go out to get our groove back. We partied like we were young, and in love with no responsibilities for the night. Not only did we enjoy seeing Erykah Badu at Austin City Limits...we also danced our asses off to the DJ's music out on the patio afterwards. I was like...Wow! I remember this! There is life on a Thursday night when you don't have kids to worry about. Sweet memories of life B.C. (before children).
I partied like a rock star for the night. Until it all came to a screeching halt when I had to get up the next morning to get Blue to school on time and then take Red in to the Podiatrist for a little toe surgery. What was I thinking when I made that appointment? Obviously I wasn't thinking about drinking so much vodka the night before. He's doing fine by the way...
As for me...it only took me two days to recover.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago