Home is supposed to be a haven from the storms of life. According to Oprah, "Your home is supposed to rise up to meet you when you walk through the door." I've tried to make that my reality by decorating with warm, comforting, welcoming colors. No matter how I try to paint it -my home is the storm, not the haven.
I confess, I often find myself hiding and trying in little ways to avoid my children, mostly one of them, but sometimes both of them. My name is called like a gazillion times in any given day. Mostly by my 14 year old toddler. "Mom...Mom...Mom I need you. Mom can you come here?" Is there any any wonder why I try to hide or why my evenings are filled with glasses of wine?
School days begin at 6:35 when I wake up from my fantasy life, filled with travel, friends and the occasional handsome guy that I'm making out with. "Damn -it was just a dream. Or sometimes -thank God it was just a dream. Alan would kill me if I really did that." Luckily the only affairs I have are in my dreams. It's funny that they often involve travel. I'm always in California or somewhere wonderful, and I miss my flight to come home. Is that because I really don't want to come home? Hmm...
I get "C" up first since he has to leave for school the earliest. He gets up with a struggle, but not a fight. He does what he needs to do to get ready without many, if any prompts. Now he's 11 -granted I pick out his clothes because he'd wear things that aren't close to matching and that goes against everything within me. I make him a warm breakfast, because he may or may not eat lunch in the disgusting cafeteria, which smells like too many things. Then there's the problem of sitting next to peers who eat the disgusting cafeteria food with their mouths open so you can see what they're eating. It's tragic really. We're pretty much out the door on our way to school on time, with little incidence.
I wake the 14 year old toddler up at 7 a.m. giving him time to lay around because it takes him a while to get moving. I have to hear, "But I'm still tired. I don't want to go to school," at least a dozen times before he leaves. I've stopped making him breakfast or lunch, because -one, he doesn't appreciate it -two, he lets it get cold before he comes down to eat it and -three, because it's quicker and easier for him to eat cereal after he's wasted so much time procrastinating. He got a good hot breakfast for the first 13 years of his life and I can count the thank-you's on one hand.
There are constant prompts. There is consistent chasing and harassing the dog in order to avoid being ready on time. There is also many request for overextended hugs from me -not to express love or affection, but to slow down the process of getting ready, to control and annoy me if only for a few moments. Daily I say, "You'll get your hug when you're ready and on your way out the door. Leave the dog alone. Have you brushed your teeth? Did you put on deodorant? Let' go! Let's go! The bus will be here in 5 minutes. The bus has been waiting for 5 minutes. It's inconsiderate to make other people wait for you."
Daily he says, "I don't want to go to school. I hate school! I hate Mrs. F.! I hate Mr. C. or I hate some obscure student."
By the time they are both out of the house, I'm ready to shout, "hallelujah" and have a Bailey's and coffee...
And that's just the first hour and a half of my day.
to be continued...
Not the expert mom with all the answers...the mom who can't stop looking for them.
Friday, March 26, 2010
Just an Average Day in the Insane Asylum I Call Home
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Comments by IntenseDebate
Posting anonymously.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago