"Why does school have to start so early in the morning?" It should start at like noon! Who's idea was this anyway? Someone who just wants to torture kids and make our lives miserable?"
"If school didn't start until noon, kids would be getting out of school in the dark," says the mother.
"No...we should still get out at the same time."
"How would you have enough time to learn everything you need to know?"
"Just cut out lunch and go straight through," says the 15 year-old boy.
(my Facebook Status one day last week)
I pick up Red from school early for a psychotherapy appointment. When he approaches the car, he is not wearing his ordinary frown. This is a good sign.
"How was day?" I ask.
"It was o.k."
"Did you have lunch with a PAL today?" (PALS are student mentors)
"No. The PALS weren't on campus today."
"So how was lunch?"
"I was lonely."
We stop at the Mc Donald's drive-thru. We are waiting for them to get our order right. Quarter Pounder with cheese -plain and dry, combo meal with Sprite for the drink (for Red). A small order of fries and a Coke (for me). They hand us a bag with both of the fry orders upside down so that both orders of fries fall into the bottom of the bag. What is this rocket science?
While we wait:
"Mom, do you think I'm sad about not having friends 50 percent of the time or 100 percent of the time?" he asks.
"I would say you complain about it pretty close to 100 percent of the time."
"Well you know -actually I had a good day today. I talked to a lot of people about the movie I made and people were interested. I gave out a couple of copies of the DVD and people wanted to watch it when they go home."
"Wow! That's awsome!"
"You know, I really do have more friends than I say I do. I was just walking down the hall with Ms. S (let's call her) and people were speaking to me. She reminded me that a lot of people say hello to me and that I really do have more friends than I tell you about."
"Well -why to you come home everyday complaining to me."
"I guess I just don't want you to know everything. I act different around you -at home than I do at school. I'm usually pretty happy at school most of the time. I mean -I get sad sometimes, like because I don't have a girlfriend and I really want one."
I'm sitting there just flabbergasted.
We go to his therapy appointment. He is lucid, talkative, sitting up straight, using gestures and appropriate facial expressions, and even the occasional smile. He talks about the movie he made with his new camcorder.
"So how is school going?" asks doctor Stein (lets call him).
"Actually pretty good," Red replies.
"I talked to a lot of people today. I actually have more friends than I thought I did."
They talk for a while. The conversation is so positive it's hard to believe this is actually my son.
"Dr. Stein, I'm a little confused," I interject. "Every morning for two weeks we have been fighting tooth and nail, I mean yelling, screaming, refusing to go to school. He's only been on time once in the past two weeks. He comes home everyday frowning, telling me how horrible his life at school is. He uses that as the reason that he doesn't want to get out of bed and go to school on time."
"How about that Red? Why are you giving your mom such a hard time?" the doctor asks.
"Well...I'm just tired in the morning."
"The funny thing about that is that he's the first one up on weekends and while on we were on Christmas break," I say.
"It sounds like this is about motivation...not about being tired if you have no trouble getting up on the weekends," he says to Red. "
"Also...on weekends and during vacation their is less stress," he says while looking at me.
"Red -your mom also says that you come home and complain. You're picking a fight every morning so that you can be late. So what's up?"
Red looks around for a bunch of excuses. None of them really add up. He tries to blame me for "yelling and being mean." The doctor broke down that explanation by asking him, "Is she yelling or just asking you to do something you don't want to do?"
Red admitted that to be true.
"I don't know why I treat my mom so bad. She's not really mean. I just act different with her because I've been with her my whole life." In other words...I am most comfortable with her. "I really depend on my mom a lot. She does a lot of things for me."
"So why do you think you treat her the worse when you need her the most?" the doctor asked.
He promised to try to treat me better and for the next 5 days...he did.
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Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago