Last night I went to see Corinne Bailey Rae one of my favorite singing artists at this little whole in the wall venue in downtown Austin called La Zona Rosa. It was standing room only. I don't think I've been to a "standing" concert since I was in my twenties. We arrived early and I staked out the perfect spot up on a miniature stage made of wood. The rest of the warehouse like structure had concrete flooring...I mean like concrete you find in the middle of the street. I thought the wood would be a little more forgiving than concrete. At the end of the night my feet were thankful. The joint did have top of the line Belvedere vodka at the bar, to which I added cranberry juice and a splash of orange. Yum!
She comes out on stage, a presence of beauty, grace, youth and energy, looking like a teenager at the age of 31. Yes...I was envious! (Smart cookie, must have no children.) She starts to sing, her voice so smooth, sultry and pleasing -I was transported to another place. I danced and swayed with my eyes closed, arms swaying, hips twirling like I was the only person in the room. It was a natural anti-depressant. My high wasn't just the vodka or the amazing music...it was the thrill of having a real, live, adult moment in time. Moments like this make all the details that I have to endure each day, just a little easier to take. I danced because I was happy. I danced because I was free. I was an individual, a grown up...with a life, not just an Aspergers mom.
This was a culmination for a week that I got to be a grown up on three different occasions. First I went to a movie premier of "The Dry Land" an independent Sundance Film, written and directed by a local Texas artist, Ryan Piers Williams, and executive produced by his fiance America Fererra. This was a script to screen event where we had the opportunity to speak with them after viewing the film. I actually had the opportunity to ask the last question of the evening and speak directly to Ryan and America. We had a positive exchange and shared a few moments of laughter. For that moment I felt like, hey, I'm not totally brain-dead. I can actually have a productive conversation with these young artists.
A couple of days later, my husband and I had an evening out with another couple, where we had drinks, hors· d'oeuvres and pleasant adult conversation about a variety of subjects, sans interruption from children who are wondering why they aren't the center of your universe every waking moment of your life.
My exuberance at the concert last night was about the realization that my life has its difficult moments, however I am blessed. I have a husband who loves me and stands by my side even when I'm not likable, which is often. We can still have a good time together, forgetting if just for the moment, what an arduous task we have in raising our children. We can still get our groove on! We have to make a concerted effort to find the simple things in life that will bring enough pleasure to mitigate the pain.
Thank you Ms. Rae...I let my hair down and it meant more to me than you'll ever know.
Not the expert mom with all the answers...the mom who can't stop looking for them.
Thursday, August 19, 2010
"...just go ahead let your hair down."
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Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago