Yesterday after school Blue and I made a mad dash out to go to the store for my mother. On the way, he says, "I'm really in the mood for tacos." What the heck? I took the opportunity to have a little one on one time with him to hear about his day at school. When we're at home, there's no telling what kind of interruptions we will have -so off to Chipolte we went.
I had a mini quesadilla (just so that he wouldn't have to eat alone...not). He had two burrito like tacos with charbroiled chicken only. No cheese, no veggies, nada! We both had a coke and a smile. It felt so good to be alone and connected to him.
I had just read an article earlier in the day about children being bullied at school on Thinking Persons Guide to Autism -Imagine After reading it I thought, how could you not know as a parent that your child is being bullied? I talk to my kids everyday. I ask them about specifics of their day, and if anything was unusual, somehow I think I would know. I check on their facebook page and eavesdrop on conversations with friends and of course with each other. (Sorry...there is no privacy in my house.) My kids are usually brutally honest and they don't miss an opportunity to complain to me about something. If anyone was bothering them, it would show itself one way or another. You just have to be paying attention.
Blue started telling me about a disagreement he had with a peer who also has autism. This friend seems to get pretty stressed out easily. When he does, he goes through a miniature melt-down with crying, flailing his arms, hitting himself, pacing and sometimes hiding underneath a desk.
It's kind of ironic that Blue gets so exasperated by this behavior. He was pretty explosive himself just a few short months ago. He has been doing so much better with agitation and melt downs since we started him on a mild dosage of Abilify. I reminded him of this fact and also the fact that he still gets pretty agitated by his brother at times. He likes to be in control. He damn near wants to parent his older brother.
I explained to Blue that everyone with autism is different. His friend's autism causes him to have these outburst, mostly when he feels like something is happening that he can not control and he desperately wants to. I cautioned Blue not to take it personally, not to try to fix it, but to just be patient and realize that he isn't doing it on purpose. A lot of his behavior probably can't be helped. We also have to throw into the mix, another child that is in their group who has ADHD, is very impulsive and does a lot of name-calling. I'm sure that sends the friend with autism over the edge.
"Do you remember how on edge you were in the beginning of school?" I asked. He looked at me deep in thought and shook his head to the affirmative.
He gave it a lot of thought. He came home and made a story board of what happened that day so that he could process it and then explain it to their Social Skills Teacher, who was not happy about the situation. He told me that his teacher had said, that some of the things the boy was doing was "on purpose to get attention." I can't imagine that to be true. However, I don't know the boy and all of his situation personally. She may have some knowledge about him that I am not privy to.
I cautioned Blue that it's hard for us to judge weather someone with a disability is doing something on purpose unless we are actually inside his head, and walking in his shoes. Maybe I'm being my usual Polly Anna-self about it, but I usually give people the benefit of the doubt.
He asked me if I thought his teacher was doing a good job with his friend. To which I replied, "I'm sure she is doing the very best she can with the resources she has. It takes a lot of patience to work with kids who have special needs. That doesn't mean she's always right and that she won't loose it sometimes. I try to be patient with you boys, but sometimes I loose it. We're only human."


Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago