The first child comes home angry and ranting about life being un-fair. About him being discriminated against because he's only 16 and no one will hire him to be a professional Videographer. "I need more professional equipment! I need a better camera! This is not fair!" He goes on with I hate this...and I hate that for at least 20 minutes before I interrupt.
"I have to go pick up your brother."
"No! Don't leave. I need to talk to you."
"You've been talking to me for 20 minutes. You're to repeating yourself. I have to go."
"Well can I come with you?"
Why? So you can complain more in the car. I don't think so.
"I have no idea what kind of mood your brother is going to be in when I pick him up. The last thing he needs is to listen to you ranting if he's already upset. The boys don't want to hear that either."
The boys I'm referring to are Blue's best friends who carpool with us. They are also on the spectrum.
It turns out it's a good thing. When I pick Blue up from school he is very ...well, blue, sad, over the whole ridiculous middle school thing. The kids who tease him and try to make him feel less than. The kids who make fun of him for being nice to a girl, and tease him that he must "like her". He takes it all so personally. His emotions and feelings are so extreme. Having his besties in the car usually cheers him up, but not today.
By the time we pull into the driveway at home, he says to me, "I just can't do this anymore. I don't want to go back to school. I'm tired of fighting with everyone at home. I just want this all to end. I just can't live anymore." OUCH! Blow to the gut. Heart sinking in to the depths of the ocean. These are words a mother never wants to hear coming out of the mouth of her child. I know within my heart that he doesn't really want to end his life, but he wants to end his pain. And he wants me to understand the depth of his pain.
Before we can get out of the car...here comes Red. He couldn't wait for me to come into the house to start moaning and complaining. I stop him in his tracks. "Look...your brother is feeling pretty bad right now. I need you to go back into the house and let me deal with him, and when we come in, I need you not to agitate him and set him off. I don't want him to end up in the hospital. He's feeling that bad."
Of course I get ninety questions before he actually backs off and goes into the house.
I call the Neurologist who is currently prescribing his medication. He suggest that I get him to see his Psychiatrist, or take him to the local pediatric Mental Hospital. I am so not even trying to here this. That place is horrid! I had to place Red there once and I vowed never to go back there. I don't care if I have to drive a country mile to find somewhere else for help.
Blue can hear my conversation with his doctor. He notes the serious possibility of him having to go to the hospital. He doesn't want to go there. I make an appointment for him to see his Psychiatrist the following day. Meanwhile we all treat him with kit gloves doing everything we can to keep him relaxed. I don't leave him alone at all. Before bed, I have dad rub his back with a GABA calming cream and lavender essential oil. We make sure he goes to bed early. Having good rest is really important for his mood.
Meanwhile, I am trying to keep Red from ranting about becoming a Professional Videographer. He is reading all kinds of information on the internet and comes up with the ridiculous notion that he needs a $15,000. camera to make this all happen. A friend of the family has asked him to do amateur video of a small wedding. He thinks he can't do it without a professional camera (which he would probably have no idea how to use). I have to explain the impracticality of his request while trying to keep him from amping up and disturbing his brother who is already off to bed.
To prove his point he begins to read to me and his father a good 3 paragraphs of technical writing in support of his need for professional equipment. He reads it so eloquently with such fluency, I'm a little taken a back. This is the boy who says, "I can't read! It's too hard!" So when he finishes reading, I stop him dead in his tracks and say, "Hey! Is that YOU? Reading all of that technical information so quickly and easily without making any mistakes? So you can read!!!" And with that ....we all give him a round of applause and a standing ovation.
He can't do anything but smile. And thank God...he shuts up for the rest of the night!
I crawl into bed, feeling a little sorry for myself, for my children, for our crazy life in this house of insanity. I have a glass of wine or 2 as I browse through Facebook and read a couple of blogs that I follow.
My friend Scotty (John Scott Holman), a fellow writer and Aspie, writes about being homeless right now and his father taking advantage of him, stealing his money and refusing to pay it back.
I read a blog by my friend Rhonda, of Pugariffic -"I Hate Autism" who has a 17 year-old son with autism who is pretty big and strong, a gentle-giant until he looses it, has a meltdown and rages, he physically hurts her, but she refuses to put him in a group home or Residential Treatment because of the barbaric conditions there.
Then I read about my friend Laurie @ Adopting Special Needs -There is no Calvary. She writes about her adopted daughter 8 year-old Hope who has PTSD, among other things, and rages at any given moment, biting, kicking scratching and hurting her mother because she forgot her pencil in the car. She writes how she may have to be placed in a Residential Treatment Facility so that she can no longer hurt the members of her family, all because some sicko physically and sexually abused her when she was younger.
Before I close my eyes I am praying for my bloggy autism friends, and my "Confessions" Facebook Community asking God to continue to give them strength to endure the insanity that we are living through. I pray also for my own children, and suddenly realize, my Insanity-ville is not as bad as many others. My autism is not your autism. It's still hurts when my child is in pain and I can't do anything to magically take it all away.
"I have to go pick up your brother."
"No! Don't leave. I need to talk to you."
"You've been talking to me for 20 minutes. You're to repeating yourself. I have to go."
"Well can I come with you?"
Why? So you can complain more in the car. I don't think so.
"I have no idea what kind of mood your brother is going to be in when I pick him up. The last thing he needs is to listen to you ranting if he's already upset. The boys don't want to hear that either."
The boys I'm referring to are Blue's best friends who carpool with us. They are also on the spectrum.
It turns out it's a good thing. When I pick Blue up from school he is very ...well, blue, sad, over the whole ridiculous middle school thing. The kids who tease him and try to make him feel less than. The kids who make fun of him for being nice to a girl, and tease him that he must "like her". He takes it all so personally. His emotions and feelings are so extreme. Having his besties in the car usually cheers him up, but not today.
By the time we pull into the driveway at home, he says to me, "I just can't do this anymore. I don't want to go back to school. I'm tired of fighting with everyone at home. I just want this all to end. I just can't live anymore." OUCH! Blow to the gut. Heart sinking in to the depths of the ocean. These are words a mother never wants to hear coming out of the mouth of her child. I know within my heart that he doesn't really want to end his life, but he wants to end his pain. And he wants me to understand the depth of his pain.
Before we can get out of the car...here comes Red. He couldn't wait for me to come into the house to start moaning and complaining. I stop him in his tracks. "Look...your brother is feeling pretty bad right now. I need you to go back into the house and let me deal with him, and when we come in, I need you not to agitate him and set him off. I don't want him to end up in the hospital. He's feeling that bad."
Of course I get ninety questions before he actually backs off and goes into the house.
I call the Neurologist who is currently prescribing his medication. He suggest that I get him to see his Psychiatrist, or take him to the local pediatric Mental Hospital. I am so not even trying to here this. That place is horrid! I had to place Red there once and I vowed never to go back there. I don't care if I have to drive a country mile to find somewhere else for help.
Blue can hear my conversation with his doctor. He notes the serious possibility of him having to go to the hospital. He doesn't want to go there. I make an appointment for him to see his Psychiatrist the following day. Meanwhile we all treat him with kit gloves doing everything we can to keep him relaxed. I don't leave him alone at all. Before bed, I have dad rub his back with a GABA calming cream and lavender essential oil. We make sure he goes to bed early. Having good rest is really important for his mood.
Meanwhile, I am trying to keep Red from ranting about becoming a Professional Videographer. He is reading all kinds of information on the internet and comes up with the ridiculous notion that he needs a $15,000. camera to make this all happen. A friend of the family has asked him to do amateur video of a small wedding. He thinks he can't do it without a professional camera (which he would probably have no idea how to use). I have to explain the impracticality of his request while trying to keep him from amping up and disturbing his brother who is already off to bed.
To prove his point he begins to read to me and his father a good 3 paragraphs of technical writing in support of his need for professional equipment. He reads it so eloquently with such fluency, I'm a little taken a back. This is the boy who says, "I can't read! It's too hard!" So when he finishes reading, I stop him dead in his tracks and say, "Hey! Is that YOU? Reading all of that technical information so quickly and easily without making any mistakes? So you can read!!!" And with that ....we all give him a round of applause and a standing ovation.
He can't do anything but smile. And thank God...he shuts up for the rest of the night!
I crawl into bed, feeling a little sorry for myself, for my children, for our crazy life in this house of insanity. I have a glass of wine or 2 as I browse through Facebook and read a couple of blogs that I follow.
My friend Scotty (John Scott Holman), a fellow writer and Aspie, writes about being homeless right now and his father taking advantage of him, stealing his money and refusing to pay it back.
I read a blog by my friend Rhonda, of Pugariffic -"I Hate Autism" who has a 17 year-old son with autism who is pretty big and strong, a gentle-giant until he looses it, has a meltdown and rages, he physically hurts her, but she refuses to put him in a group home or Residential Treatment because of the barbaric conditions there.
Then I read about my friend Laurie @ Adopting Special Needs -There is no Calvary. She writes about her adopted daughter 8 year-old Hope who has PTSD, among other things, and rages at any given moment, biting, kicking scratching and hurting her mother because she forgot her pencil in the car. She writes how she may have to be placed in a Residential Treatment Facility so that she can no longer hurt the members of her family, all because some sicko physically and sexually abused her when she was younger.
Before I close my eyes I am praying for my bloggy autism friends, and my "Confessions" Facebook Community asking God to continue to give them strength to endure the insanity that we are living through. I pray also for my own children, and suddenly realize, my Insanity-ville is not as bad as many others. My autism is not your autism. It's still hurts when my child is in pain and I can't do anything to magically take it all away.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago