I send and e-mail to my son's special education tracking teacher to let her know that basically, the programing in place at the high school IS NOT WORKING for him. I do not feel he is getting the best education because of all of the distractions in the large environment that are weighing him down. Red is so focused on the couples in the hallways making out, and the groups of friends hanging out, feeling lost and left out, that he is not focusing on learning. He spends so much time being angry about not having any friends...or any real connections at school. He ends up getting himself into trouble, acting out of his anger. He makes it all bigger and bigger inside of his head and that doesn't leave much space for learning and actually getting the work done.
Granted...I don't think the combination of meds he's been taking over the past year have been exactly helpful either. Getting it right is just a maddening process. In the past week or so however, he seems like he's on the upswing of that. He has not been as moody and depressed. In fact, he has been GETTING UP ON HIS OWN, and ready ON TIME every single day! He has been working hard on self-responsibility...even doing a little homework for God's sake! (Although, he did make me sit there and baby-sit him the whole time he was doing it.)
So we have this ARD (Admissions, Review, Dismissal it's called here in Texas) meeting as a result of my letting them know that we are ready to pull him out and send him to private school. The strange thing is...once the meeting begins, they start it as if it was all their idea. "We are having this meeting because of Red's behavior, which is not safe for him or other students..." yada, yada, yada. Really??? So if I didn't send that e-mail saying that I am ready to pull him out would we be having this meeting???
Oh and by the way...there are additional Special Education staff who have been brought into this meeting from Red's home school. You see...Red is a transfer student, because supposedly his home school does not offer programming that will accommodate his needs. Was I notified beforehand that additional staff would be there and that they are actually considering weather or not his needs can be met at his homeschool? No...we just walked right into that, totally blindsided.
Typically...a parent should be notified of the agenda of the ARD meeting ahead of time by one of the team members. They expect to present you with all of this information that will effect your child's future and you are supposed to make a decision on the spot?? The committee asks parents to sign on the dotted line saying that you agree with what has transpired in the meeting...btw without actually seeing the written results of said meeting. Don't sign unless you are totally comfortable with what has transpired.
In this case we did agree, because basically this was a meeting to call another meeting. The district will be doing a VISIT meeting where we set out a roadmap for Red's future in education and in life. They will also be doing a new Functional Behavior Assessment, where they will look at his current behaviors and come up with a new behavior plan based on his current needs. They will also be doing some academic assessments to see where the gaps are in reading in math. Oh and that additional Special Education staff that they brought in from the other school will be helping them with these assessments...giving them a different set of eyes and ears to look at Red with. Why? BECAUSE WHAT THEY HAVE BEEN DOING OVER THE PAST YEAR...HAS NOT BEEN WORKING. WE ARE NOT GETTING ANY POSITIVE RESULTS. HIS BEHAVIORS ARE NOT CHANGING, which is interfering with his education.
I will admit that part of this sudden attention that Red is receiving is also because they have a new Special Education Lead at the high school. She perused Red's files to see what the heck has been going on for the past year? Why are they beating their heads against the wall and nothing is changing? She looked at his last VISIT meeting that was done in 8th grade and saw that it wasn't very meaty and it certainly did not reflect who he is today. Fresh blood can be a good thing. Sometimes the status quo staff members get into the habit of doing the same thing over and over. Well...we don't have a conventional kid...in fact, non of us do. Each child is unique. Status quo staff may not take into account new methods and training that someone fresh out of a Masters or Doctorate program may have in their arsenal.
Wow! All of this...all of a sudden. Whereas last year, they didn't want to do a new total assessment at his annual ARD because they didn't see where it would change any of his services, or programming and they would be waisting so much time pulling him out of class. YES...we were the uneducated dummies who went along with the OKIE DOKE!
Not only this...but heaven and earth were moved so that the top Transition Coordinator from the district could actually do his visit meeting before the week was out! ARD meeting on Wednesday...VISIT meeting set up for Friday afternoon! The VISIT meeting is a 3 hour plus meeting where we look at all aspects of his life and educational needs to get him to the point of relative independence. We help him, set up a roadmap, setting goals and figuring out what HE needs to do to get to where he wants to be. It's an awesome process. We were so blessed to have the woman who is the best in the district to actually facilitate ours!
We have another ARD meeting scheduled for the end of this month to go over all of the data that is being gathered and to look at their recommendations. I'm not sure if we will come to an agreement or not, but they definitely have our attention and apparently...we have theirs. They have pulled out the Big Guns and that's not a bad thing.
NOTE TO Special Needs PARENTS: Do not Agree to anything you are not totally comfortable with in an ARD meeting. You do not have to sign anything without reading the full documentation. You may be surprised what is being left out of the documentation or what is changed, by human error or not. Ask for a full copy of the documents and review them before you sign. You can always call another meeting to sign, once you are comfortable with the plan you have in place.
We are often in an emotional state during these meetings. Emotionality is not a valuable tool when you are making decisions that effect your child's future. Remember...you are signing a legal document. Don't sign anything you don't understand. I always think of something after the meeting that I didn't address DURING the meeting, or think through completely. Give your self some time to digest and discuss the the plan with your mate, or someone who has been through the process before.
Also, it doesn't hurt to take an advocate with you to your ARD meeting to help you understand the decisions that you are making and to make sure that your rights are not being violated.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago