Really a village? Yes...it takes an entire village to raise this child. I am always amazed at the ARD/IEP process here in Texas. You sit down with an entire room of professionals who are there to work with your child in some capacity or another. Some of them helpful...others not so much. Some of them make you wonder what their motivation was for choosing this career field. Others are so good, you feel extremely blessed to have them care about and work with your child. We experienced this kind of love throughout our elementary school experience. Our Special Education staff there came to know and love my children intimately. We had a few issues with teachers and even the Principle at some points. It wasn't a perfect situation, but we were always able to work out the kinks. There was always the core staff who got it...who really cared.
I didn't sign the ARD/IEP last week with the high school that Red was attending. Today, I met with his new team, closed out the IEP from the last meeting and completed an amendment, in which all of my concerns were addressed. The Special Education Director at the new high school gets it. She is one of the ones who is in this for all the right reasons...because she is a good person who genuinely cares and wants to help people. How do I know this? She shared some personal information with me that let me know that she is the real deal. She's not some young educator who has no children, who is doing this job from the perspective of only her college education. She is doing this job because of who she is, and what she has experienced in her life. She is seasoned. She is not cookie cutter. She is willing and able to think out of the box.
With my son's old team, there were so many times when I expressed a concern, a thought, or feeling about what my child was going through, and I was met with blank stares. Like huh? What? Sorry lady... are you from another planet? We are from planet earth and we don't get your moon-speak here.
I got none of that today. I got validation. I was not rushed. They took time to answer every, single question...idiotic or not. I got...how can we help? Do you need further explanation? Do you have any additional concerns? And how are YOU doing? (How am I DOING?) What are you doing to take care of yourself? Let me put you in touch with this agency to help you with respite care. We are so excited to have him here! Now this is what we're going to do to help him. This is what we're going to do to help him start feeling successful and build his self-esteem. Our program will become like his little family.
His tracking teacher is an older gentlemen with white hair, a soft-spoken voice, and obviously...experience. Before leaving our meeting he gives me his direct number and his cell. "Call me if you need anything or would like to share any concerns." What??? His cell number!
The school Psychologist is younger, with spiky hair, and plenty of self-assurance. She appears knowledgeable, confident and direct. She was able to give me the language to use to diffuse certain situations that I am dealing with here at home, letting me know...this girl knows her stuff! She assured and comforted me by telling me how they will handle this transition with Red...how they will ease him into it, in attempt to make it less stressful for him. She tells me how they deal with kids having a bad day, cool-downs, natural consequences... not criminalizing behaviors related to their disability. Innately, I know...they are not bullshitting me! This is not placation. This is real...this is good. His village is ready to get to work. We are on our way...
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I didn't sign the ARD/IEP last week with the high school that Red was attending. Today, I met with his new team, closed out the IEP from the last meeting and completed an amendment, in which all of my concerns were addressed. The Special Education Director at the new high school gets it. She is one of the ones who is in this for all the right reasons...because she is a good person who genuinely cares and wants to help people. How do I know this? She shared some personal information with me that let me know that she is the real deal. She's not some young educator who has no children, who is doing this job from the perspective of only her college education. She is doing this job because of who she is, and what she has experienced in her life. She is seasoned. She is not cookie cutter. She is willing and able to think out of the box.
With my son's old team, there were so many times when I expressed a concern, a thought, or feeling about what my child was going through, and I was met with blank stares. Like huh? What? Sorry lady... are you from another planet? We are from planet earth and we don't get your moon-speak here.
I got none of that today. I got validation. I was not rushed. They took time to answer every, single question...idiotic or not. I got...how can we help? Do you need further explanation? Do you have any additional concerns? And how are YOU doing? (How am I DOING?) What are you doing to take care of yourself? Let me put you in touch with this agency to help you with respite care. We are so excited to have him here! Now this is what we're going to do to help him. This is what we're going to do to help him start feeling successful and build his self-esteem. Our program will become like his little family.
His tracking teacher is an older gentlemen with white hair, a soft-spoken voice, and obviously...experience. Before leaving our meeting he gives me his direct number and his cell. "Call me if you need anything or would like to share any concerns." What??? His cell number!
The school Psychologist is younger, with spiky hair, and plenty of self-assurance. She appears knowledgeable, confident and direct. She was able to give me the language to use to diffuse certain situations that I am dealing with here at home, letting me know...this girl knows her stuff! She assured and comforted me by telling me how they will handle this transition with Red...how they will ease him into it, in attempt to make it less stressful for him. She tells me how they deal with kids having a bad day, cool-downs, natural consequences... not criminalizing behaviors related to their disability. Innately, I know...they are not bullshitting me! This is not placation. This is real...this is good. His village is ready to get to work. We are on our way...
Please take a moment to click below to help spread the word about this blog.

Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago