He is 14 but I swear in some ways, taking care of him is harder than the 10 year old. His behavior is often mirrors the behavior of a toddler. I mean I have to damn near walk him through every step of getting ready daily. If I don't pay attention, he'll go climb back in bed instead of getting dressed and brushing his teeth after breakfast. I swear he does it just to get my blood flowing! He wants me to blow a fuse, a gasket, something! He loves to see me react...or rather overreact. At least it's attention right?
There is also the "it's time for bed routine" that we have to go through every night. Bedtime never changes on school nights, yet he acts like he's totally surprised and generally pissed off that we have the audacity to tell him it's time for bed. "I don't see the point in going to bed at 10 o'clock! I'll be fine in the morning. Why can't you just let me go to bed at midnight?" Now he knows damn well this is not going to happen, but we have to hear the nonsense every night.
Don't let him be seriously into something on his computer. Then it's World War III when we tell him to shut it down. Now all of the Asperger's books and his therapist says, "Give him a warning thirty minutes before bed that he will have to finish up what he's doing." It doesn't matter. We still have to go through the screaming tantrums at 10 o'clock.
So I'm tired of it! I tell him he's going to loose 15 minutes of time every time I have to repeat myself when telling him to get ready in the morning, or to go to bed at night. I give him plenty of warning, but he will still start a project at 9:30, and then tell me, "I can't save right now." He acts totally pissed when we tell him time is up. The result --he ends up loosing an hour of time the following day. When we follow through on this...there is of course a battle. He's bigger than me and outweighs me by oh 60 pounds or so. Therefore, I have to send in the reinforcement troops (Big Bad Dad). He goes through his motions as usual, yelling, screaming, "It's not FAIR! I don't want to go to bed!" He says everything he can short of cursing us out, which his dad says he can't wait for him to actually do it so he can show him exactly who the alpha male is in our house!
I am pleased to report however, the next day, he got his ass up and out of the house on time, without incident and has continued to do so for the rest of the week. He has also gone to bed on time, still grumbling, but doing it nonetheless.
Positive reinforcement is all well and good, but sometimes when dealing with the negative, you have to resort to the negative. Remember in school, a negative plus a negative equals a positive?
I must say, that as a reward for being ready for school on time, I have allowed him to check his YouTube account in the morning once he is fully dressed and ready to walk out the door. This is positive reinforcement or bribery (you choose). Now I can look forward to the next battle --not wanting to get off of the computer when the bus arrives.
Life is grand at the Weaver House!
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago