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I can't believe I ordered the 6 ounces and not the 9 |
What does it mean when you drive away from home and you feel yourself breathing more deeply?
You suddenly feel lighter, like a weight has been lifted?
What does it mean when you’re driving home after a weekend away and the closer you get to home, you’re overcome with a sense of dread?
What does it mean when leave yoga class feeling renewed and relaxed but when you get in your car, you can’t seem to make yourself drive home?
When you finally make it home, you sit in your car in the garage, for a few extra minutes in an attempt to extend the peace for just a few moments more.
You’re feeling all zen and you don’t want it to end. (Notice my cool rhyme? I should be a rapper.)
You find yourself cowering...hiding, praying that no one comes to open the door to see why you’re just sitting in the car.
When my son Kendal, lived at home you could best believe he would be in the garage trying to open the car door to start with the talking and the questions.
When my son Kendal, lived at home you could best believe he would be in the garage trying to open the car door to start with the talking and the questions.
You don’t go inside where the people are because you don’t want to feel the energy of anyone who doesn’t align with your own sense of peace.
You don’t want to hear any requests to give up any piece of yourself.
What does all of this mean?
Does it mean your body is trying to tell you something?
Are you listening?
Is your soul is begging for peace?
Peace has come to mean solitude.
People are often equivalent to a drain of energy.
Maybe it means that your life is whispering,
maybe even screaming…
maybe even screaming…
Something needs to change.
Things have changed.
The boys are adults.
They don’t need me in the same ways. And yet, they still look to me as their biggest resource.
I am trying to sit in the back seat and just let them drive, but I really want to get out of the car altogether.
It’s time. And yet, it isn’t.
The boys are adults.
They don’t need me in the same ways. And yet, they still look to me as their biggest resource.
I am trying to sit in the back seat and just let them drive, but I really want to get out of the car altogether.
It’s time. And yet, it isn’t.
They are autistic.
The average 20 and 23-year-old doesn't have a clue about what they want to do with their lives.
My boys are still figuring out what they want to be when they grow up.
They are still figuring out finances, saving, driving, and basic independent living skills.
The average 20 and 23-year-old doesn't have a clue about what they want to do with their lives.
My boys are still figuring out what they want to be when they grow up.
They are still figuring out finances, saving, driving, and basic independent living skills.
As much as I may want them to, they don't operate on my arbitrary timelines.
I have to constantly navigate between leaving them alone to make their own choices and nudging them forward.
I have to constantly navigate between leaving them alone to make their own choices and nudging them forward.
I have more freedom than I’ve had since they were born. And yet, I am still so saturated by the experience of being a mother.
What can I say?
I got drunk on motherhood.
I overdid it.
I got drunk on motherhood.
I overdid it.
There were too many years of no boundaries.
I literally felt everything they were going through.
There were no lines between their emotional needs and my own.
I literally felt everything they were going through.
There were no lines between their emotional needs and my own.
Too much of anything is not healthy.
Now, it's like my body and mind is in a state of rebellion.
I feel it physically in my stomach and in my chest when I hear myself saying yes to something that I absolutely know I don't want to do.
I can't do it anymore.
I don't want to do all of the things and take care of all of the people.
I don't want to cook.
I don't want to go to the grocery store.
(Well, I never wanted to go to the grocery store.)
Now, it's like my body and mind is in a state of rebellion.
I feel it physically in my stomach and in my chest when I hear myself saying yes to something that I absolutely know I don't want to do.
I can't do it anymore.
I don't want to do all of the things and take care of all of the people.
I don't want to cook.
I don't want to go to the grocery store.
(Well, I never wanted to go to the grocery store.)
I don’t want to be everyone’s everything anymore.
I do a fair amount of beating myself up for these feelings.
But I keep showing up, doing the work through therapy, reading, journaling, listening to podcasts.
I am treating my mental health like it's a full-time job. I'm getting a degree in self-care.
I realize that I am allowed to have these feelings and love my family at the same time.
But I keep showing up, doing the work through therapy, reading, journaling, listening to podcasts.
I am treating my mental health like it's a full-time job. I'm getting a degree in self-care.
I realize that I am allowed to have these feelings and love my family at the same time.
I am allowed to love myself and make what I want a priority.
It’s okay to want to love my family from a distance sometimes.
Like from a small apartment on the beach.
It’s okay to want to love my family from a distance sometimes.
Like from a small apartment on the beach.
Absence makes the heart grow fonder.
I felt so much fonder last weekend when I was in Houston with my girlfriend. And my family was not.
The boys need me less, my mother needs me more. I have all kinds of ambivalent feelings about that. Especially, since her need for me is elective.
Recently, I heard her say, “My daughter is my everything.”
A lot of people would be thrilled to hear those words come from their mother.
The words hit me like a ton of bricks.
I have been everything to my children for so long.
I have been her world for the last 10 years during one of the most stressful periods of my life.
For years it was like thinking and decision making for at least three people at a time, four if I include my husband.
He was busy working. He didn't have time for small things like what we should have for dinner.
I am energy depleted.
I'm trying to restore myself and at the same time avoid energy drains.
I have been her world for the last 10 years during one of the most stressful periods of my life.
For years it was like thinking and decision making for at least three people at a time, four if I include my husband.
He was busy working. He didn't have time for small things like what we should have for dinner.
I am energy depleted.
I'm trying to restore myself and at the same time avoid energy drains.
Do all of these feelings that seem to be intertwined with my actual home, mean that I am not happy here?
Well, home is supposed to be your refuge ...your place of solace.
Home is my place of work...neverending work.
Perpetual needs of others to be met.
It’s the place where I worry the most.
It’s the place where I am constantly figuring out all of the things.
Home might be peaceful.
It might not.
It might not.
Things can erupt at any given moment.
That has been the case for years.
The amygdala of my brain is constantly on alert.
P.T.S.D. is in full effect.
P.T.S.D. is in full effect.
It’s exhausting constantly being on standby for an explosion or an interruption.
There are other energies that live here.
They do not always align together.
They definitely don’t always align with mine.
Is this why I like being away from home more and more?
I can control the energy when it’s just me to think about.
Home is a place where I cringe when I hear my name.
Someone wants something from me.
Someone wants something from me.
I am a creative spirit with focus issues.
Home is not always the place where I can create.
I create here when I can, but there are little zaps of resentment when my energy is sidetracked.
My whole life has been sidetracked.
I'm ready to get on course.
To stop living by accident, in a state of reaction to the needs of my family.
To stop living by accident, in a state of reaction to the needs of my family.
I’m a mother, a wife, a caregiver to my mother.
But I didn’t sign up for this latest shift.
This is overtime.
It's like extended, sequestered jury duty. They won't let me go home ...to my place of peace.
When the boys were children, I literally gave them everything I had without thinking twice.
Autism and depression made their happiness elusive.
I tried my best to make up for that anyway that I possibly could.
I will never forget the day I picked Kendal up from school in the fourth grade.
He was sad. He was crying because his friends were sitting around together being goofy and laughing together.
He didn’t understand what was funny.
He didn’t understand what was funny.
He just wanted to laugh like everyone else.
He used to laugh together with his friends in the first grade.
By the third grade, they were secretly laughing at him because of his constant impersonation of Sonic the Hedgehog (which was very good by the way).
By the fourth grade, he found no reason to laugh.
All he could feel was difference.
“Let’s go get some ice cream,” I would say, as he cried in my arms.
“Tonight we will have whatever you want for dinner.”
Just an ounce of happiness.
Is that too much to ask for a nine-year-old child?
I am a mother, still.
I am a caregiver.
I give care to others.
I am an empath.
I feel all things deeply.
I feel all things deeply.
My family has watched me give and give and give, over so many years.
They have come to expect it.
It’s a shock to them that suddenly I realize that I can no longer live without boundaries.
Saying yes all time wasn't healthy for any of us.
Saying yes makes people in your care have more expectations and entitlement.
Saying yes without thinking left me empty.
Saying yes without thinking left me empty.
I forgot how to say yes to myself.
I forgot that I am a self.
When you are a giver, people are naturally inclined to take what you offer.
They don’t concern themselves with what you have leftover to give to yourself.
That my dear love is up to you.
There will be no elaborate ceremony where you will be given permission to take care of you.
This is a gift you give to yourself.
I make the choice to take care of me every day.
I chose to listen to my voice and not allow it to be drowned out by others.
My happiness is not a destination.
It is a journey…
and I have a closet full of the most comfortable shoes.
Adelaide Dupont · 284 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 208 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 191 weeks ago
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Spoil your cat · 121 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 111 weeks ago