Does the average 15 year-old these days have any sense of money? I think most kids, at least the ones from middle-class families, who have never known a hungry day -struggle with what it means to do without. These boys have never lived in government housing as I did growing up. They have always lived in a house, one house better than the next. There has never been a Christmas (that they knew about) that we struggled to get presents under the tree. We've had them, but they didn't know that we had to charge nearly everything and took months to pay it off.
We are trying to instill some values in them. It ain't easy!
This year we told Red for Christmas he will get money as a gift from us. It will not be enough money for the 1080p HD video camcorder. He will have to add whatever he gets from his relatives, scrimp, save, sell his old camera, work, do chores or whatever it takes to get the rest of the money. We hope that way he will at least get a glimpse into what it's like to have to wait and save for something of such value. Mom and Dad are not going to simply hand it over.
If we continue on the same course, what the heck will he ask for next year? Or I should say, next month because undoubtedly he will be asking for something else within weeks of Christmas.
He does work periodically editing videos for friends and family members, sometimes even for teachers at school. He makes an introduction, transitions, mixes still photos with video and ends it with a list of credits like a professional movie.
Luckily, his dad has a work-related video project that he can work on over the break that he will pay him for. This will add to his savings. At the same time, hopefully it will keep him occupied some over the break.
Last night, Blue blew a gasket when I told him he could stop editing his list because I'm done shopping. In his eyes that means I'm not getting him anything he asked for. I can't tell you how he arrived at that deduction.
"Do you have any idea how much I am worried about Christmas!?" he said.
I left the house to meet my husband for dinner while Blue wasn't talking to me. By the time I came home, he had taken a nap, calmed down and sincerely apologized. Not like the scripted apology I often get from Red as he continues doing whatever it is that he is apologizing for.
I will have to admit, Red sent me a very eloquently written e-mail with his list. (Actually he has sent me about 6 revised lists.) The e-mail was well thought out, structured, very detailed and the grammar was perfect. He even came across as asking, not demanding. Maybe all of his communication should be in writing. When he gets to talking -there's no telling what will come out of his mouth.
Sometimes when I repeat back to him what he has said he tells me, "You can't listen to everything I say! I didn't mean that."
That's another fabulous Asperger's trait -being brutally honest, and sometimes talking without thinking. There is definitely no planning or thought of how what he is saying sounds or how it makes another person feel.
I can not say here, in this forum what will really be under the tree this year. What I can promise is that we will be creative and do the best that we can with the resources we have.
The boys don't know this yet...but we're going to spend next week shopping for another family who is less fortunate than we are. Think it will make them pay attention and have a little more gratitude?
That is my Christmas wish.
Not the expert mom with all the answers...the mom who can't stop looking for them.
Friday, December 17, 2010
Christmastime... part 2
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago