"Clearly you have to drink in order to live with these people." -My Facebook quote from Saturday night.
Well this has been a fun weekend...NOT! We got a new big screen T.V. for our living room. My chairs are falling apart, but we have a new 55 inch T.V.! No...it wasn't completely my husband's idea. We've been talking about it for a while. We've also been talking about the chairs for a while, but he beat me to the punch, I guess. You know, we've got to keep up with those Joneses (whoever they are).
Since we have a flat screen upstairs...we have all gotten a little spoiled and don't want to watch movies as much in our living room with the older projection t.v. Our extra visual boys of course like the best of all things technical. They have been watching t.v. and movies more in our room because we have the Blu-Ray player up here. My husband hates when the 16 year-old lays in our bed to watch a movie. That was also part of the reason for buying the new t.v. for downstairs. Hubby can be very territorial when it comes to our private space.
We also thought getting the new t.v. would be a great early Christmas present for the family and that the boys would love it! Surprise! They do love it. Initially, they were so excited when they saw it. Unfortunately, it's been mostly down hill from there. Red thinks we bought this say...um...just for him. He's obsessed with it. He wants to completely control it. He wants to blast the sound of his movies through the house, with no consideration for others who are not watching said movie.
The underlying trigger is he had kind of a rough day at school on Thursday because of an unexpected fire-drill. An alarm went off because of some kind of smoke detector defect. The result? Students were stuck outside for well over an hour. He was not with his Special Ed. tracking teacher at the time. He ended up getting kind of displaced. Mind you...this is what he's been wanting. He wants to be with all of the "normal" kids (as if there is such a thing). The kids end up all getting into a big huddle. There was some improvisational rapping. He hates rap! He hates crowds really. He hates when teens are loud, cursing and wild...you know being teens. But for some reason, he thinks he wants to be a part of it. That is until he actually is a part of it, and he doesn't know what to do.
He starts to get extremely agitated. Luckily, a few teachers recognize this and they escort him to his tracking teacher. By this time he is loud, agitated, looking angry, pacing and complaining non-stop. He is deeply disturbed by his not being able to handle the situation. He is disturbed because he saw a few friends and talked to them for a while, but somehow they ended up disappearing and he had no idea what to do. He couldn't find anyone he knew.
The agitation was mitigated the when he saw the new t.v. But the anger, and depression is still boiling beneath the surface. So when Dad comes in and turns the sound down on the movie, because it is vibrating through the whole house...Red goes ballistic! Everything he felt the day before at school erupted right here at home, where he is most comfortable. Lucky us! I guess we should be happy that it didn't happen at school.
It got really...really ugly. He basically attacked his father, physically. This has only happened once before. He was completely out of body...like another person. We gave him something to calm himself down, but when these things happen, there is collateral damage. Blue witnessed it...it made him completely anxious. My mom instinctively reacts...not really helpful. It completely sucks the life out of the entire family. Everyone is left feeling...sad, drained, defeated and exhausted.
The following day, he is full of apologies that sound sincere but what do they really mean? Will his actions change in the future? Will he ever get to the point where he can control these outbursts? How will he make it in the world with this kind of behavior? Do we need to adjust medicine again???? Ugh!
Red is always looking for the next big thing that will suddenly make his life better. That elusive thing over THERE...will finally make him happy. That new TV, THOSE new friends, a girlfriend, the new technical gadget, or program for his computer. That has to be it! That has to be the trick to solving all of my problems. It's too hard for me to fix myself. In fact...it's impossible, in his eyes. So if I just do this, if I just get that...suddenly my life will be better.
If I could give him happiness in a box...I certainly would. In fact, it would solve a lot of my problems, because I'd be rich! Instead, I am left feeling depleted. What else can I do to help this boy be a little happier? I need to find him a new therapist. That's it! I'll take him to a new doctor. Maybe that will do it. I will help him find some new friends. That has to work!
The truth is that there are days when I feel like nothing that I do will actually work. It doesn't keep me from continuously trying. At times, I feel like giving up. I certainly had a few of those moments on this crazy, funky, dreary weekend.
On Sunday morning, I felt like escaping into my writing instead of listening to a sermon at church. I forced myself to listen anyway. The message I received from the Pastor was, "Never give up. God is there for you. The next good thing may be just around the corner."
And there you have it...the answer I needed to hear. It may not be the magic answer, but it will help me to keep looking.
Logging you in...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago