The goal of this blog is to help educate others about what it's like to live with, and raise children with Aspergers. Lucky me! I have a double whammy -two adolescent boys with it. Apparently, this is an issue that people are dealing around the corner and across the globe.
So when my son asks me why I'm writing about him I can say -I'm writing about you so that people in the world will understand what it's like to live in your shoes. So that when you go out to get a job, or go to college people will be familiar with Aspergers. I also write so that parents who are dealing with this issue will know that they are not alone in the joys, pain and frustrations that we face on a daily basis.
Thanks again for reading!
Today's Funny:
I took the boys for an adventurous hike in a wooded area not far from our house. Both of them have gained a few pounds due to the medication that they are taking in addition to their limited diet, which I am working on, one day at at time.
Red absolutely did not want to go. He complained the entire time. We walked so far, until he had no choice but to keep following us. I promised him that the walk would ultimately make him feel better, help him sleep better and give him more energy during the day.
We're walking on a trail and we come to a fork in the road, one path is paved, the other is rocky and hilly. I chose the rocky one -symbolic of my life. The boys both hesitated.
"Mom...I don't know if this is such a good idea," says Blue.
"Are you serious? We could die," says Red.
I keep walking. "Just be careful, don't go too fast and watch out for the rocks," I cautioned them.
"I'm going to be really mad if one of us dies," Red says. Really? I laugh out loud.
"What if you're the one who dies? I guess you can't exactly be mad then," says Blue.
Maybe you had to be there...but I thought it was hilarious -brilliant really.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago