He replied, "I feel like my brain wants to be left alone." He went on to explain that he still feels achy and his eyes hurt.
His regular doctor is a very tall, handsome, well dressed guy, a fellow democrat I found out when I took my "Dreams of my Father" by Barack Obama into his office one day. He's an extra 15 minutes away, but I've stuck with him partially because he's a really good, understanding and informative doctor and partially because he's really good to look at. Well he was all booked up, so I took him in to the more local clinic to see another pediatrician who's schedule was wide open. So he runs a lab to find out that he does indeed have strain A of the flu. Then he's like "Well, I could subscribe Tamiflu. It could cut the illness by 24 or 48 hours, but it may not. A lot of people complain about it bothering their stomach and then they stop taking it. Also, it's kind of expensive." I'm like -well could you be anymore on the fence about it? I mean your just so definitive. I really know what to do based on your recommendation. Geez! I go on to ask him about the flu shots and the swine flu coming this fall and winter. He's like, "Yeah you can get the shot. He may or may not still get the flu. We're not really sure if the vaccine will cover the strain that's coming." I'm like, Wow! If feel so reassured!
His regular doctor is a very tall, handsome, well dressed guy, a fellow democrat I found out when I took my "Dreams of my Father" by Barack Obama into his office one day. He's an extra 15 minutes away, but I've stuck with him partially because he's a really good, understanding and informative doctor and partially because he's really good to look at. Well he was all booked up, so I took him in to the more local clinic to see another pediatrician who's schedule was wide open. So he runs a lab to find out that he does indeed have strain A of the flu. Then he's like "Well, I could subscribe Tamiflu. It could cut the illness by 24 or 48 hours, but it may not. A lot of people complain about it bothering their stomach and then they stop taking it. Also, it's kind of expensive." I'm like -well could you be anymore on the fence about it? I mean your just so definitive. I really know what to do based on your recommendation. Geez! I go on to ask him about the flu shots and the swine flu coming this fall and winter. He's like, "Yeah you can get the shot. He may or may not still get the flu. We're not really sure if the vaccine will cover the strain that's coming." I'm like, Wow! If feel so reassured!
I left there a little pissed at the whole situation. I confess -when I got home I called the school nurse and told her that Cole definitely has the flu. I also told her that in hindsight -I was disturbed the other day when I was sitting in the cafeteria watching the teachers instruct the students to take their dirty trays and pass them down the center of the table. These are trays, that they have all touched with their hands and put their hands in their mouths to eat.! Gross! I don't think that is the best way to pick up the dirty trays. Someone should be wearing latex gloves as they pick them up, and then wash their hands afterward! No wonder he has the freakin flu a week after school started!
I have to admit -this was one of those days when I feel blessed to be at home to take care of my sick child, to take him to the doctor. On this day, I am happy that I don't have a job to feel guilty about calling in to because I have something more important to do.
Logging you in...
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago