Nothing is smooth sailing when it comes to an Aspergers teen. We had about a weeks worth of honeymoon period with Red and his new school situation. He still likes it...but for some reason he is surprised that he still has a lot of work to do, both socially and academically. So the past couple of days, he comes through the door with a look of fatigue and unhappiness on his face.
"People are being rude to me! I have the same problems everywhere! People don't want to talk to me."
Unfortunately, with all of the medication changes, he isn't taking anything for focus right now. Well, actually, he's taking Intuniv, a non-stimulant, but I really don't see how it is helping him. The issue is he has a tendency to talk...non-stop, dominating the conversation. Once he gets on a roll, he hardly takes a break for a deep breath, much less stopping long enough for others to actively participate in the conversation. One of his teachers tells me, that one day he was so busy talking, he didn't even notice that people had actually walked away. Of course, there is not a lot of eye-contact during his conversations. Hence, the intense need for social skills training which, is not an overnight process.
Then he drops this bit of wisdom down on me:
"I can't help that I talk so much. It's a part of my Aspergers. I can't help it. If I could help it...I would stop doing it. People need to understand that it's a part of who I am. They need to have patience. All I want is to have some friends who accept me for who I am. I just want to be happy!"
"You're right mom, the reason I like to buy things all the time is because I'm just looking for a little bit of happiness, even though I know, things can't make you happy."
"Are you sure Dr. A knows what she's doing? We've been trying all these different medicines and I still talk so much. Maybe we need to change millograms or something. I need some help with this so that people will like me."
Wow! I tell him how proud I am that he can express these feelings to me so clearly.
"This shows me that you are doing better. Before, you were not able to express all of that to me...so you are doing better. And I'm proud of you. You may not be where you want to me, but you are slowly making progress. You are getting up in the mornings, getting ready on time. You are taking your showers every night. All of these things are progress."
I am so impressed by his insightfulness. He really does get it! He does see himself and what he is doing, but he just can't resist some of the impulses.
I have been putting off going back to a low dosage of Focalin with him, afraid of what the side effects may be. The doctor believes that with the other meds he has on board, and the lower dosage, he won't have these mad crashes in the afternoon. He is so desperate to control the over-talking, and lack of focus, that I am willing to go ahead and fill the prescription in hopes that it will help.
I am definitely fatigued by the incessant talking and I have a LOT OF PATIENCE. There have been times where I've had to tell him, "You've said that ninety-million times already! I got it!"
"I didn't say it 90 million times. That would take all day."
"Well, it feels like 90 million times!"
Imagine how it feels for those people who don't love him as much as I do, nor do they have the social skills or patience to put up with it.
I'm really happy about what he said about "buying things to find happiness." That is until the end of our conversation when he says, "So can I go to Walgreens now to buy those Amazon gift cards so I can order the Yoke for my Flight Simulator game?"
"I thought we just agreed that buying things won't make you happy?"
"I know that...but at least it will give me something to do."
Guess I can't expect everything to happen overnight...
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"People are being rude to me! I have the same problems everywhere! People don't want to talk to me."
Unfortunately, with all of the medication changes, he isn't taking anything for focus right now. Well, actually, he's taking Intuniv, a non-stimulant, but I really don't see how it is helping him. The issue is he has a tendency to talk...non-stop, dominating the conversation. Once he gets on a roll, he hardly takes a break for a deep breath, much less stopping long enough for others to actively participate in the conversation. One of his teachers tells me, that one day he was so busy talking, he didn't even notice that people had actually walked away. Of course, there is not a lot of eye-contact during his conversations. Hence, the intense need for social skills training which, is not an overnight process.
Then he drops this bit of wisdom down on me:
"I can't help that I talk so much. It's a part of my Aspergers. I can't help it. If I could help it...I would stop doing it. People need to understand that it's a part of who I am. They need to have patience. All I want is to have some friends who accept me for who I am. I just want to be happy!"
"You're right mom, the reason I like to buy things all the time is because I'm just looking for a little bit of happiness, even though I know, things can't make you happy."
"Are you sure Dr. A knows what she's doing? We've been trying all these different medicines and I still talk so much. Maybe we need to change millograms or something. I need some help with this so that people will like me."
Wow! I tell him how proud I am that he can express these feelings to me so clearly.
"This shows me that you are doing better. Before, you were not able to express all of that to me...so you are doing better. And I'm proud of you. You may not be where you want to me, but you are slowly making progress. You are getting up in the mornings, getting ready on time. You are taking your showers every night. All of these things are progress."
I am so impressed by his insightfulness. He really does get it! He does see himself and what he is doing, but he just can't resist some of the impulses.
I have been putting off going back to a low dosage of Focalin with him, afraid of what the side effects may be. The doctor believes that with the other meds he has on board, and the lower dosage, he won't have these mad crashes in the afternoon. He is so desperate to control the over-talking, and lack of focus, that I am willing to go ahead and fill the prescription in hopes that it will help.
I am definitely fatigued by the incessant talking and I have a LOT OF PATIENCE. There have been times where I've had to tell him, "You've said that ninety-million times already! I got it!"
"I didn't say it 90 million times. That would take all day."
"Well, it feels like 90 million times!"
Imagine how it feels for those people who don't love him as much as I do, nor do they have the social skills or patience to put up with it.
I'm really happy about what he said about "buying things to find happiness." That is until the end of our conversation when he says, "So can I go to Walgreens now to buy those Amazon gift cards so I can order the Yoke for my Flight Simulator game?"
"I thought we just agreed that buying things won't make you happy?"
"I know that...but at least it will give me something to do."
Guess I can't expect everything to happen overnight...
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Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago