A month or so I was asked to read and review the book "Easy to Love but Hard to Raise." I thought, How exciting...my first book review and giveaway for the blog! I forgot about the fact that I haven't been able to complete a book this entire year because my life is so hectic between the boys, my husband, my mother, my dog, the blog and my "Confessions" Facebook Community. So, I read this book in pieces...which is easy to do because of the way the book is written. There are many short essays that tell the tale of a parents experiences in raising challenging kids. The size of the essays are small enough for a busy mom like me to read before falling asleep, after getting the boys in bed.
Of course...I can relate in some way, shape or form to ALL of the stories, even though the diagnoses varies from ADHD, ODD, Tourettes, PDD and other combinations. They are are all somehow about me and my experiences with my own children. The words are all are all thoughts that I've had inside my own head or have even written about at one time or another. If I had written one of these essays, it would probably be titled, "Easy to Love but Not Always Easy to Like" especially, when they become teenagers (because that's the snarky kind of girl I am).
Seriously, it is so important to our mental health as parents, to have a community to reach out to and be comforted in the fact that we are not alone in this journey. This book accomplishes this goal phenomenally. I thoroughly enjoyed the essays and the expert advice that follows each.
Let me give you an example of just a few of my favorite quotes:
How many average parents have to go into doctors offices and tell them, although they have years of schooling and experience, that you do indeed know more about your child than they do? "No, I do not want to try this medication. I've read how this combination works better." I research medication classifications, because I know based on experience how my boys will react to certain medicines. I should be awarded an honorary Pharmaceutical and Nursing degree!
Not to mention having to know more than the teachers, administrators and special-education professionals, about the Individual Education Plan for my children, because the will often do the bare minimum or not even tell you what programs and modifications are available.
Another of my favorite parts of the book is the Q&A with Jean Winegardener, a.k.a. Stimey author of Stimeyland.com about the role of social media as a support system to parents of special needs children.
Jean says, and I will paraphrase here...
Here's the fun part..
Comment below leaving your name. You have to put in an e-mail address to leave a comment. I will draw a name next week to give away a copy of the book "Easy to Love by Hard to Raise"!
You have until Friday, October 5th to enter. Good luck!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
If you just can't wait for my give away. You can purchase the book here on Amazon it even comes in Kindle format and I get a little Amazon associate credit to help fund the blog and help with my kids therapies!
~Love, Karen
Of course...I can relate in some way, shape or form to ALL of the stories, even though the diagnoses varies from ADHD, ODD, Tourettes, PDD and other combinations. They are are all somehow about me and my experiences with my own children. The words are all are all thoughts that I've had inside my own head or have even written about at one time or another. If I had written one of these essays, it would probably be titled, "Easy to Love but Not Always Easy to Like" especially, when they become teenagers (because that's the snarky kind of girl I am).
Seriously, it is so important to our mental health as parents, to have a community to reach out to and be comforted in the fact that we are not alone in this journey. This book accomplishes this goal phenomenally. I thoroughly enjoyed the essays and the expert advice that follows each.
Let me give you an example of just a few of my favorite quotes:
- "Why had our parenting seemed so natural and effective with our two older children and yet felt so inadequate with Sarah?" -Rachel Penn Hannah says about her daughter who is diagnosed with ADHD.
- "There is something inherently wrong with the system when, in order to receive a correct diagnosis and effective treatment, a parent must know more than the doctors." -Robbi Nester says in one of my favorite essays, "The Virtual Village".
How many average parents have to go into doctors offices and tell them, although they have years of schooling and experience, that you do indeed know more about your child than they do? "No, I do not want to try this medication. I've read how this combination works better." I research medication classifications, because I know based on experience how my boys will react to certain medicines. I should be awarded an honorary Pharmaceutical and Nursing degree!
Not to mention having to know more than the teachers, administrators and special-education professionals, about the Individual Education Plan for my children, because the will often do the bare minimum or not even tell you what programs and modifications are available.
Another of my favorite parts of the book is the Q&A with Jean Winegardener, a.k.a. Stimey author of Stimeyland.com about the role of social media as a support system to parents of special needs children.
Jean says, and I will paraphrase here...
- "Having a child with special needs can be extremely isolating. Friends who don't understand what you're going through as a parent...may fall away. Some days it's just too hard to face the stares and judgments...so parents end up staying at home. When there is no one in your life to turn to in the middle of the day, Twitter is there. When you want to know what others' experiences', blogs are there. When you just need some adult contact to take your mind off of all that is so difficult, Facebook steps up."
Here's the fun part..
Comment below leaving your name. You have to put in an e-mail address to leave a comment. I will draw a name next week to give away a copy of the book "Easy to Love by Hard to Raise"!
You have until Friday, October 5th to enter. Good luck!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
If you just can't wait for my give away. You can purchase the book here on Amazon it even comes in Kindle format and I get a little Amazon associate credit to help fund the blog and help with my kids therapies!
~Love, Karen
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago