I may or may not have threatened to “murder” my son this week. Being the literal person with autism that he is, he may or may not have taken me seriously.
It was one of those days that we’ve been having a lot of lately. A day where he is laying around like a slug, on a school morning and on into the afternoon --like he doesn’t have a care in the world. The world is zooming by on a Wednesday afternoon and he is completely unfazed.
I have to leave to run an errand. So, I tell him to get ready. I would drop him off on the college campus, while I'm headed in that direction.
The errand is to meet his brother at the barbershop. I happen to owe him twenty-five dollars (another story). His brother, (age 22) also has autism and takes medication. However, he has already gotten up and made himself breakfast; packed his lunch; volunteered at the Food Bank; gone to school, (transition class) to workout at the gym and then walked to the barbershop. All of this, while Blue has barely eaten breakfast. Not that I’m comparing my children because you’re not supposed to do that. Everyone has their own journey. Blah. Blah. Blah!
Thirty minutes later, I’m ready to leave. I go to his room to find him laying back in bed! Not dressed. Not ready to go! It’s 1 o’clock in the mother fracken afternoon!
“What are you doing?”
“Well, I don’t have to be there until 3. So I just thought I’d take Uber.”
“I’m offering you a free ride NOW! Get your ass up!”
Generally speaking, I am a non-violent person. The only real fight I’ve ever had in my life, was with my brother when we were kids. I may or may not have gone after him with a knife and ended up cutting myself in the process. I would not admit to this in a court of law. Besides, it was self-defense. I think. Well, he did something to really piss me off. And there had been years of torturous, relentless teasing that went on. To include, once giving me Ex-Lax, telling me it was candy. At the very least, if I had been arrested, it would have been justifiable homicide.
I am not a yeller and screamer like my mother was. But boy! On this day, I wanted to scream!
Instead, I fumed on the inside and did not lose my shit, until I dropped him off. I sent this text to his father.
Instead, I fumed on the inside and did not lose my shit, until I dropped him off. I sent this text to his father.
Only, I didn't send it to his father. I accidentally sent it to my son!
That’s it. It is decided. I am the best Mom EVER!
Yep! Mother of the Year!
He had a few other choice words for me...which I will not share here. He was NOT Happy with me. Of course, I was NOT Happy with him either.
He had a few other choice words for me...which I will not share here. He was NOT Happy with me. Of course, I was NOT Happy with him either.
I was extremely frustrated in the moment. I considered myself yelling via text at his father (lucky hubby right?) so I didn't yell at my son, which in the moment, probably would have made matters worse.
I am actually very concerned about his intense sleeping habits. The next course of action is a sleep study, which he actually requested from his doctor. Here we are again, trying to piece the puzzle together.
I am actually very concerned about his intense sleeping habits. The next course of action is a sleep study, which he actually requested from his doctor. Here we are again, trying to piece the puzzle together.
Is it the medication? Is it depression, anxiety, avoidance behavior? Is it a sleep disorder? Does he have a life-threatening illness? Or is he just being incredibly lazy? This has never been his character. Something ain't right ...a mother knows. You know what they say, "behavior is communication."
It doesn't seem normal for an 18-year-old to need more sleep than I do at age 29 (wink, wink) and I need a lot of sleep so that I remain Zen, Namaste and all of that crap.
So …off to doctor this week to get blood work, evaluate meds, do the sleep study and figure out what’s wrong with him, so that I don’t actually have to murder him.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago