The boys have done an excellent job of holding it together at school this week and then came home and gave me holy hell, in one way or another. Change is excruciating for the average teen and preteen, for them it's like someone shot them in the foot! We've been through the after school melt-downs, shouting matches and good, old fashion boxing matches between the two of them. Me? I play the part of referee, ring master, animal control. We've been through torturous mornings trying to get the teenager out of bed. It takes a good half an hour, full of water squirting, pleading, negotiating, trying my level best not to threaten or beat with a stick.
So I'm feeling like crap thinking what can I do to make this easier for them. How can I ease the pain? I know I can not shield them from every growing pain that they will go through, including going to middle and high school. That doesn't mean I don't wish that I could. I put them both through the fire every day because I have no other choice. They need their education and they can't get it from me. I can not do it! They need to develop a tough skin and social skills. That won't happen with mom shielding them from everything difficult and painful.
Every day this week, I have received emails and phone calls from with the caller I.D. saying, "LISD", which means one child or the others school is calling. Each time, my stomach balls up in a knot. What now? Two of the phone calls were, "Mrs. Weaver can you come and pick up your son?" One because, the oldest missed the bus on the first day coming home -two because -the youngest would not get on the bus because of the thunderstorm. All of the other calls and e-mails were in fact positive, informing me of a basically good day from the high school special ed. teacher.
Now of course when they get home I say, "How was your day son?" With the ugliest frown they can muster I hear, "It was horrible! I HATE (long list of everything that they hate)". I probe for something positive. They just won't give it to me. I have to find out my looking at Facebook to read that the teenager had a better day. He would never just share that with me.
The middle school special ed. teacher did call to let me know how impressed she and the rest of the team are with my son. "He is self-advocating, participating and doing great! His teachers all just love him." The second call was from his Advisory teacher. This is a special class that he was invited to be a part of where they work on leadership skills and special projects to get them to start thinking about their future in college and beyond. When I met this teacher, I must admit, I was a little intimidated. I thought, 'Oh crap...how will he get along with her? Will she get him?' Well -apparently she does. She called to say, "I am very impressed with his communication skills. He worked through some difficulties and was the only child to volunteer to make a presentation in front of the entire class." I was so thrilled to get these POSITVE phone calls.
What's more, the school Psychologist from his old elementary school made a special trip to have lunch with him this week. Also, his social skills teacher offered to help him make his favorite chicken nuggets hot on Fridays if he makes it through the week in the cafeteria. His social skills teacher from last year has e-mailed me on the first day of school to let me know that she misses him and to find out how things went. He sent her return email message to give her an update.
So despite the thunderstorms, meltdowns and fights here at home, they both seem to be holding it together well at school. For that I am both happy and extremely proud. I am also eternally grateful to all of the angels around us that are giving us such love and support!
We will make it through the fire...there may be a little smoke inhalation but nothing that will kill us.
Not the expert mom with all the answers...the mom who can't stop looking for them.
Saturday, August 28, 2010
Kuddos
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago