So many thoughts in a given day. So many feelings of complete overwhelm. I haven't written about my mother's troubles in great detail, but they feel huge and weighty. Perpetually occupying space in my already overcrowded head.
She is not near death but her issues are not easily "fixed" if fixable at all. And yet, I constantly think about what I can do to help her. What will make things better? I just want to see her happy and enjoying this time in her life.
I was writing while sitting in the airport. When I got on the flight, I noticed that somehow I hit publish instead of hitting save and 71 of you have already read my incomplete thoughts so...I guess I should finish this post.
I can never make a reservation without hesitation. Thoughts about all of the things and all of the people and details must be considered before I take off. Even this time as I head to Los Angeles for the memorial service of my brother who passed earlier this year, I have to consider my mother.
This time, it wasn't so much about my kids (who are not really kids anymore). It was more about my mom. I didn't want to leave her at home. I didn't want to take her with me. Maybe I'm lazy or maybe I'm just tired of constantly having to consider others before I go to the toilet, much less anywhere else. I didn't want to have to consider her every time I move from place to place in L.A.
Will she be okay? Will she comfortable? Will she be upset because I went here or there?
I've never been a loner, but my God! My family has turned me into one.
I went ahead and purchased the ticket because of course, I should go support my other siblings as we lay my brother to rest. I'm just so peopled out right now. And as much as I want to see everyone, I also would really like some time to be completely alone and not worry about anything or anyone.
It's weird to be going home not excited. I really don't feel like peopling.
Parenting and caregiving has turned me into someone I hardly know. I'm sure I'll get my groove when I get there.
Hopefully, I can spend some time with my feet in the ocean ...just being.
I can't see her without thinking all of the thoughts and feeling the sadness over this space that we're in. You know that when you're taking care of a parent, sooner or later you will be dealing with health issues, and ultimately you will have to face their mortality. You hope that it will be short and painless, but that would be impossible. There is no such thing. You hope that you will be prepared for whatever comes. I was not prepared for this.
She is not near death but her issues are not easily "fixed" if fixable at all. And yet, I constantly think about what I can do to help her. What will make things better? I just want to see her happy and enjoying this time in her life.
I was writing while sitting in the airport. When I got on the flight, I noticed that somehow I hit publish instead of hitting save and 71 of you have already read my incomplete thoughts so...I guess I should finish this post.
I can never make a reservation without hesitation. Thoughts about all of the things and all of the people and details must be considered before I take off. Even this time as I head to Los Angeles for the memorial service of my brother who passed earlier this year, I have to consider my mother.
This time, it wasn't so much about my kids (who are not really kids anymore). It was more about my mom. I didn't want to leave her at home. I didn't want to take her with me. Maybe I'm lazy or maybe I'm just tired of constantly having to consider others before I go to the toilet, much less anywhere else. I didn't want to have to consider her every time I move from place to place in L.A.
Will she be okay? Will she comfortable? Will she be upset because I went here or there?
As it is at home every time I move, she is watching. She's asking, "Where are you going? When are coming back? Why are you going upstairs? You're going to bed now? Why can't you wait?"
I've never been a loner, but my God! My family has turned me into one.
I went ahead and purchased the ticket because of course, I should go support my other siblings as we lay my brother to rest. I'm just so peopled out right now. And as much as I want to see everyone, I also would really like some time to be completely alone and not worry about anything or anyone.
It's weird to be going home not excited. I really don't feel like peopling.
Parenting and caregiving has turned me into someone I hardly know. I'm sure I'll get my groove when I get there.
Hopefully, I can spend some time with my feet in the ocean ...just being.
Adelaide Dupont · 285 weeks ago
And for those of us who knew and appreciated these points in high school to a greater or lesser extent - always good to have a refresher and feel them through the current and future generations who we survived to be able to see.
I especially appreciated points 5, 7 and 10.
And young women not settling or settling down yet is a good thing.
"It's never too late to live our dreams" - but it may be too early for some of them!
And 8 of course.
nicole · 243 weeks ago
Risa · 230 weeks ago
LAH · 221 weeks ago
Maira L. Coral · 216 weeks ago
I was looking for information for my Multi-Genre Disability Research Project from my Early Childhood Special Education class on the web, when suddenly I came across your blog. I started reading this out of curiosity and I want to tell you that as you said yourself, you will not be Amanda Gorman, but you managed to make me shed some tears, perhaps because I felt totally identified with your words, especially in the part that you speak of your son. My son also has Asperger's syndrome, he is 19 years old and he is in the second semester of College. Also like yours, he takes classes from home, likewise my eldest daughter is also taking college classes from her room. At the same time, that I work as a preschool teacher from my kitchen through a computer, my husband sleeps in the room during the day because he works at night. Also in the afternoons I myself take virtual school classes. I am a 51-year-old Latin woman who began to learn the English language as adult, so maybe you find some deficiencies in my writing, however, I was very moved by how proud you express yourself about your son. Referent your mother, I liked the humorous tone that you give when your talk about her, so I did not want to miss this opportunity and stopped my assignments for a moment to let you know that your words do make a difference, since they reach the heart of at least those who have opportunity to read you. I want confess you that is the most long I have written to someone I don't know, because your words inspired me, thank you...
Gavin Bollard · 209 weeks ago
Thanks for this post. I've been very distracted of late and so this was how I found out about our friend Kate. Kate's struggles were very real but they were so constant and so wide-ranging that it was difficult for people around her to address them. I think it's going to take a while longer for me to process all this.
I learned so much from Kate because she was always quick to point out the many injustices in the world. In her glory days, she was very much a crusader and she cared for everyone. Over the years, as her situation took its toll, I came to realise that it was the fact that she couldn't be put in a single specific category, that made the system fail her. She needed help that they weren't set up to provide.
She needed more care and she needed to be less alone. I'm so sorry that this has happened.
For a long while we were corresponding almost every day but a couple of months ago, I realised that she had become so stressed that nearly every interaction I had with her was starting to trigger her. I backed away to give her a bit more space. She only had a little time that she could stand to be online and there were too many things that she wanted to do in that time. I thought that by taking a step back, she could reach out to more people who might be geographically closer and able to assist.
Kate was a beautiful soul and she will be sorely missed by all of us.
diyalabs6192603 11p · 192 weeks ago
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Spoil your cat · 122 weeks ago
Many of these living arrangement aren't good, and many of the people who run those places really don't have the residents' best interest at heart. Those places are like old age homes and foster homes, where you sometimes hear horror stories. They're hard to trust. But then there are good ones, of course.
The best thing for an autistic adult is either to go on living at home or working and renting an apartment and living independently, but that isn't always an option.
Duncan · 112 weeks ago