Do you ever walk around thinking...Boy, my attitude sucks? I wish I could change it.
No matter how much inner dialogue you have with yourself, it doesn’t change. You walk around feeling slighted, taken advantage of, angry. You end up lashing out at people you love knowing damn well that isn’t going to change anything.
This whole therapy, self-awareness, self-love and care thing is great. Until you realize that your biggest problem is you. You’re allowing negative thoughts and feelings to rule your life. You’re angry because you’re not getting what you want from others but then you realize, you’ve been looking in the wrong place. You should be looking in the mirror.
The last time I wrote here, I talked about my latest challenge with my mother’s declining mobility. I was experiencing all kinds of emotions and feelings about my new increase in job duties. I was overwhelmed, and I still am but I'm moving through it anyway. I was feeling like I was being knocked back down just as I was trying to get up. I was angry because the freedom that I thought was in reach after raising these intense children, has been pushed back.
In the past few weeks, I have re-evaluated the situation and my attitude about it. Through journaling, I remembered that the only person I can control is myself. I’ve gone from feeling pissed off, tired and angry and I'm arriving at acceptance.
My mother is almost 80-years-old. Her health, mental and physical is what it is. As much as I want her to snap out of it and have more of a, "I can do this" attitude. I can't control that.
I can want someone to come and help me with what feels like an overwhelming task. But, I am the only person I’m in charge of.
This isn’t my first challenge in life and I’m sure it won’t be the last. I’ve had some pretty big obstacles to overcome when it came to raising and advocating for two children with autism. Somehow, I always worked through the challenges and made things happen. I never accepted the words, “No. We can’t do that.”
Yes, of course, you can. You just have to think outside of the box. There’s always a way.
I have never let roadblocks stand in my way. And by roadblocks, I mostly mean other people who do not care about the outcome of my situation as much as I do. Sometimes, roadblocks are arbitrary rules that are set up that make you want to just give up and not ask for what you need. Giving up is not in my DNA.
I have always managed to get what my children needed from every doctor, therapist, teacher and school administrator. I showed up like a dog with a bone until the boy’s educational and psychological needs were met.
In the current challenge of figuring out my mother’s next phase, and advocating for her needs, I will do as I have always done. I will work it out and I won’t wait for anyone else to make it happen.
I remember the last time Mom was in the hospital and they were trying to figure out where her sudden confusion was coming from. Her sodium level was low. That explained some of it, but I knew there was more to it. I would not leave the hospital until I got a Psych consult. That led to us finding a doctor who could help her. The consult got us a referral for my mom to be seen sooner, rather than later.
In the quest to change my attitude about my current situation, I thought about something I read a while ago. I don't think this is the original quote I read, but this is basically the sentiment.
No one is coming to rescue you from yourself: your inner demons, your lack of confidence, your dissatisfaction with yourself and your life. Only self-love and good decisions will rescue you. – Jenni Young
I am here to rescue myself.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago