Editorial Note:
This was previously published in 2010. It was also published on Autism Speaks Blog -In Their Own Words . At that time, the prayer was mostly for Red. Now that Blue is in the shallow end of the teenage years, he needs the same prayer, so I have edited it slightly.
I am throwing my hands up to this thing called Aspergers today.
I don't know what else to do but pray for my children.
I am praying for their minds to be opened to new possibilities.
I am praying for love, acceptance and understanding from his peers.
I am praying for them to find a special friends or group of friends who will be there for them and accept them just as they are. I know they're out there.
I am praying that they will listen and hear when others are trying to help -that they won't be so locked into their own thought process that they can't let new insights seep through and actually help them to change their lives for the better. I realize that I can not do this for them, as much as I want to. They have to do this for themselves.
I am praying for guidance to advocate for them
To put the right supports in place for them
To parent them in the most loving and honorable way
I pray for PATIENCE. I need a large dose of that.
I pray that those who are employed to support them will do their jobs to the best of their ability
That they will not let them fall through the cracks.
That they will see the possibilities in them.
That they will assist me in teaching them self-responsibility and that they will do so in a loving way.
I pray that they will not give in to depression and self-loathing.
I pray that they will make it through this day, this week, this year having grown, learned and matured. That they will head into the future being everything that they can be.
I pray that they will grow up to be a positive contribution to society
That they will be confident and able to take care of themselves and be responsible adults
I hope you will pray with me.
If you don't believe in prayer -that you will meditate and send positive thoughts our way.
I have a tall order here -and we need all the help we can get.
Please share this prayer with your friends, family and other Special Needs moms.
Logging you in...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago