So there are those who don't agree with putting yourself out there on the internet. Facebook, Twitter, blogging, it's all so public, intrusive, a total loss of privacy and control. Well...I would love to be a published author. I would love to be paid for doing what I love, which is writing. So far, this is as close as it gets and I love it! Writing is an opportunity to vent, to purge to share, to educate. Via this blog, I have met others who walk in similar shoes, who have these difficult children. We understand and sympathize with each other.
I have two children with Aspergers. Many people have no idea of what that means. O.K. so they have autism, social anxiety, they think a little differently, behave rather terribly at times, or is it all just an excuse for bad behavior?
Until the world is able to see Aspergers for what it really is, they will never understand it, much less have any idea of what it's like to parent someone with it. This blog is an opportunity to see the reality that I live. Some people may be offended by it. For that, I am sorry...well sort of. They say, write what you know. My life is what I know for sure. I definitely don't have all of the answers. I am definitely not the perfect parent. I am constantly searching, educating myself, reading everything that I can get my hands on, joining autism blogs, meetup groups, the Autism Society, Autism Speaks, seeking the advice of therapists, doctors, counselors, in order to help my children and to help myself.
People can judge and say...well, I would just do this, or that. I would just beat the s*#/ out of them! They want to apply the "old school" tactics to a child who basically lives in their very own foreign land and doesn't think in the "old school" manner. Every therapist I've met, and every book I've read, has said, it doesn't work. How can you apply rational thought when a child is being totally irrational? What does the average person they really know about the human mind and how the mind of a child with autism works? What do they know about what it is to live with it from day to day? What is it like to parent a child with autism up close and personally? Well keep reading my blog...you will find out!
I'll put it this way -before my mother moved here to live with me, I spoke to her every single day. I usually filled her in with antidotes of what is going on with her grandchildren, with school, their challenges, etc. SHE HAD NO IDEA of what I have to deal with on a daily basis until she actually saw it for herself. And she is in AWE of me -of what I do, the amount of patience that I have, and that I have maintained relative sanity. That's not to say, that she agrees with everything that I do, and the way that I parent, but she knows that she has not read what I've read, or gone to all of their therapy appointments, sat down with school administrators, psychologists and teachers, read assessments, books and web sites on autism.
I am the person who deals with my children the majority of the time. I love and appreciate their father and he is pretty freakin awesome! However, he travels and works very hard so that I can be there for them when he can not be. I love it when he is here. He is often the voice of reason, the better disciplinarian, the male influence that they so desperately need. At the end of the day, a lot of the not so fun parts fall deftly across my shoulders. I am a pre-menopausal, imperfect, 45 year old woman. If anyone would like to take over and walk in my shoes...I wear a size 8. Step right in them and see how they fit.
Not the expert mom with all the answers...the mom who can't stop looking for them.
Monday, July 26, 2010
Why Blog?
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago