I can’t do it. I can’t pretend that our 27th Wedding Anniversary was actually happy. I have a "thing" with people who post the “fabulous life” on social media as if life is all roses. This phenomena that has taken over our lives can lead to some of us feeling more depressed than ever. The reality of most of our lives has plenty of thorns, weeds and dirt.
Yes. We were both smiling pleasantly. (I was acting, mostly. I haven't felt like smiling in weeks).
*Get it together Karen! You're at our favorite place. This is fine dining. The food will be delicious! We can even afford this...sorta. We made it! Married 27 freakin years! Smile. Dammit! Be happy.
My husband, Alan always has that dazzling smile. He’s so good-looking and such a charmer. His public persona is impeccable. Everyone says, “He’s the nicest guy they’ve ever met." He has a loving, giving, open heart. I love that about him.
Of course, there are two sides to every story and every Gemini.
I know all truths are that are hidden beyond my husband's smile. He struggles through this life like any black man does. He is always proving to the world that he isn’t your average black man. He's none of the stereotypes. He’s not your average man.period.
How many men do you know who actually stay in a marriage for 27-years with the stress of providing for and raising three boys, two on the autism spectrum? My husband is human, flawed, with moods, inner struggles and insecurities just like the rest of us, despite his charm and dazzling smile.
He’s a better actor than I am though. I am beyond the whole “acting happy” stage of life. I have very few fake smiles or f*@%s to give these days.
We had a happy “moment” for our anniversary. I’m thankful for that. The food at Eddy V’s was beyond delicious. We shared a perfect crabcake, a Ceasar salad (which always brings back a memory of my dad. He always made the real deal Caesar with anchovies, from scratch.) Halibut topped with avocado, crab and Panko bread crumbs.
My French 77 cocktail/s (with vodka instead of gin) helped me smile and enjoy the moment. His perfect Old-Fashion cocktails helped him relax.
When we got home and tried to wind down, the anniversary was not genuinely happy. The truth is, we have mental health issues in our home. Mental health or lack thereof, can steal the glory of the actual “happy” like a shameless thief. It can ruin the party in the blink of an eye.
After this year of CoVid, pandemic, quarantine, social isolation, work-at-home, college-at-home, unemployment, and racial tension, my mental health is in the toilet, swimming in shit. Such a pretty metaphor, isn't it?
I will not speak in detail of my adult children, but their mental health, or lack there of, impacts my mental health. It has been a shit-show of a year. I am holding on to life by my fingernails.
The other day I wrote a journal entry that would scare most people if you read it, depending on how you interpret it. I cursed everybody out! I called out all of complete bullshit that has been effecting my life for years now. I have been living the stress for 4 other adults, problem solving, feeling their emotions, (empath) listening like a therapist who lives with her clients. It feels like they continue to ask me for more, and even if they don't ask, I give it. My letter was saying goodbye to that b.s.
I don't want to end my life. What I want is to actually start living it fully...in peace. I’m mature enough to realize that life has really awful moments, but you get up the next day and try to make it better than yesterday. You grow. You stretch. You say goodbye to what no longer serves you. You work to create the life you want, even though you’re exhausted. You don’t give up.
You keep working through the pain, and along the way, you encourage others to keep going, to take care of ourselves, to forgive ourselves for the places where we fall short.
Back in high-school, I remember my English teacher called me "Florence Nightingale." He told me to sit down and stop helping everybody. “No one asked you to do that,” he said.You didn’t need to ask for my help for me to give it to you. This kind of thinking can lead to a woman’s undoing. *Burnout and cumulative stress can end in physical and mental illness. Stress can lodge in your body as heart disease, high blood pressure, and cancer.
As a caregiver, mother to adults on the autism spectrum, and wife of 27 years, I work continuously to create and keep boundaries; to find mercy for myself. I practice self-love, self-compassion, and self-care. We keep practicing until we get it right.
Some people will take your last breath if you’re willing to give it to them. My adult children will probably stand over my grave and yell, “but Mom, I need…”
I work hard every day to say yes to myself. It’s not easy.
Will you come on the journey with me?
*"Burnout -The Secret to Unlocking the Stress Cycle" (Emily Nagoski, Ph.D. Amelia Nagoski, AMA, 2020)
Adelaide Dupont · 284 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 208 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 111 weeks ago