"I can't do it! I can't ride the bus all through the neighborhood, waiting for these kids to get off the bus, listening to this thunder and looking at this lightening! I can't do it! Please Mom! Come and pick me up!"
"Son...by the time I get there the timing will be about the same as you riding the bus."
"Mom PLEASE! I feel safer in this strong building! Please can you just pick me up!"
So much for not having to pick kids up and take them to school anymore. How could I not go pick up my panic stricken child? The thunderstorm anxiety has grown bigger over the summer. What was once a little seedling has grown into a full shade tree. We live in central Texas where thunderstorms are the norm and though we have never been truly effected by a storm, my son's fear is very real. He doesn't like the sound, the vibration, and most of all the lack of control over the situation. He attempts to regain control by hiding out in the bathroom -for hours. And now he hides even at the threat of a storm -even if the chances are only 20%. You just never know! During the summer he would refuse to leave the house for days on end.
He would like to control EVERYTHING in his life if he could. This is probably because there are so many things that ordinary people have control over, but he doesn't. He can not control his emotions. He can not control his thoughts. He can not turn his brain off at night when it's time to go to bed. He can not control his lack of control!
When I arrive, he is pacing back and forth in the hallway near the front door --so focused on the storm he almost doesn't notice that I'm there. He is shaking...oblivious to how he may appear to his peers. It is what it is. There is no chance of him putting up any pretense. He is authentically SCARED!
We make it home with a blanket over his head and his fingers in his ears to block out the sound. He rushes straight to the 1st floor restroom where he finds asylum from the noise and the vibrations. He asks me to bring in his supplies, his IPOD Touch, two pillows, a blanket, and his ear plugs. He turns on the Jackson Five loud to further drown out the sound.
You add the anxiety of the storm to the anxiety of starting a middle school and you get spontaneous combustion. Then you throw in the mix of a pain in the ass brother who is also anxious and angry about his new school situation and you get volcanic eruption. Then you take away Dad who is out of town for the week, and you're left with Mom and Nana who have to coral the circus. Neither Nana or Mom are intimidating or strong enough to break up the physical confrontations, which on the outside are over something as small as, "He's touching my juice box!" But it's really about my life feels like it's totally out of control and you're not making things any better!
They both have therapists one of whom seems to be somewhat effective, the other one is a joke. I called my health insurance plan and we arranged that they see the same therapist, to help them to help me to help all of us! I also found out, because I asked, not because anyone volunteered the information, that I have an additional "Autism Benefit". Which means I can actually get some in home behavioral therapy, as well as social skills training paid at 90%. Wow! Thanks for telling me. I am getting on that train today!
In last nights rant...my youngest son told me that I gave birth to him and I did a terrible job of 'making him' because he has too many problems. Crying -he went on for 20 minutes telling me why it's my fault that he is the way he is. All I could do is ache for him and when he let me, I held him and told him that I love him and I'm sorry for what he is going through. I promised that it would get better. I massaged his back hoping to rub away his pain. I implored him to take deep breaths and let it all go. He did...for the moment. I turned on a funny movie, "Mousehunt," (thank God and HBO). I took immense pleasure in his genuine, enthusiastic laughter.
Before he went to sleep I told him that despite how difficult this adjustment to middle school is, he is really doing well.
"Your teachers think you're awesome and smart. They really like you. You ask intelligent questions, you participate and advocate for yourself. They are impressed! I am proud and I know you're going to be fine."
He gave me a half smile and a real hug. That moment lightened the load in my heart.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
Robots for kids
Robotic Online Classes
Robotics School Projects
Programming Courses Malaysia
Coding courses
Coding Academy
coding robots for kids
Coding classes for kids
Coding For Kids
Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago