Nothing makes me dance on a Sunday morning like being alone in my own house.
As my husband leaves to go to my mom’s apartment I yell, “Stay extra long! Will ya?” He doesn’t see the humor in my snarkiness.
Bless him. He has it within his heart to go to my mom’s apartment every Sunday morning, so that they can stream church together. I do not have it within my heart. I no longer do things out of a sense of obligation, if I can choose not to. I did that for too many years to count. I have the scars of resentment to prove it.
They started watching church together when my mom lived here in our home. It’s a Baptist church out of Baltimore, Maryland where my husband’s family lives. During the week our house would be filled with screaming, arguing, and constant talking. The last thing I wanted on Sunday morning was to have someone screaming the gospel at me.
No thanks. I would rather talk to God, quietly through prayer and in my journal. I don’t need the constraints of formal Christianity, which comes with side order of hypocrisy for many Christians. My relationship with God and my spirituality are not for world consumption or approval. I admit there is still a bit of a sting leftover from the over-saturation of a childhood consumed by organized religion. There was no freedom of choice until I turned 18 and had enough.
I was my mother’s primary caregiver while she lived here. She came to live with us “temporarily” during the height of the teen and adult-transition years for my sons on the autism spectrum. Temporarily turned into ten years of me being so overwhelmed with keeping my children alive and mentally healthy. I didn’t have time to think of ulterior living solutions for my mother.
I feel the heart palpitations when think about what a nightmare it was when everyone lived here together. I’m still in therapy trying to get over that trauma.
I had to have my son, Kendal move out when he was 19. He just could not be contained within this house, along with 4 other adults. He moved into a situation that I wasn't all that comfortable with at first. However, it served a purpose. It was healthier for us to live apart.
Thankfully, he moved to San Antonio to work and live with his older brother 18 months later. Now, he lives in Los Angeles with my niece. The fact that he has a soft place to land is on my gratitude list every.single.day.
Late last summer, I was doing the happy dance after I was able to orchestrate everything so we could move my mother around the corner into a senior-living apartment. She took the last of the Sunday morning noise along with her, along with the landline phone that would ring all living day long. The calls were mostly solicitations or Kendal calling back home to report every tragic life experience and emotion. You know, like frustration over missing the bus or overcooking the chicken to the point of extreme dryness. My heart rate would go up every time the phone rang. A trauma response from years of phone calls with bad news on the other end.
When Mom lived with me, it turned out that the more I did for her as her daughter and caregiver, the more she wanted me to do, and the less she was willing to do for herself. It wasn’t mentally healthy for either one of us. I felt constantly overwhelmed and stressed. Sometimes, I would hide in my room just “not” not to be asked to do something when she laid eyes on me. I would go to a bar after yoga so I didn’t have to come home to work. I didn't want to answer the questions, as an adult in my own home, “Where are you going? What are you doing? What are you eating? What are you drinking?”
As fate would have it, my mother reached a point where she could no longer climb the stairs to get to the shower in our two-story home. The arthritis in her knees had become progressively worse. Anxiety made her believe that everything was impossible.
I hired home-health therapists to come in and help her build her strength and confidence. I knew her days were numbered in this house.
I was finally able to find her own, fully-accessible, apartment. She has a friend/caregiver come into her apartment to help with cooking, cleaning, and bathing. She now has her very own, private, quiet, space where she keeps the temperature around 80 degrees.
She doesn’t have to stumble over our stuff or be inconvenienced by my disorganization. She doesn't have share the guest bathroom with our son’s friends, who just might pee on the toilet seat when they come to visit.
She is happy with her space and I am thrilled about the doors that close between us.
The burnout from years of caregiving for my mother and my young adult sons, left me with no choice other than to draw strong boundaries between myself and my family. The experience of over-giving had kept all of us from growing.
I reached a point where my body would not allow me to do it anymore. I had neglected my own needs in order to take care of theirs for far too long. The of damage to my soul turned to anger, rage and resentment.
It took a lot of years of therapy to figure this all out. When everyone was here together, I didn’t have the wherewithall to address how my own mental health was being affected. I continue to work to hold my boundaries as my dependents work to encroach upon them. I’m still responsible for them, but from a healthy distance.
Our family has lived in this house for over twenty years. Most of those years were extremely loud, and incredibly close. As in, too many of us with too many agendas, opinions, feelings, and emotions, all living within earshot of each other.
For me it was like being on-call 24/7, living with some very needy, non-paying, clients. It was like playing whacamole, putting out one fire, and then the next, with very little time to catch my breath inbetween.
As women, mothers, daughters, and wives, we are conditioned to give from the time we are in our early teen years. Do the things that you are asked to do. Go to church. Get baptized because it’s time to give your life to God. Please the Elders in the church. Everyone is watching. Give your time in order to please others. You want to be well thought of in our community. Follow the example of Christ. Don’t embarrass your mother. And what does your happiness have to do with anything? Your job is to make others feel comfortable, so that they will like and accept you.
Growing up, my children were not happy most of the time. They were socially isolated in school, had issues with anxiety and depression. They had challenges that I could never have imagined in my own childhood. I thought it was my job to protect them, to be their voice, and give them as much happiness and comfort as possible. That was my job for a long time. Only I didn't know when to draw the line.
The same was true with my mother. Make her comfortable and happy, as you have done your entire life.
Only the weight of all of that was impossible for one person to carry. I was living the way I had been conditioned. The sacrifice of my happiness, was inconsequential.
That is, until I woke up and realized that my happiness is essential. You can only fake the funk for so long before your body and your brain give way to depression, anxiety, high blood pressure, and hopefully not heart disease, or some other illness.
When we become burnout, our bodies internalize our pain and begin to break down.
We have to take care of ourselves. It’s vital to take care of our own needs. It’s the infamous, put on your oxygen mask first, that I heard that a million times. I probably even wrote about it here on this blog. And yet, I would only take just enough oxygen to barely keep breathing. Everyone else had as much as I could humanly give them..
These days, when I wake up on Sunday morning and I am alone in my house, I dance. I don’t even need any music. It’s in my soul.
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Sunday Chillin in my swing chair. No makeup. Alone. |
Adelaide Dupont · 284 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 208 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 111 weeks ago